More and more disorders are being discovered in children at an alarming rate.

Many of these disorders cause life-long conditions that require treatment and care that is costly.

For these disorders, many resources are not out there, many practitioners are not well-versed in such illnesses and parents are left in the dark and thrown to the wolves. State-run resources and organizations do not recognize rare disorders and many times deny coverage under specialized programs, even if the disorder causes a typical condition experienced by children not affected by the disorder.

It's time for the state and federal government to include these rare disorders in all assistance and resource programs and to give parents the help they need to care for their child.

If this doesn't change, more children with rare disorders will continue to receive subpar care and treatment, or no treatment at all due to lack of funding and coverage. It will diminish their quality of life and continue to create a hardship on families supporting children with rare disorders.