MEDICAL SUPPORT FOR HAEMOPHILIA PATIENT AND GOVERNMENT ALLOCATE A BUDGET FOR HAEMOPHILIA
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My name is Charles Kibe Njogu a haemophilia patient.
Haemophilia is a genetic blood clotting disorder.
It is basically due to absence of one of the clotting factors in our blood which leads to internal bleeding mostly on joints and for no specific reason or to external bleeding subject to a cut.
This bleeding doesn't stop unless an anti-haemophilia Factor(AHF) is infused to patients body.
This AHF is not readily available in the market and is made to us available via haemophilia society.
One single bleeding could require a minimum of 1000 units of AHF,and one unit of AHF costs close to ksh15,000.
A haemophilia patient on an average may need 5000unit to 6000units of AHF to be infused in a month, that is when a bleeding is a little favourable one.
A serious bleeding could lead to an average of 10,000units of AHF or more than that in a month.
The bleeding starts attacking joints one by one and leading to permanent damage of it.
Looking into the seriousness, non-availability and expensiveness of the AHF many countries has made AHF available at free cost to their haemophilia patients.
USA has gone a step ahead and infuses AHF to its haemophilia patient even before the bleeding takes place, the idea is to make AHF readily available in the body which will lead to proper clotting of the bleeding.
India too followed the steps and decided to make these AHF available at free cost, but only in government hospitals and the patient during his bleeding has to visit the hospital and get the AHF injected.
In kenya Haemophilia is not recognised by government, However there is no common rule yet for haemophilic across the country.
AHF are not something which a lower class, middle class or an upper middle class can afford. Hemophilia has been assumed by many strong bodies like the government and yet we loose a lot of innocent life's. We depend on donations of AHF because they are very expensive to buy a single dose . That means if the donor stops supporting us our hemophilia generations will instinct. Still we get free donations but the process of shipment is long and yet many are suffering. Since June 2018 we get serious admission of hemophiliacs since we have no factor in the country. Visit our National hospital Kenyatta National Hospital,Coast general, MTRH and muranga district hospitals and hear the crying hemophilia families in wards and even in refugees camps. Think a bout this, you enjoy life since your body allow full clotting while there is a young life that wishes to be like you. We request our President and Kenyan citizen to think about about this, Blood being a key component and that it doesn't stop normally. Save our hemophilia generation by allocating a budget for us.
Through this petition I would kindly request to our Dear President UHURU KENYATTA, Deputy President WILLIAM RUTO, Health CS and honorable member of Parliament and The Senate to make law which will recognize HAEMOPHILIA as a CHRONIC DISEASE. Also buying for us AHF to minimize the death occur due to lack of AHF incase of bleeding. Make a law that will allow entry of AHF tax free, Include Person living with Haemophilia in Disability list of help and privileges. This request is not only for me but for thousands like me who are suffering and many dying due to lack of better treatment and availability of AHF.
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