NSW Council for Intellectual Disability

47,609 supporters

Started 3 petitions

Petitioning Greg Hunt

Our health counts: End deadly disability discrimination

Hello my name is Shu and I need to talk to you about a serious issue - death. I need to talk to you about death because we have a big problem in Australia. Too many people with intellectual disability are dying from preventable causes. And too many are dying too young. Did you know that up to half the deaths of people with intellectual disability may be from preventable causes? That ’s three times higher than the general population. And people with intellectual disability are dying 27 years earlier than the general population. This issue is urgent. Across Australia people with intellectual disability are dying and we are not doing enough to fix this problem. We need leadership on this issue from the Government of Australia.  We want new and current doctors and nurses to get a lot more help and training on how to work with people who have an intellectual disability. That means putting much more intellectual disability training into university medical and nursing courses. We need to fund at least 90 intellectual disability health workers around Australia to train and support GPs and other health workers to provide good health care to people with intellectual disability. And we want a national inquiry to find out why the health system is failing us. Council for Intellectual Disability with Inclusion Australia and friends need your help to persuade the Australian Government to take the health of people with intellectual disability seriously. Find out more on Our Health Counts the campaign. Please sign this petition to send to the Minister for Health, Hon Greg Hunt, and the Shadow Minister for Health and Medicare, Hon Catherine King. Our health counts. Can we count on you? Thank you, Shu Hua Chan Chair Council for Intellectual Disability.

NSW Council for Intellectual Disability
7,495 supporters
Petitioning Hon. Paul Fletcher MP

Hard to Swallow: NDIS funding cuts leave Ellen at risk of choking.

Sign our petition to get the NDIS to fund vital swallowing therapy. Ellen is 20 years old and has a swallowing disorder called dysphagia. This means she can be at risk of choking or even dying when she swallows. Up until last year she got good specialist therapeutic support for her swallowing problems but the NDIS decided to stop funding this support in 2017. Ellen’s Mum Margaret knows how much better it was for Ellen and the family when these specialist therapeutic supports were funded. “Before the NDIS came …we had all these therapies – speech therapy, OT [occupational therapy] – now the funding is cut. The problem with the new NDIS program is that they think we don’t need things like therapists, OT, physio. We need them… We need them massively included in the NDIS package.”   Without this support, every mealtime becomes an everyday emergency for Ellen.  The NDIS has the funds for the specialist swallowing therapy that Ellen needs. But the NDIS is now saying it’s not responsible. The NDIS says the health system should fund swallowing therapy. The problem is that the health system does not have the skills to do so, nor does it have the funds – all the NSW disability funding went to the NDIS. The NDIS has got it wrong and this is dangerous for people with disability. Ellen needs these supports in her NDIS package but the NDIS won’t fund them. This has left Ellen’s Mum, Margaret with no other option than to take the NDIS to court. It shouldn’t be like this. Ellen and her family should be provided with the same supports they had before the NDIS was introduced. We are asking new Australian Families and Social Services Minister Paul Fletcher to please resolve this problem and confirm that the NDIS will fund this vital swallowing therapy.  For more information about dysphagia and the NDIS, visit our website.

NSW Council for Intellectual Disability
27,131 supporters
Petitioning NSW Premier Gladys Berejiklian

Don't Silence Us - People with intellectual disability have a right to be heard

My name is Fiona. I have an Intellectual Disability. I have learnt to speak up for people like me with the help and support of the Council for Intellectual Disability (CID). Now the Premier wants to shut down the Council for Intellectual Disability’s important disability advocacy work in 2020. I speak to doctors, nurses, trainees, teachers, councillors, members of parliament and ministers about what needs to change to make lives for people with intellectual disability safer, fairer and better. Did you know, for example, that people with intellectual disability die 27 years earlier than what we’re meant to because we are misdiagnosed? This is because the people who are meant to help us often don’t understand what we are talking about. CID takes on important issues for its members like health, transport, education, employment, inclusion and abuse of people with disability. CID is also helping us get a foot in the door without being judged about what we can and can’t do. It is asking everyone to look at the whole person. As my friend Robert says, “Labels are for jars, not for people.” Cutting Advocacy funding means we will lose our voice and our independence. It means going backwards instead of forwards. We want to move forwards, we don’t want to go back to the dark ages. So please don’t let the Premier silence us. People with an intellectual disability have a right to be heard. Please sign this petition now and share widely. Thank you, Fiona (First female CID Chairperson with intellectual disability) Please check out our website for more information and other ways to take action.

NSW Council for Intellectual Disability
12,983 supporters