Without Spinraza, Zahra will die

Reasons for signing

See why other supporters are signing, why this petition is important to them, and share your reason for signing (this will mean a lot to the starter of the petition).

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Barry REdmond
Mar 20, 2021
Good luck Zahra, You are in my prayers !!!

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Cora Strub
Mar 20, 2021
Everyone deserves a chance to live.. ❤️

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Zachary White
Mar 19, 2021
This is good news. I hope it improves her life.
I don't believe companies should have to give away their products, nor that compassion can or should be "enforced". The problem is the rarity of the disease. Even if the drug works great, they may never sell enough of it to cover the cost of development. With that in mind, they shouldn't try to pin the cost on a few patients, because they likely knew this going in. I think they could allow another successful drug program in their holdings cover the cost, for example, instead of expecting every drug to pay for itself.
Why do it then you ask? There are benefits besides money that can translate into profits. Demonstrating their capability and compassion should be desirable to stockholders.

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Sydney Pitcher
Jan 31, 2021
This is a perfect example of detrimental price gouging! This is where pharmaceutical companies need to put their profits aside, make exceptions and realize that a persons life is more important than money. If they don’t, this is where the government needs to step in and limit how much drug companies can sell their products for. Please do the right thing and give this little girl who has so much life ahead of her a free dosage of this medication.

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Mary Ann Andruscavage
Dec 30, 2020
Need medication asap.

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Tamia Rashima Jordan
Dec 3, 2020
Wow. Just do better people.

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Karin Costa
Dec 2, 2020
My ❤️ breaks for Zahra. No one should suffer like this when there's a cure available & all that's preventing that cure is stupid money.

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Lizzette de la Cruz
Dec 1, 2020
Soy madre y quiero que esta niña viva al igual que los míos lo han hecho. Justicia para nuestra niñez.

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Norali Rodriguez
Dec 1, 2020
Confiando en la misericordia y el poder de la compasión.

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Martina Jimenez
Nov 29, 2020
Everyone’s life counts.