FDA Accelerated Approval of Genervon's GM604 for Use In ALS
My name is Nick and I am 54-years old. In October 2011, I was diagnosed with ALS. Today, I am in a wheelchair and cannot walk or stand. My arms grow weaker almost every day and my breathing is starting to be affected. I used to be very active but now I can only leave my home when I have someone with me who's strong enough to lift me into my wheelchair once I'm done scooting down to the bottom of the stairs on my butt. It can feel like I'm a 100-year old man who can't do things for himself anymore. At 54, I should still be a vibrant part of my community, but this disease is kicking me where it hurts. Through the enthusiasm generated by the Ice Bucket Challenge, many people now know that ALS is a degenerative neurological disease that currently affects over 30,000 Americans, and as it stands the disease is always fatal. Most people with ALS are given only 2-5 years to live. When I was diagnosed, I was devastated - it took me months to accept it. Although I am now resolved, I have not lost hope. Currently, there is only one drug available to treat ALS (Riluzole) and it is only able to extend life expectancy by a couple months. That's why the recent news about a small company named Genervon Biopharmaceuticals and their trial drug "GM604" has been so exciting for the Global ALS Community. While most trials have a hard time even finding a positive trend, the GM604 trial data supports the view that this drug could very well be is a game changer in the battle against ALS. There are multiple, statistically significant data. Not only in clinical data and results alone, but also correlated biomarkers data and results as well. (Please see "Files" section on the campaign website: https://sites.google.com/site/aap4gm6/) Genervon met with the FDA in February 2015 and made a potentially life-changing request on behalf of the ALS community; they asked the FDA to promote GM604 to the Accelerated Approval Program with Post-Marketing Phase 4 Requirements, so all ALS patients can have legal access to GM604 now. Under the FDA's Accelerated Approval Program, the treatments would be covered by health insurance. Although Genervon knows that this request might complicate their relationship with the FDA, they were willing to take a stand and do everything they can to help the ALS community because it is the right thing to do. If the FDA does not grant Accelerated Approval, it will likely be 3 more years before patients are able to access this drug -- meaning that most people currently living with ALS will not live to see it reach market. While acknowledging the paramount importance of public safety in the FDA’s drug approval process, I believe that ALS presents a compelling case for an exception to the usual process. I am asking you to help me appeal to the FDA through their sense of compassion for those of us with this dreadful illness. People with ALS don't have time to wait for another clinical trial to be completed. By signing this petition, you'll be helping patients like me request that the FDA expidite the way potentially life-saving treatments are made accessible to people with ALS -- starting right now with GM604. Doing so could very likely mean a change in the course of ALS progression not only for myself, but hundreds of thousands of other patients worldwide. After you sign, please follow this link to tweet and/or email the FDA: https://www.change.org/p/lisa-murkowski-fda-accelerated-approval-of-genervon-s-gm604-for-use-in-als/u/9475826 Thank you, Nick Like us on Facebook: https://www.facebook.com/gm604forals Please go to the Genervon website for a true understanding of the facts and the science behind GM604: http://www.genervon.com/genervon/about_pressreleases.php
Tell the FDA to stop denying ALS patients treatment options
When I became a parent, I knew immediately that I would do anything to protect my daughters from the hardest parts of life. My mission would be to give them as much love and comfort as I possibly could. But now instead of me taking care of them, my daughters are often responsible for taking care of me, because in May of 2014 I was diagnosed with ALS. Now, instead of protecting them, my daughters are forced to watch as my body dies one muscle at a time. ALS is a devastating disease, that currently has no effective FDA approved treatments. However, there are promising therapies in the FDA approval pipeline that might improve my chances and quality of life, but the FDA isn’t willing to expedite the approval of these drugs, even though the average life expectancy of an ALS patient is 3-5 years and the average time it takes for a drug to become FDA approved is over a decade. Please join me and Hope NOW for ALS in petitioning Congress and the FDA to apply Accelerated Approvals (AAP) to promising treatments targeting terminal diseases, and implement faster, smarter, and more humane clinical trials using today’s science. This is not a radical or new idea. In 1992, in response to the HIV/AIDS epidemic, the FDA adopted the Accelerated Approval Program (AAP) – an expedited approval process to treat fatal diseases. This was a process to allow patients fast access to potentially life saving drugs, and has since been used for cancer and heart failure treatments. But the FDA refuses to apply it to ALS and other rapidly fatal diseases. How can it possibly be fair to exclude the most vulnerable and at risk people -- those with fast acting terminal diseases -- from this program? ALS is always fatal, and there are currently over 30,000 patients in the US with no options. We need help. We need options. My diagnosis is the greatest challenge my family has ever faced, and my daughters have amazed me with their grace and strength in taking on this battle with me. I know that even though my life has not turned out like I imagined it, I can still be the dad I always wanted to be, and I can still show my daughters what it means to take a stand for what counts. Please join me and Hope NOW for ALS to help save my life, and the lives of so many others around the country.
