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I want to make you aware of an issue that has now changed my life and the life of my 14 yr old daughter. My daughter Bekah, was diagnosed with Stage 4 Ovarian Carcinoma in September 2012. She had an extremely large tumor and we were told early that "things do not look good for her". Bekah fought until her last breath which was December 12, 2012, she was only 14 years old. She never had a chance. Not only is Ovarian Cancer a silent killer, but I have been told since my 24 year old daughter was a teen, that Well-Woman Exams aren't done on our children until they are "in their early 20s" OR "sexually active". Bekah never was sexually active and she never will see her 20s. THIS could have been prevented. The Medical Profession follows standards and protocol and I'm on a personal mission to change this thinking. Bekah wanted to spread the word of the signs & symptoms before she died by helping me create a postcard with the signs. I WILL continue to spread the word. I have used facebook to begin my mission but I'm on my way to bombarding the medical profession. Well Woman Exam standards MUST be changed, they must be modernized. This needs backed up to their "FIRST PERIOD". A simple pelvic exam or sonogram could have caught Bekahs cancer and maybe given her a chance. BUT this means nothing when doctors will NOT do the exams in kids this age to begin with. These early exams can begin by creating a health care plan, such as looking at family history, and even a simple non-invasive blood test looking for CA-125. MORE can be done if parents were given the opportunity to have their daughters examined. Ovarian Cancer may be rare, but NOT ONE life should be lost to this. I have 7000+ supporters on Bekah's page, and I cant tell you how many women, just by hearing Bekah's story, have called their doctors and met a brick wall because physicians are protecting themselves by following standards set by the AMA among others organizations, and these standards are OUT OF DATE. Give our kids a chance, give women a chance! I'm proposing change. Change within the Medical Profession, within Insurance Companies, Associations, Organizations, and give parents the right to choose how our childrens medical care is handled. Let parents decide if paving a path to good reproductive health is what is best for their daughters, without brick walls. I'm asking for you to help me bring down the brick walls. Please, I don't want my daughters death to be for nothing. There must be something positive to come from it, and this small change is a great place to start. Thank you.
Medical Professionals, American Medical Association
American Congress of Obstetricians and Gynecologists, Adolescent Health Care
Steven W. Churchill - Executive Director, American Medical Association
Mary K. Wakefield, Ph.D., R.N., Administrator, Health Resources and Services Administration (HRSA)
Bryan Samuels - Commissioner, Administration on Children, Youth and Families (ACYF)
President of the United States
Kansas State Senate
Kansas State House
U.S. House of Representatives
Enact this small change!! Changing standards on Well Woman Exams for teens to more modern standards is a great start to saving just one life.
Reached 3,000 signatures
Decision-maker Ed Trimmer responds:
While I am no longer on the Health and Human Services Committee, I feel we need to update our health system to better serve our young women.
Trying to spread the word about this small change in medical standards and getting it enacted is extremely important to me. Seeing us reach 400 supporters is a big step in the right direction but we have a long way to go. Please please share this petition and share it twice or thrice! Anyone can sign, we just have to show them our kids need this change! WE need this change!!
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