• Petitioned Members of the media

This petition was delivered to:

Members of the media

Update journalism to reflect the current political, scientific and economic climate re ME and CFS

    1. Khaly Castle
    2. Petition by

      Khaly Castle

      Albuquerque, NM

Chronic Fatigue Syndrome -- also known as Myalgic Encephalomyelitis -- is a disease that long has been misunderstood, ignored and underestimated.

Recently the disease has come more to public attention due to its association with specific retroviruses. Nonetheless, many misconceptions remain.

As sufferers of the disease, we have long been frustrated by the extent to which the story of our illness has remained untold.

**Note - this petition addresses U.S. politics surrounding ME and CFS....however, feel free to sign, no matter where you are!**

Recent signatures

    News

    1. Reached 250 signatures

    Supporters

    Reasons for signing

    • Sabine Cannon MANDEVILLE, LA
      • over 2 years ago

      We truly need the help of journalists, editors, reporters and many more to bring to light the extent and severity of CFS. This is such an underreported and still misunderstood disease.

      We, the patients, need the media's help!

      It will be very appreciated!

      REPORT THIS COMMENT:
    • marguerite o donoghue LETTERKENNY, IRELAND
      • over 2 years ago

      believe in ot

      REPORT THIS COMMENT:
    • Joanna O' Kane BALLYBOFEY CO. DONEGAL, IRELAND
      • over 2 years ago

      I am suffering from Fibromyalgia + CFS for 15 yrs now - no-one understands the effect of chronic fatigue. I've lost my life, I'm 36 + live in my house 24/7 unless I have to go to my GP, I have no social, work, sexual or happy life. The tiredness stops me doing what I enjoy + I cant even plan anything anymore because of letting friends + family down in the past. I'm missing my daughters life because of not being able to go places with her, do things etc. This is a terrible life that nobody seems to understand

      REPORT THIS COMMENT:
    • Pamela Scully WEST CORK, IRELAND
      • over 2 years ago

      Myself and my two teenage sons have ME/CFS & Fibromyalgia.

      REPORT THIS COMMENT:
    • Jan Thompson-Beresford NOTTINGHAM, UNITED KINGDOM
      • over 2 years ago

      I am a sufferer of FMS and CFS.

      REPORT THIS COMMENT:

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