Stop Forcing Mail Order Pharmacy as Only Choice of Coverage & Monitor Package Temperature
My son, received a life saving liver transplant at the age of 2. His life depends on the potency and effectiveness of chemotherapy/immune suppression medications. In the past mail order delivered his liquid oral medications in nothing but a plastic envelope on a 102 degree day on a hot enclosed not temperature controlled UPS truck. Shortly after, he went into liver rejection which could have resulted in complete liver failure or death. I speculated that the medication could have been too weak after the delivery of medications in high heat. I vowed to never again risk his life with mail order pharmacy. Recently, we were mandated/forced to only use mail order pharmacy in order to receive coverage for his life saving medications. Hesitant, I begged for an ice pack. The package arrived on an about 90 degree day again without an ice pack. His labs elevated again afterwards. My son wants to know, "Why would they do that?" I contacted the manufacturer, who completes all of the testing for my son drugs who stated that both of my son's medications should be discarded and considered less potent once stored above 86 degrees as higher temperatures and freezing could result in lower potency. I also found out that the liquid medication that the youngest children take are the most harmed by the mishandling of medications outside of the manufactures temperature storage guidelines. Our youngest of children's lives are being threatened. I contacted the mail order pharmacy who refused to take replace or take back the medication. They said the law & USP Pharmacopoeia allows them to ship up to 104 degrees, although the manufacturer states it is not proven safe at these temperatures. I contacted the FDA, who states that the mail order pharmacy should be using the manufacturer's guidelines that have been proven safe. Not the reference range by USP that has not tested my son's exact medication. However since the mail order pharmacies are regulated loosley by the State Board of Pharmacy, not the FDA there was nothing that the FDA could do. I spoke with a UPS driver. He states temperatures on his truck are far above 104 degrees on a 90 degree day. He is mandated to keep his door closed unless getting a package. He states it gets so hot on a 90 degree day that he cannot breathe when he opens the back. I made over 30 calls to the insurance company begging for them to please let us pick my son's medications up at the local pharmacy at which they are filled. My son's physician wrote a note/appeal as his transplant team has stated that they have tried to voice their concerns about this issue with their pediatric/child patients and no one is listening! The insurance company still denied the doctor's appeal for us to pick up my son's medications in the safest way. It was not until the Media became evolved that the insurance company budged. I felt helpless and have untied with many other pharmacist, physicians, patients, mothers and fathers, and caregivers who feel the same way. Helpless. Mail order of prescription drugs should be a choice not the only option of coverage. Mandatory mail order programs from all plan types (INCLUDING the plans that are regulated by ERISA) needs to cease until mail order pharmacies are forced to store and monitor medications during their deliveries at the temperatures tested and proven safe by the manufacturer. I would never put my son's medications in a hot non-temperature controlled environment, and shoudn't be forced to only use this option in order to get coverage for his life saving medications. Mail order pharmacies may appear to save money, but when my son ended up in the hosptial after taking medications that could have been compromised by having lower potency, the cost of the rejection was thousands of dollars. If his liver would have fully failed, the cost of his liver transplant for just 5 days (he was in the hospital for 5 weeks) was over $1,000,000. The lax regulation and oversight may save money on prescription drug plans, but may come at an increased cost to the health plan itself. Also, keep in mind the endless waste of medications that automatically are sent regardless of whether or not patients need them. Also, people with chronic, complex conditions, should always have the option of face to face interaction with a pharmacist who knows their complex needs and medical history. Could you imagine being required to go to a different doctor every time you needed medical care for you or your family? The pharmacist and patient relationship is crucial to the successful outcome of the patient's overall health. Taking this away is harmful to patients and be more costly to our already stressed healthcare system. Another important fact. Mandatory mail order programs are discriminatory. It is estimated that 40% of our homeless are disabled. How is mandatory mail order fair and working for them as they may not have an address and not even know where they will be from day to day? We need legislation to protect all patients by ending the mandatory mail order pharmacy coverage in every type of plan offered in the nation. We need your help to make mandatory mail order an option not a mandate. YOUR URGENT SUPPORT WILL SAVE LIVES! THANK YOU!!
Remove sub-Asian boxes on Census Form 2020! Stop racist anti-Asian anti-immigrant legacy!
