My 11 year old son Arian, has a rare disorder called the Hunter Syndrome. Estimates say that there are around 2000 people in the world who are affected by this disorder. We witness him struggling with his life everyday, battling this disorder.
This is one of the rarest disorders in the world. Most countries have subsidized treatment for this disease, but this is not the case in India.
Most patients die young because the treatment is very expensive. I don't want to lose my son, that’s why I need your support.
The Indian Minister of Health and Family Welfare, Shri Ghulam Nabi Azad, has the power to change this and subsidise treatment for this rare disease.
In order to live, Arian needs to undergo an enzyme replacement therapy developed by Shire, a US drug company. But the medicine is very expensive and impossible to find in India. If this treatment is subsidised in our country, anyone suffering from this disease will be able to afford it.
That’s why I started a petition on Change.org, asking Minister Ghulam Nabi Azad to subsidise the treatment for Hunter Syndrome patients in India, and save Arian’s life.
Over the years my son’s health has deteriorated drastically. We need as much support as we can get on our petition to ensure that Mr. Azaad doesn’t ignore our demand.
Please sign my petition and share it with your friends.
Thanks in advance for your support
Sib Sankar Chowdhury