Anthem BlueCross BlueShield is Preventing My 12-year-old Son from Having a Better Life
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My son, Brody, has a rare form of Duchenne muscular dystrophy. It’s a terrible disease that leads to an early death. Brody is only 12 years old. He has a fighting chance, especially in light of a new drug (Exondys 51) that the FDA approved late last year for all patients with the rare form of this disease.
However, Anthem BlueCross BlueShield, one of the largest health insurers, recently announced that they won’t cover this treatment. Rather, Anthem is labeling this life-altering medicine “experimental,” despite its FDA approval. This is unacceptable!
Anthem’s creative interpretation of its coverage policy withholds a treatment for Brody and the 1,500 other patients with this rare form of Duchenne affecting their quality of life and ensuring an early death sentence.
PLEASE SIGN MY PETITION AND HELP ME SHOW ANTHEM THAT KIDS WITH MUSCULAR DYSTROPHY DESERVE A FIGHTING CHANCE.
This drug isn’t a cure, but it’s the first FDA-approved treatment that gives our family hope. It helps slow the progression of the disease by producing dystrophin, a protein that my son needs to use his muscles and that he can’t produce on his own.
The fact that Brody is in a wheelchair shouldn’t matter at all – he needs to be able to move his arms, hands and fingers. When did we start telling people in wheelchairs that one’s quality of life – eating, texting, writing, etc. – isn’t important? Should big insurance companies be able to discriminate against kids with disabilities?
To Joseph Swedish, CEO of Anthem: You still have time to do the right thing. Maybe your decision was made in haste? Perhaps it was a clerical error or a simple oversight? Did you have an opportunity to speak with any of the Duchenne experts about the value of this drug? Did you even know this decision was made? Regardless, the Duchenne community is deeply concerned.
Since my son is unable to walk, we have to be the ones to stand against Anthem for him. The company has time to reverse this decision before it’s too late for kids like Brody.
I hope you will join me by signing this petition and sharing with your friends and colleagues on Facebook and Twitter
Thank you for standing with me.
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