REVERSE DENIAL OF TRANSPLANT SURGERY FOR YOUNG MOTHER, BRANDY WHITFIELD
  • Petitioning ILLINOIS MEDICARE

This petition will be delivered to:

APPEALS DEPARTMENT
ILLINOIS MEDICARE

REVERSE DENIAL OF TRANSPLANT SURGERY FOR YOUNG MOTHER, BRANDY WHITFIELD

    1. Bonita Jordan
    2. Petition by

      Bonita Jordan

      Dolton, IL

Brandy Whitfield, 32, of Lombard, rests in a suburban Chicago hospital. Whitfield is one of two Illinois women seeking a rare type of organ transplant called a multi-visceral transplant.

Two Illinois women are seeking a rare type of organ transplant, but they have learned that the Illinois Medicaid program considers the surgery experimental and won't pay for it.

The Illinois decision is based on a recommendation from an ethics panel convened to study the procedure, which involves transplanting the intestine and other organs, Crain's Chicago Business reported . No Illinois hospitals perform the surgery, which is called a multi-visceral transplant.

In February, Indiana University Health lobbied Illinois Medicaid to cover the transplants Brandy Whitfield, 32, of Lombard and Barbara Sensney, 67, of Olney. Medicaid is a government health program for poor and disabled patients.

Whitfield said she needs a new small intestine and stomach after a failed surgery to remove a benign tumor. Sensney said she needs a new liver, pancreas and intestine because of cirrhosis and liver cancer.

"I'm kind of in a fog right now," Sensney said after learning the state's decision. "I knew in my heart all along they weren't going to do it, but you always hope."

The surgeries were expected to cost more than $1 million each. IU Health's University Hospital in Indianapolis has performed 38 of the operations in four years.

The Illinois Medicaid program covers 2.8 million people with a budget of $17.8 billion. One year ago, Gov. Pat Quinn signed a package of $2.7 billion in cuts and tax increases he said was needed to save the state's bloated program from collapse.

Illinois Medicaid authorizes the multi-visceral transplant surgery for children, but until now didn't have a policy about whether the procedure would be covered for adults. A six-member ethics committee met May 17 to study the situation. It recommended unanimously that Illinois Medicaid should not approve such requests for adults.

The ethics committee noted that the Indiana hospital's transplant program and its surgeons are "reputable and qualified," but "they have not been able to provide definitive and specific outcome data measuring post-op quality of life and lifespan in each of those 38 patients."

Julie Hamos, director of the Illinois Department of Healthcare and Family Services, accepted the recommendation.

The new Illinois policy on the transplant states: "There is no peer-reviewed and published literature that demonstrates the effectiveness and safety of this procedure and, thus, it is experimental in nature."

Fewer than a dozen hospitals across the country perform the most of the surgeries, according to transplant surgeons and the Organ Procurement and Transplantation Network.

"I just want to get back to normal," Whitfield said. "I want to be able to interact with my child without being in constant pain."

LAYLAH.. HER DAUGHTER.. WANTS HER MOMMY AND WANTS HER MOMMY WELL ..!!

THANK GOD FOR YOU ALL ..

SPECIAL NOTE: OUR CONDOLENCES TO THE FAMILY OF

'Barbara Sensney'

WHOM WE LEARNED, JUST PASSED AWAY.. GOD BLESS THE FAMILY.

Recent signatures

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    1. Reached 500 signatures

    Supporters

    Reasons for signing

    • Phil Smith CHICAGO, IL
      • 5 months ago

      Always supportive of those in need.

      REPORT THIS COMMENT:
    • Valerie Taylor-Carter CHICAGO, IL
      • 5 months ago

      we al1deserves the right to life.

      REPORT THIS COMMENT:
    • Walter English III CHICAGO, IL
      • 5 months ago

      I am in support of life, and the preservation of it...at every cost, EXCEPT the sacrifice of it.

      REPORT THIS COMMENT:
    • Dr. Carolyn Vessel CHICAGO, IL
      • 5 months ago

      We have been given the opportunity to be generous as a nation, because God was our focal point and bestowed many blessing and healings' upon us when others could have destroyed us, but he was our help, when we had little. This woman is like our nation was one time, help her to live and her daughter to not be left without her mom. God didn't leave us alone, despite the massive waste and mismanagement of resources by so many public servants.

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    • glenda littleton JENNINGS, MO
      • 11 months ago

      I believe only God should / can play God /make life changing decisions so if surgery is needed Should be a giving no questions asked, besides id want someone to sign/care if it was me or mines

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