Achieve a cure for DYSTONIA
This petition had 218 supporters
My name is Cecilia Archilla I'm 44 years old and was diagnosed with DYSTONIA with a little of DYSKINEA. I was a very healthy woman working in the nursing department, 2010. I hit a snag in 2014 I got very depress. I went to see my PCP and a social worker and we found a psychiatrist that would see me as little as 3 weeks. Well I was like thank God I'm
getting the help I need. So I waiting for that day. She prescribe me medications. I read up on my medication but 1 I fail to read on. In my case I thought all was read. Well as I was taking this medication called perphenazine which is a psychosis medication she kept increasing and decreasing I ask her why she said to stabilize my mood, what mood she claim I was bipolar 2. Wow what a surprise to me so I told my kids at the time they were 22 and 24. Well here comes the big life changer I was misdiagnosed giving the wrong medication, all I needed was a simple anti-depressiant medication. I started to get involuntary movements they were and still are on my neck and arms, my voice has change I'm embarrass to talk at time my eldest granddaughter ask me 1x time why I sound different. I had surgery done no success on the speech. I have spasdmic Dystonia with a little Dyskinea to my face. I now see a neurologist who gives me medications and botox injections every 3 months on the back of my neck above my shoulder to relax my muscle. Now were trying to get Medical Marijuana. I will keep you posted.. and yes my life was turn up side down. 2 1/2 year's later, I'm married to Roberto Archilla my son is now 24 and my daughter 26, daughter in law 24 and my 3 grandkids has been my rock. They are the people who help me except what I have even though my body lives with a lot of pain, my HEART is filled with a lot of love and I get a lot of LOVE back. LET'S FIGHT AND GET A CURE FOR DYSTONIA!! THAT'S MY STORY... PLEASE READ ASK EVERY AND ANY QUESTION NO QUESTION IS EVER STUPID WHEN IT COMES TO YOUR HEALTH!!
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