AVN - RAISE AWARENESS OF AVASCULAR NECROSIS
This petition had 483 supporters
Avascular Necrosis ( AVN) is a painful rare disease, it happens due to lack of blood supply to the bone. There is no cure. My Doctor diagnosed my bilateral hip replacements due to AVN reading from Google. He had never seen it before therefore wasn't looking for it over 5 months of misdiagnosis. It's a chronic disease that effects people from the age of 4 to elderly, Often the disease leads to bone collapse. Therefore total replacement of the joint is required. Especially if early diagnosis is missed. Once AVN is diagnosed the risk of spreading to other joints is very high and mainly concentrates on larger joints including knees, shoulders, elbows, ankles and even the jawbone. Sudden loss of blood supply can happen due to trauma of the joint, medical doses of steroids, autoimmune diseases, clotting diseases, Chemo, radiation to name a few. We need research so children and adults don't have to deal with lifelong pain and low quality of life due to misdiagnosis . It's difficult to live to your full potential when you suffer in pain everyday and the worry AVN can occur in any joint at any time... Let's start with trying to raise awareness within our Health system even if it is an email to every GP practise. THANK YOU.
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