Dear fellow Americans for justice, brothers and sisters against racism, The glaringly racist legacy of sub-Asian boxes on the Census form was started in 1870, after the Burlingame Treaty of 1868, which eventually led to the infamous, racist, and inhumane Chinese Exclusion Act spanning from 1882 to 1943, which among other terrible abominations, banned U.S. residents of Chinese descent from having children or getting married; their family members in Asia were forbidden from entry to U.S. and reuniting as families. The Census form has no "Asian/Asian American" category. In its place are a group of boxes signifying foreign nationalities in Asia as if Asian Americans were all “perpetual foreigners.” It intrusively identified and collected data on which U.S. residents were of Chinese, Filipino, Indian, Vietnamese, Korean, Japanese...descent. While the Chinese Exclusion Act ended in 1943, did these racist, humiliating, dehumanizing sub-Asian boxes get removed from the Census form? No, they were kept on the Census form by the U.S. government even until today, and if we don't fight back and boycott the Census form with sub-Asian boxes, it will stay on the 2020 Census form and beyond, prolonging a racist American legacy, a shame to all Americans. This legacy treats Americans of Asian descent as perpetual foreigners, and collects intrusive personal ancestral origin data used in many kinds of racial discrimination and persecution. In one example, the U.S. government used information from the Census Bureau to identify native born Americans of Japanese descent and sent them to Internment Camps during the World War II. There were also discriminatory laws against Americans of various Asian descent, such as Filipino. Such horrendous trampling of humanity will happen again unless you and I act now to boycott a 2020 Census form with sub-Asian boxes. We demand these sub-Asian boxes be removed and replaced with one description--"Asian/Asian American." Injustice to one human being is injustice to all human kind. If we don't stop this racist and anti-immigrant legacy, its “logic” and mentality will be repeated in current and future policy-making. Let's keep fighting against racism and improve the human condition step by step. Please join the good fight to make this historically significant change happen for now and forever, by signing this petition and sharing it on social media and by email, word of mouth. Power to the people! Fighting on, Americans against racism and anti-Asian anti-immigrant legacy
Help America’s Dairy Farmers bring milk prices to the 21st Century
America's farmers are the life line for all of us. Without farmers raising their crops and livestock, we wouldn't have food on the table or in our bellies. What's more disturbing is the lack of funding to help the farmers be able to make a living wage without going into debt and losing their farms to bigger conglomerate farms. You know something is seriously wrong with the farming industry when your creameries are sending out letters with suicide prevention resources with the farmer's milk checks. Milk prices today are at the same price they were back in 1978 and this hasn't given farmers a fighting chance. Three years ago my parents at ages 61 and 57 had to make a decision that would change their lives forever. They chose to grow the family farm into 120 cows from 70 cows because they couldn't afford to retire and they were still financially supporting my dad's parents who are 92 and 86 years old and still live on the family farm. Building a new barn was the best thing in the world because it meant the herd they had in the old barn doubled their milk production just by moving them into a modern barn that promoted cow health. At the time of them considering & going through the building process the price of milk was at $22 per hundred weight. Since building 3 years ago there has been a steady drop in the price of milk. As of their last milk check posted this week the price is $14.20 per hundred weight, well below affordable price to make ends meet. As of 3 weeks ago my parents were denied funding to purchase seed corn or other supplies for this growing season which is setting them up to be foreclosed upon as early as this fall. Everyone says they can't thank the farmer enough but when we see the price of $14.20 per hundred weight how can we feel thanked by Americans when the farmer cannot even afford to put 'food on the table' for our precious cows who give us the milk we sell. Milk processing plants have even gone as far as sending letters out in the milk check trying to help farmers deal with depression and anxiety because they know the farmer can't afford to pay their bills on the milk check they are receiving. Over the course of the last 10 years you, as 'The Government', have bailed out the banking industry due to failing housing market prices and predatory lending, the auto market due to failing prices in the automobile market, and several other markets. If the government and people of the United States of America say they 'cannot do it without the farmer' then why is the price of a gallon of milk higher than ever in the store but yet 'in the gutter' for the farmer? Why is the housing, banking, auto, and other industries doing very well and the economy appears to be very strong but yet the farmer that creates your meals not able to put food on their own table due to low milk prices? What we are asking of you is this. What can the government do to augment the price of milk in the very near future (i.e. in the next 30 days as emergency relief) to help our dairy farmers of our great nation make it this growing season? We are looking to achieve $20 per hundred weight and create legislation to keep it no less than $20 so all farmers can continue doing what they love, farming! Please take this into serious consideration. The next 60 days with the price of milk will determine whether my parents will be able to keep the 120 year old family farm and share it with their grandchildren or will they be required to liquidate the farm and be left with nothing for not only their future, but Dad's parents’ future. Please consider this an EMERGENCY and look to create an emergency fund to help 'bail dairy farmers out' of this horrible situation.
