Dear Biogen Company please gift Benjamin compassionate use of Spinraza. He deserves a life
This petition had 17,953 supporters
3-year-old Benjamin Salehi is suffering from SMA1 (spinal muscular atrophy type 1) . The only medication to save his life is Spinraza which is the country's most expensive drug at the cost of 750,000 dollars!! Benjamin is now bedridden in Iran and is in a desperate situation. Biogen Company which markets Spinraza does not have any connection or contact with Iranian ministry of health at this moment.
Benjamin deserves to live and if he does not receive the drug as soon, he'll be left to die! We all need to compel Biogen Company to provide such innocent children with this drug with much lower price. Please cooperate with this family and support them to start the treatment before it is too late. No kid in the world deserve to slip away and eventually die like that.
Fortunately Facebook has accepted to back our fundraising account, plz help us it's a start from the beginning for our little 3 years old boy having his opportunity to recive the medicine. Thank you.
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Benjamin Salehi needs your help with “Biogen Idec: Dear Biogen Company please gift Benjamin compassionate use of Spinraza. He deserves a life”. Join Benjamin and 17,952 supporters today.