Petition Closed
Petitioning Prime Minister of Australia The Hon Tony Abbott MP and 2 others

PBS should pay for Fampyra for all Australians with Multiple Sclerosis

1,959
Supporters

Over 23000 people are afflicted with Multiple Sclerosis within Australia; Multiple sclerosis (MS) is the most common chronic disease of the central nervous system among young Australians.
My husband, Mark was diagnosed with Multiple Sclerosis in 1996, 7 days before his 34th birthday, at the time our children were 7, 4 and 2. As he was diagnosed with Progressive MS there has never been any drug or treatment that could be prescribed for him and we, as a family, have watched him deteriorate further and further with no options. Over the years he has put his hand up for any trial that came along, hoping that one may prove useful for him, he was the second person in Australia to trial one of the first stem cell transplants back in the year 2000. He has popped every colored pill, suffered through chemotherapy, crossed all the T's and dotted all the I's trying to find that elusive treatment that may help him.
Now for the first time there is hope with Fampyra, it is the first drug that has been developed that has the potential to help, it is the only drug produced that includes ALL forms of MS in its criteria, including Progressive.
Fampyra (Fampridine) is a proven medication that has the potential to increase the mobility in people with MS, whether they have Relapsing MS or Progressive MS. It is used to help improve the walking ability of adult MS patients. Fampyra works by blocking potassium channels that are exposed on demyelinated nerves and may help to restore nerve conduction in some patients with MS.
Fampyra is described as a symptomatic treatment, which means that ANY person with MS can be prescribed it.
The current treatments available in Australia and available on the PBS are – immunotherapy treatments also referred to as disease-modifying therapies.
Immunotherapy refers to any treatment that is designed to alter the immune system. All Immunotherapy treatments are ONLY suitable and prescribed for Relapsing- Remitting MS –there are NO treatments or therapies available for Progressive MS until now, with the release of Fampyra.
This drug comes at a cost of $600 a month, it was knocked back by the PBAC as not being cost effective to have it free listed on the PBS.
This drug has the potential to keep Australians in the work force for longer, I ask the Australian Federal Government, what is more cost effective, subsidizing $600 a month or paying out over $1000 a month in Disability pensions?
Fampyra should be available to all Australians at an affordable cost, please help me get this message across by signing and sharing this petition.
Together we can all have a voice and be heard.
Brenda

Letter to
Prime Minister of Australia The Hon Tony Abbott MP
Minister for Health The Hon Peter Dutton
Prime Minister of Australia The Hon Tony Abbott MP

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Subject: PBS to cover cost of Fampyra (Fampridine) for ALL people with Multiple Sclerosis.

Message: Over 23000 Australian people are afflicted with Multiple Sclerosis; Multiple sclerosis (MS) is the most common chronic disease of the central nervous system among young Australians.

Fampyra (Fampridine) is a proven medication that has the potential to increase the mobility in people with MS, whether they have Relapsing MS or Progressive MS. It is used to help improve the walking ability of adult MS patients. Fampyra works by blocking potassium channels that are exposed on demyelinated nerves and may help to restore nerve conduction in some patients with MS.
Fampyra is described as a symptomatic treatment, which means that ANY person with MS can be prescribed it.

The current treatments available in Australia and available on the PBS are – immunotherapy treatments also referred to as disease-modifying therapies.
Immunotherapy refers to any treatment that is designed to alter the immune system. All Immunotherapy treatments are ONLY suitable and prescribed for Relapsing- Remitting MS –there are NO treatments or therapies available for Progressive MS until now, with the release of Fampyra.

85 per cent of people with MS start with a Relapsing-remitting form of MS, about 60 per cent of these will develop Secondary Progressive MS within 15 years. The other 15 per cent of Australians will start with a Progressive form of MS, they experience no relapses, but do have a gradual onset of disability, which does not recover or reverse.

The Pharmaceutical Benefits Scheme (PBS) does not cover the cost of Fampyra, which costs approximately $600 a month. These people that are diagnosed with, or develop Progressive MS are severely discriminated against as there are NO drugs or treatment available to them except for Fampyra, most of these people are now on the pension and have no way of affording this cost.

With improved nerve conduction due to treatment with Fampyra, many people have the possibility to may remain in the work force for longer and more importantly may regain some strength to their bodies which in turn will create a better quality of life for them.

I therefore ask the Minister to express her support for these excluded patients who are faced with this lifelong Progressive disease to be able to have access to the FIRST treatment that has enormous potential to assist ALL people diagnosed with Multiple Sclerosis.

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Sincerely,
[Your name