Petition update

Petition Mailed to top Officials at CDC and HHS

Patient Centered Care Advocacy Group
Silver Spring, MD

Aug 24, 2016 — This petition was officially filed on August 8 with CDC Director Thomas Frieden via certified mail. Copies were sent to:

Sylvia Mathews Burwell, Secretary, Department of Health and Human Services
Beth Bell, Director, National Center for Emerging and Zoonotic Infectious Diseases
Lyle Peterson, Director, Division of Vector-borne Diseases
Paul Mead, Chief of Epidemiology and Surveillance for CDC’s Lyme disease program
Christina Nelson, Manager of CDC’s Lyme Corps Program.

This “citizen petition” was filed in accordance with the Administrative Procedure Act (APA), which governs the conduct of the federal government. If CDC fails to respond in a timely manner, or if the response is unsatisfactory, we have several options to press the issue.

The APA allows petitions to be amended, so while we are waiting for CDC to respond, we will be filing a series of amendments. On August 15, the first of these amendments was filed to add the following report as an appendix:

“Active Infection: Clinical Definitions and Evidence of Persistence in Lyme Disease—Contesting the Underlying Basis for Treatment Limitations for Early and Late Lyme Disease, as well as Chronic Lyme Disease, Alternately Known as “Post Lyme Disease Syndrome” By Steven E. Phillips, MD

This report includes an excellent, point-by-point refutation of the key contested elements of the 2006 IDSA guidelines. The full text is available at http://module.lymediseaseassociation.org/PhillipsIDSA.pdf

In addition to mailing hardcopies of the petitions and amendments, I emailed PDF copies to save them the trouble of scanning the documents.

Comments of people who signed the petition will be sent as another amendment in early September.

Sincerely,

Bruce Fries, President
Patient Centered Care Advocacy Group Inc.
https://www.facebook.com/PCCGroup/


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