Coalition 4 ME/CFS

247 Supporters

We are a coalition of organizations dedicated to improving the quality of life of patients with ME/CFS 
and other NeuroEndocrineImmune Disorders. 

The Coalition 4 ME/CFS will engage and mobilize governmental health agencies, the private bio-medical industry, researchers, health care providers and the public toward finding a cure for ME/CFS and related NeuroEndocrineImmune diseases.

ME/CFS (Myalgic Encephalomyelitis/Chronic Fatigue Syndrome) afflicts 1 million people in the US and 17 million people worldwide.

Started 1 petition

Petitioning Medical Classification Administrator National Center for Health Statistics - CDC

Petition To Restore CFS to the Neurological Chapter 6 in the ICD-10-CM

On July 15, the Coalition 4 ME/CFS submitted a proposal to the National Center for Health Statistics (NCHS), ICD-9-CM Coordination and Maintenance Committee (C&M) to restore CFS to Chapter 6, “Diseases of the Nervous System,” code G93.3 in the ICD-10 Clinical Modification (ICD-10-CM). The Coalition's proposal was based on the scientific recommendations made by the federally-appointed Chronic Fatigue Syndrome Advisory Committee (CFSAC), a committee of national experts on ME/CFS, on September 2004, August 2005 and May 2011.  The proposal was "accepted for review" by NCHS and only under ICD-10-CM since ICD-9-CM is now "locked down". On September 14, the Coalition 4 ME/CFS made an oral presentation to the committee and responded to concerns expressed by audience members. The coalition has written a letter to clinicians, researchers and other medical professionals outlining the two options  The NCHS is asking for public input during the “open comment” period between now and November 18. The NCHS director will make a decision sometime in December. By signing this petition you will be sending a letter in favor of the Coalition option. For the complete information on the Coalition's proposal  please visit  

Coalition 4 ME/CFS
247 supporters