Coalition 4 ME/CFS

247 Supporters

We are a coalition of organizations dedicated to improving the quality of life of patients with ME/CFS 
and other NeuroEndocrineImmune Disorders. 

The Coalition 4 ME/CFS will engage and mobilize governmental health agencies, the private bio-medical industry, researchers, health care providers and the public toward finding a cure for ME/CFS and related NeuroEndocrineImmune diseases.

ME/CFS (Myalgic Encephalomyelitis/Chronic Fatigue Syndrome) afflicts 1 million people in the US and 17 million people worldwide.

Started 1 petition

Victory
Petitioning Medical Classification Administrator National Center for Health Statistics - CDC

Petition To Restore CFS to the Neurological Chapter 6 in the ICD-10-CM

On July 15, the Coalition 4 ME/CFS submitted a proposal to the National Center for Health Statistics (NCHS), ICD-9-CM Coordination and Maintenance Committee (C&M) to restore CFS to Chapter 6, “Diseases of the Nervous System,” code G93.3 in the ICD-10 Clinical Modification (ICD-10-CM). The Coalition's proposal was based on the scientific recommendations made by the federally-appointed Chronic Fatigue Syndrome Advisory Committee (CFSAC), a committee of national experts on ME/CFS, on September 2004, August 2005 and May 2011.  The proposal was "accepted for review" by NCHS and only under ICD-10-CM since ICD-9-CM is now "locked down". On September 14, the Coalition 4 ME/CFS made an oral presentation to the committee and responded to concerns expressed by audience members. The coalition has written a letter to clinicians, researchers and other medical professionals outlining the two options http://coalition4mecfs.org/ICDLetterPhysicians.pdf  The NCHS is asking for public input during the “open comment” period between now and November 18. The NCHS director will make a decision sometime in December. By signing this petition you will be sending a letter in favor of the Coalition option. For the complete information on the Coalition's proposal  please visit http://coalition4mecfs.org/ICD-Home.html  

Coalition 4 ME/CFS
247 supporters