Congress: Censure President Trump For His Heinous Remarks About "Shithole" Countries
Please also sign and share our net neutrality petition: https://www.change.org/p/jeff-flake-we-need-one-more-republican-vote-in-the-senate-to-save-net-neutrality And join our group here: https://www.facebook.com/groups/1721640631484675/ ----------- This petition began in a private, politically active facebook group of 6300 people consisting of Democrats, Independents, Socialists, Libertarians, and concerned Republicans. On Thursday, Jan 11, the Washington Post reported that President Donald Trump attacked potential immigrants from Haiti, El Salvador and African countries as part of a bipartisan immigration deal. The White House did not deny these allegations. This, a day before the 8th anniversary of the earthquake in Haiti that killed over 100,000 people. This is a step too far. If this were any other president, a censure would be an expected course of action. We realize that many in congress have become numb to Mr. Trump's rhetoric, but American voters have not. This is the language of fringe talk radio, not the President of the United States. He dishonors the office with these words. He is our chief diplomat around the world, and he represents millions of Americans who emigrated from these nations. He should act like it. It is time for congress to stand up and censure this president for his dishonorable remarks about our friends in Haiti, El Salvador and Africa, who rightfully look to the United States as a beacon of freedom and opportunity.
We Demand that the U. S. Senate not confirm Andrew Puzder as Secretary of Labor
Andrew Puzder is among Trump's more controversial Cabinet picks because he has publicly opposed the overtime rule and various other Department of Labor regulations, and because the fast-food industry, from which Puzder hails, is a top wage-theft enforcement target at the department. Puzder is CEO of CKE Restaurants, which includes Carl’s Jr. and Hardee's. It’s actually very hard to imagine a worse choice for Labor Secretary than Andy Puzder. The Labor Secretary’s job is to look out for American workers. Trump's Labor nominee has opposed increasing the federal minimum wage from $7.25 an hour to $10.10 an hour and efforts to expand eligibility for overtime pay. It would be kind of funny if it wasn’t so serious. During the election, Trump made a lot of promises to create good jobs. But he’s filling his cabinet with CEOs and right-wing billionaires who have spent their lives undermining working people’s rights to come together in unions, while fighting minimum wage increases, paid sick leave and family leave policies. The evidence clearly demonstrates that protecting the rights of the people who work at Puzder’s company or its franchisees doesn't seem to be his priority. Puzder has run a business model that has produced widespread labor abuses at the companies. According to data compiled by Bloomberg BNA, over the previous seven years, about 60 percent of all Labor Department investigations of Carl's Jr. Restaurants found violations of the Fair Labor Standards Act. While working people at his fast food chains sometimes were making below minimum wage, Puzder was taking big compensation packages. In 2012, he made 291 times as much as workers at his restaurants. Now, he could be in charge of enforcing our nation’s labor laws—from ensuring workplace safety to investigating wage theft. His companies had the fourth highest incidents of wage theft reported to the government. ‘Wage theft is a rampant, everyday problem in the fast-food industry: Nearly nine out of 10 fast-food workers across the country report having money stolen from their paychecks by their boss,’ Kendall Fells, the Fight for $15 national organizing director, told Bloomberg BNA via e-mail. Bloomberg reported. “Fells referred to a 2014 poll commissioned by the campaign of more than 1,000 fast-food workers nationwide. The survey documented such common worker complaints as being forced to perform tasks before clocking in or after clocking out, having the cost of uniforms deducted from their paychecks, and not receiving breaks during long shifts.” Puzder’s Carl’s Jr. restaurant chain also has a history of sexist television. He thinks it’s appropriate to peddle sex to kids if it sells the product. “We believe in putting hot models in our commercials, because ugly ones don’t sell burgers,” said the CEO in a 2011 press release, according to Fortune. “We target hungry guys, and we get young kids that want to be young hungry guys.” Let’s target Puzder’s nomination instead. Just Say No Puzder at Labor. This petition will be delivered to the full Senate and to the Health, Education, Labor, and Pensions Committee of the U.S. Senate
Protect the Public Service Loan Forgiveness Program
