We are the Law Family. In 2021, our darling daughter Violet, then 2, was diagnosed with neurologic disease known as GM1 Gangliosidosis, a fatal pediatric disease. We have dedicated our efforts to fundraising and advocacy for the GM1 community, and we need your support in encouraging our California state legislators to declare May 23 GM1 Day!

GM1 is a progressive disease, meaning irreversible damage occurs the longer someone is affected. The faster a diagnosis can be made, the sooner a patient can work to limit the damage by trying therapies, taking medications, and joining clinical trials which may slow disease progression or help with symptoms. 

Unfortunately, most doctors are unaware this disease exists. Because of this, the diagnostic odyssey takes an average of four years for most families–too long. An officially recognized day of observance could more effectively spread awareness and improve outcomes. Awareness days and all initiatives leading to earlier diagnosis and improved outcomes could improve and even ultimately save lives.

Please help us by encouraging our California state legislators to officially recognize May 23rd as the International GM1 Gangliosidosis Awareness Day, which is being organized by the Cure GM1 Foundation (http://www.curegm1.org Founded by parents of children who suffer from GM1, this nonprofit seeks to save the lives of all those with this wretched condition by funding research for treatments and a cure.  After an amazing trip to Sacramento, we have already gathered the support of several state Assemblymembers, and we just need this push to get the resolution through!