Segregate and List Independently in the Blue Book of Disabilities, Chronic Migraine & Cluster Headache Currently Hidden Under Epilepsy

Reasons for signing

See why other supporters are signing, why this petition is important to them, and share your reason for signing (this will mean a lot to the starter of the petition).

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Keri Casler
8 years ago
I get migraines everyday. Although I started as more of a chronic patient definted as getting them around 15 days a month, I've had some occasions over the past 3 years where it's been less than that. This past September, though, they became EVERYDAY most of the day, impairing my ability to function as a normal human being. And it's not a low pain kind of thing. On a scale of 1-10, 10 being the worst pain ever, I deal with pain in the 5-7 range. Preventative meds aren't working. due to the nature of pain medication, I can only take them two days a week. Two. I'm taking supplements, drinking water, keeping my stress levels low, walking, tried botox and nerve blocks.
I am a hard worker. I want to make a difference. I have a bachelor's and master's degree. I want to do more with my life than just be INside in a dark room. But until I get my pain under more control I am unable to work. Being that I started a new job this past fall, I was too new to qualify for their disability pay. So I resigned and am now stuck for 7 months now like this...and i'm only 'lucky' that i can do this because my fiance can support me, for now. But this can't be permanent.

Those like me, need to know we can count on the system to support our pain and disability. We need more research to be done. We need financial support for when things flare up. We need to be SEEN. We need to overcome the stigma and be supported.

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Jay Feldman
8 years ago
You can't imagine a fire in your brain that often goes on for two or three hours, that often and predictably wakes you up in pain out of a deep sleep, that hits two, three or four times a day for two or more months at a time! A pain so severe, you think jumping off a balcony may be the only way to stop as you sit rocking, pacing, banging your yeah in futile attempts to distract and make it stop. Noise, sound, light make you want to scream, but you know that screaming will add to the agony. During daytime attacks, you get maybe 5 minutes warning as you transition from "normal" to inconsolable. Imagine attacks starting at work, in a meeting, at an event away from the comfort of privacy, while driving.
You can't imagine because you're not affected!

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Bonnie Brackeen
8 years ago
My father has Cluster Headaches, its a disabling condition hard to lead a normal working life. Please help us and recognize our pain by updating the listings in the Blue Book of Disabilities for Cluster Headaches and Chronic Migraines. So many of us suffer.
Thank you for your consideration, I remain

Acting Commissioner, Carolyn W. Colvin: Segregate and List Independently in the Blue Book of Disabilities, Chronic Migraine & Cluster Headache Currently Hidden Under Epilepsy

Thanks for adding your voice.

Bonnie Brackeen
8 years ago
My father Cluster Headaches, its a disabling condition heard to lead a normal working life. Please help us and recognize our pain by updating the listings in the Blue Book of Disabilities for Cluster Headaches and Chronic Migraines. So many of us suffer.
Thank you for your consideration, I remain

Acting Commissioner, Carolyn W. Colvin: Segregate and List Independently in the Blue Book of Disabilities, Chronic Migraine & Cluster Headache Currently Hidden Under Epilepsy - Sign the Petition!

Bonnie Brackeen

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Jeff Ballard
8 years ago
My partner has cluster headaches and it is clear to me that this is indeed a debilitating condition.

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Daphne Clark
8 years ago
I suffer from Chronic Migraine. Since I was a child I've had them but because I'm a women I was always dismissed by doctors when I tried to get help. It took over 30 yrs to get a correct diagnosis and then treatment. I still have it. It's part of my life. I feel like I emerged from Dark Ages but still am dealing with this major part of my life. This is real. It's not a complaint. It's a disease and it is very debilitating. I'm in a maintenance stage for now but I still have more than 15 a month! Don't write this off. Too many suffer and choose suicide rather than continue in a life where this isn't understood. We didn't choose this. It's a disease. Don't leave us in the dark any longer. I don't wish this on you or your loved ones. Please attempt to understand the magnitude of this illness on people's lives. It's real.

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Louis Michael Zamora
8 years ago
disabiling pain is disabiling pain no one can function whith this of lead a normal life.

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Kevin Newman
8 years ago
I have suffered with chronic migraine for 40 years, since the age of 5.

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Tamara Rice
8 years ago
Migraine sufferer

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Ritalyn Arps
8 years ago
Migraines are a very serious disease that needs to be recognized on it's own rather than being buried in another disability.