A cure for Huntington's Disease

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Huntington's Disease is a neurodegenerative disorder that affects the brain. It breaks down into three different categories of affliction: cognitive, emotional, and movement.

Read my mission: https://chuffed.org/project/hope-for-huntingtons

When carrying the Huntington gene, your offspring have a 50% chance of being afflicted by the disease as well. Each child is 50% at risk for developing the disease. Each like flipping a coin. Get tested.

Huntington’s causes involuntary jerking or writhing movements, slow or abnormal eye movements, difficulty with speech or swallowing, difficulty organizing, prioritizing, or focusing on tasks, perseveration, lack of awareness, depression, insomnia, fatigue and loss of energy, and many other debilitating symptoms.
My prognosis: death by age 45 with my CAG count at 43. (CAG count is a measure of how many mutant Huntington's DNA strands I have.)

-Mayo Clinic on Huntington's Disease:

http://www.mayoclinic.org/diseases-conditions/huntingtons-disease/basics/definition/con-20030685

"Silence is consent." Use your amazing voice for something Good; we're loudest together.

Why is America one of the very few countries NOT leading any gene therapy or research on genetic disorders? Why is it still illegal?

I wasn't too happy to find out I was going to have to go to another country to fight for a cure for Huntington's. I was disappointed I couldn't do it in my own country and that I have to travel abroad to propel an initiative for a cure.

-When will gene therapy come to the U.S.?https://www.technologyreview.com/s/519071/when-will-gene-therapy-come-to-the-us/

 

Why are Editas Medicine and Monsanto some of the only companies to hold an international patent and usage rights on CRISPR technology, and the revolutionary Cas9 viable cure technology? Seems a little counterproductive to me. It can only go so far with few companies limiting its use. Doctors worldwide need to be able to collaborate together, experimenting on new technologies improving them in unison, as one team. Not be held back and separated by a patent.

-Read over the patent submitted February 6, 2017:

http://www.crisprupdate.com/category/crispr-patents/

-Here is Editas Medicine's website:

http://www.editasmedicine.com/

-Monsanto will cure and modify our crops, what we eat, but not let us cure us?

https://www.statnews.com/2016/09/22/monsanto-licenses-crispr/



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