Help My Autistic Son Get a Life-Saving Heart Transplant
  • Mempetisi Penn Medicine at Radnor

Petisi ini akan dikirim ke:

Heart Transplant Committee/Cardiology Department
Penn Medicine at Radnor
Pennsylvania Governor
President of the United States
Pennsylvania State Senate
Pennsylvania State House
U.S. Senate
U.S. House of Representatives

Help My Autistic Son Get a Life-Saving Heart Transplant

    1. Karen Corby
    2. Petisi oleh

      Karen Corby

      Pottsville, PA

My son Paul was denied placement on the heart transplant list because of his mental disability. The doctor was more interested in the fact that he could not name all his medications (he takes 19 at the present time) and the Princess Peach doll he carries for comfort (he now carries a Princess Daisy as well), than the fact that he has never smoked or drank alcohol. Where will the discrimination end?


They never performed any tests to evaluate Paul's heart condition or mental status. He was denied placement on the list based solely on records from his cardiologist. How can they turn him down without performing a full evaluation?

Paul is a wonderful man that has taken his physical illness in stride. He has written two self-published novels geared toward preteens. He is now working on the third. This is really the only thing that keeps his mind off of his mortality. How do I explain to him why he can't have a new heart?

Can you help us tell the Transplant Committee they are wrong and he deserves the chance to grow old and watch his two young nephews grow up.

Tanda Tangan Terbaru

    Berita

    1. Isaac the Runner website

      Karen Corby
      Penyelenggara Petisi

      Please feel free to join us at www.isaactherunner.com
      If you would like to join and participate in the forums and don't know the answers to the security questions, feel free to email Paul at paulandcassandra1989@yahoo.com

    2. Paul's Law

      Karen Corby
      Penyelenggara Petisi

      The official announcement/press conference is scheduled for June 16 in Harrisburg. Fingers crossed that this bill (HB 1474) passes quickly.

    3. Isaac the Runner 1

      Karen Corby
      Penyelenggara Petisi

      Isaac the Runner 1 is now back in stock at Amazon.com.

    4. Fingers Crossed

      Karen Corby
      Penyelenggara Petisi

      Please visit State Representative John Sabatina's home page and ask Congress to pass "Paul's Law."

      http://articles.philly.com/2013-11-24/news/44416148_1_karen-corby-transplant-list-transplant-programur latest development here.

    5. New Book

      Karen Corby
      Penyelenggara Petisi

      Isaac the Runner 3 is complete. All we need to do is type, edit and print. Stay tuned.

    6. New Illustrations

      Karen Corby
      Penyelenggara Petisi

      Paul has added the illustrations from book 2 on devianart.com To view them: http://isaac-the-runner.deviantart.com

    7. Isaac The Runner 2

      Karen Corby
      Penyelenggara Petisi

      Isaac The Runner 2 is finally complete and available for purchase on amazon.com. Great job, Paul. We are so proud of you.

    8. New Picture

      Karen Corby
      Penyelenggara Petisi

      This new picture better reflects who my son has become. He is no longer the smiling man he once was.

    9. Still Fighting

      Karen Corby
      Penyelenggara Petisi

      It is obvious to us now that this petition has not helped us thus far. I took notice that the only time change.org is willing to help is when your petition is getting national media attention. That is very sad. I am so tired of the excuses why my son is being denied but we will keep on fighting. 2013 is a new year and we plan on consulting with a few more hospitals. I just hope my beautiful son does not continue to question his self-worth. How many times can he be told no before he chooses to give up.

    10. Illustrations

      Karen Corby
      Penyelenggara Petisi

      Paul has created an account on DeviantArt. To view illustrations, go here:

      http://isaac-the-runner.deviantart.com/

      Isaac-the-Runner on deviantART

      Art - community of artists and those devoted to art. Digital art, skin art, themes, wallpaper art, traditional art, photography, poetry / prose. Art prints.

