Policy Change

Policy Change

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Shakita Jones started this petition to Centers for Disease Control and Prevention and

Lupus is not well known by doctors and people of color but yet it affects black women more then any group of women. It is said that 3 out of 5 women are black who suffer from lupus. And before a black woman can get a diagnosis she many times is near death or have organ failure. It is well documented that the onset of Lupus begins early for black women and yet when she goes to the doctor her complaints are ignored and over looked. Lupus also isn't recorded as it should be because when a woman dies from lupus in the hospital doctors do no associate it with complications of Lupus. So when doctors do not record the death of Lupus patients, CDC doesn't give money to find cures. Not very much research has done to understand why black women are more susceptible to Lupus, there hasn't been research in West Africa to see the connection. There has been research in East Africa,  however, being that blacks are a admixture of West African and European this does nothing to help the black woman who suffers from Lupus. In fact, in West Africa they know even less about Lupus and are more prone to think it is Malari or a spiritual attack when in fact it could be Lupus. I want to change this. I want Lupus to be added to our yearly health checks just like cancer and the other diseases we are check for annually. It is unnecessary for a woman to suffer for years with this debilitating disease before being diagnosed . Many women end up with some kind organ failure and their whole life is no longer the life they had before lupus. I feel new health policies are needed. I feel this will change the life of women every where but especially women of color and even more so black women. I want doctors to give these simple blood panel test and I want them to follow the American Rheumatologist criteria to diagnose a patient with Lupus when there are no answers to what is wrong, this especially should apply to black women. I believe this would had changed my life when I first complain of fatigue and pain... It was almost to late for me. I was in and out of the hospital on deaths door and no doctor for over 20 years thought of Lupus but one doctor out of countless ordered a blood panel and it was discovered that I have Lupus. If this police  had been apart of my Aunt Debra Jones annually check up at 21, when she started having kidney problems this could had saved her life having an earlier diagnosis. I think CDC need to do more research about the connection between black women and Lupus. I think Lupus should be added to women wellness check and I think more research should be done including West Africans and black women to finally get answers or connections to why black suffer the most from lupus. Please help me, women and men like me. Yes men also suffer from Lupus. Thank you�

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