Wow I’m shocked, I’ve been nurse for over forty years, thirty seven as a children’s nurse, and cystic fibrosis is a cruel disease.
I am delighted most our children now make it into adulthood. (I’ve attended far too many children’s funerals in those years) The condition doesn’t just go away as you become an adult, the treatment and drugs needed are relentless.
Good luck with the campaign, and enjoy your best life. Xx