More Funds To Research A Cure For Scleroderma

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Congress, please support this Petition by directing the National Institute of Arthritis and Musculoskeletal and Skin Diseases at the National Institutes of Health to expand research related to Scleroderma, development and evaluation of new treatments, research on the relationship between Scleroderma and secondary conditions including: Pulmonary Hypertension, Gastroparesis, Raynaud's Phenomenon, and Sjogren's Syndrome. Establishment of family and childhood onset, patient registries. Support for the training of new investigators. Direct the Centers for Disease Control and Prevention to establish a Scleroderma Public Awareness Campaign highlighting disease symptoms, prevalence, related conditions, and the importance of early diagnosis.

Scleroderma is a rare and debilitating autoimmune disease which there is no cure for. It's often progressive and sometimes, fatal.  It affects every age and gender and it's neither preventable or contagious. It confuses the best of the medical field by making it difficult to diagnose. Scleroderma attacks the Vascular System, cutting off blood flow to extremities, resulting in Gangrene and amputation. It affects the Gastrointestinal Tract, Heart, Kidneys, Lungs, and Esophagus.  Scleroderma causes hardening, thickening, and tightening of the skin which oftentimes, causes devastating results to one's facial appearance and one's mobility.

This Petition is very important to patients, and family members living with Scleroderma. Thank you for time and consideration regarding Petition.

 



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