    11. We will never give up.

      Karen Corby
      Penyelenggara Petisi

      Even if the Mayo Clinic tells us no for the same reason, we will never give up. Paul's life is worth saving and he means the world to so many people. We will keep on fighting for him and the rights of all people with disabilities!

    12. Mayo Clinic

      Karen Corby
      Penyelenggara Petisi

      We are heading to the Mayo Clinic in October for an evaluation. We are asking all of our wonderful supporters to keep your fingers crossed once again that they put Paul on the transplant recipient list.

    13. Keep Your Fingers Crossed

      Karen Corby
      Penyelenggara Petisi

      We have an appointment next month at the Mayo Clinic. We are asking all of our friends to keep your fingers crossed that they will put Paul on the transplant list.

    14. Isaac the Runner T-Shirts at Zazzle.com

      Karen Corby
      Penyelenggara Petisi

      To buy an Isaac the Runner T-Shirt, visit here: http://www.zazzle.com/isaac+the+runner+gifts

    15. Paul's Book

      Karen Corby
      Penyelenggara Petisi

      Isaac The Runner is now back in stock on amazon.com

    16. 200.000 tanda tangan tercapai
    17. Paul's Book

      Karen Corby
      Penyelenggara Petisi

      Paul's book is currently out of stock. More will be available soon.

    18. 50.000 tanda tangan tercapai
    19. A Must Read Article: Thank You Joslyn Gray

      Karen Corby
      Penyelenggara Petisi

      http://blogs.babble.com/strollerderby/2012/08/07/family-young-man-denied-heart-transplant-because-hes-autistic/

      Family: Young Man Denied Heart Transplant Because He’s Autistic at Strollerderby
      blogs.babble.com
      A Pennsylvania mom alleges that her 23-year-old son has been denied placement on the heart transplant list, in large part because he's autistic.

    20. 6.000 tanda tangan tercapai
    21. Paul's Book

      Karen Corby
      Penyelenggara Petisi

      Paul has written a novel. To purchase it, visit amazon.com and search for Isaac the Runner. He has sold his first copy on amazon.com. It will also be displayed at our local library. Way to go, Paul!

    22. Where are my congressmen when I need them?

      Karen Corby
      Penyelenggara Petisi

      I have written several times to Congressman Tim Holden and have not gotten so much as a form letter. If you find this unacceptable, do not vote for him. I only wrote to Senator David Argall once and he immediately responded. He has my vote.

    23. 1.500 tanda tangan tercapai
    24. His smiling face

      Karen Corby
      Penyelenggara Petisi

      I can't imagine a day without looking at my son's smiling face.

    25. 1.000 tanda tangan tercapai

    Pendukung

    Alasan penandatanganan

    • MARIA EUGENIA ESCOBAR MARTINEZ COLOMBIA, COLOMBIA
      • 8 hari lalu

      Para mi es importante por que ninguna persona puede ser excluida por tener cualquier discapacidad ya que todas las personas tenemos derechos a la SALUD por eso existe la inclusión social.

      LAPORKAN KOMENTAR INI:
      • 15 hari lalu

      Porque soy madre y amo a mis hijos como se que cualquier medre ama a los suyos

      LAPORKAN KOMENTAR INI:
      • 18 hari lalu

      porque soy una madre de un niño con TEA, y algun dia quizas espero que no, necesite algo para el.

      LAPORKAN KOMENTAR INI:
      • 19 hari lalu

      Todos tenemos el Derecho a la vida. ¿Cuanto vale la vida de tu hijo?¿ Si tuviera capacidades diferentes le negarías el derecho a vivir? La cuestion es ponernos en el zapato de otros nadie tiene la moral ni la etica para decidir quien vive y quien no. Hablamos de un caso de discriminación y no lo debemos permitir.

      LAPORKAN KOMENTAR INI:
    • Angel Hess LOS ANGELES, CA
      • 22 hari lalu

      I'm disabled and support autistic causes.

      LAPORKAN KOMENTAR INI:

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