Update: February 13th, 2018 President Trump's proposed 2019 Budget calls for the COMPLETE ELIMINATION of the Public Service Loan Forgiveness Program (PSLF) If you care at all about PSLF then NOW is the time to take action. President Trump's Proposed 2019 Budget was officially released yesterday and clearly calls for pulling all funding from the Public Service Loan Forgiveness Program, along with making several other massive cuts to Federal student loan programs. RIGHT NOW is the time to post this Petition on Social Media, in the comments on related news stories, to your Blog or anywhere else that you can think of where people who care about PSLF and student loan debt will find it, because unless we can show the Congress that there's a huge contingent of Americans standing in support of PSLF, it's likely to be cut for good. Don't let President Trump and Education Secretary Betsy DeVos have their way on the student loan crisis. Don't let the big banks and corrupt for-profit schools continue to rake in trillions of dollars from hard-working Americans. Stand up for this vital program that supports people wanting to better their lives and give back to their community by making this country a better place! We ask that Members of Congress block President Trump's Proposed 2019 Budget until it includes support and continual funding for the Public Service Loan Forgiveness Program. --- In addition to eliminating PSLF, President Trump's Proposed 2019 Budget Seeks to: Reduce available Income-Driven Federal Student Loan Repayment Plans (IDR Plans) from 4 to 1 Increase Monthly Payments for IDR Plans, raising the Discretionary Income Cap from 10% to 12.5% Offer Loan Forgiveness earlier to the general public, offering it at 15 years instead of the current 20 (this is the one good thing he's seeking) Require Graduate Students to make 30 years worth of payments before receiving Loan Forgiveness Eliminate all Federal Subsidized Loans, meaning that all Federal loans will begin accumulating interest even while borrowers are still in school Embolden the Federal Government to go after borrowers who default on their loans NOTE: These changes will ONLY APPLY to loans borrowed AFTER July 1st, 2019, so people already in repayment do not need to worry about these changes, but they are serious and significant cuts to the benefits that future generations will be offered, which is why it's so important that we stand up for them NOW! For specific details on exactly how President Trump's 2019 Budget will impact student loan laws, student loan forgiveness and specifically the Public Service Loan Forgiveness Program, please visit: https://www.forgetstudentloandebt.com/student-loan-relief-programs/federal-student-loan-relief/federal-forgiveness-programs/president-donald-trumps-student-loan-forgiveness-program/ --- The Department of Education is proposing eliminating the Public Service Loan Forgiveness Program. The stated purpose of the Public Service Loan Forgiveness program is to “encourage individuals to enter and continue to work full-time in public service jobs”. To qualify for PSLF forgiveness, people must not only work full-time in a public service position, but also make 10 years’ worth of full, on-time, income-based monthly payments toward their Federal student loans. Who receives PSLF forgiveness? Teachers, Government Employees, Non-Profit 501(c)(3) Employees, Police Officers, Fire Fighters, Park Rangers, Military Personnel, and other qualifying public service workers. 400,000 Americans have chosen to serve their Government and Communities over the past 10 years, and each of these Americans should be able to count on the PSLF benefits promised to them. Betsy DeVos’s Department of Education seeks to end PSLF without having conducted a detailed study to determine how much actual money this dramatic policy reversal and broken promise would even save. The plan to eliminate PSLF is an not only an insult, but also an outrage to everyone who has dedicated the past ten years of their lives working in public service positions. Ending the Public Service Loan Forgiveness Program is a terrible idea that should be opposed at all costs. We ask that Members of Congress block the Department of Education’s proposal to kill this vital financial assistance program.
Bill Summary This bill will require the creation and installment of a new student reporting system that will be accessed by all agencies that deal with children, create an educational seminar on child abuse incorporated into their early education curriculum and up through high school, add additional changes to the way Child Protective Services operates, and restrict records for deceased children from being redacted Background We have heard many stories of child abuse and neglect as a nationwide, systemic problem, citing case overloads as part of a bigger issue. According to the 26th Child Maltreatment Report created by the U.S. Department of Health and Human Services, 1575 child fatalities reported in 2011; 1619 child fatalities reported in 2012; 1551 child fatalities reported in 2013; 1583 child fatalities reported in 2014; and 1585 child fatalities reported in 2015, nationwide. In 2015, nationwide, 78.61% of those children were all school age or otherwise, < 2 years old. On May 22, 2013, Gabriel Fernandez, DOB February 20, 2005, received emergency response services due to full arrest as a result of approximately 8 months of child abuse and neglect at the hands of Pearl Sinthia Fernandez and Isauro Aguirre. Over the course of 8 months, over 50 reports were phoned into social workers to report abuse that went undocumented and unfounded, along with phone calls made to sheriff’s deputies, in regards to Gabriel. In particular, Gabriel’s teacher, Jennifer Garcia, made numerous phone calls to the social worker on his case, citing his injuries. Gabriel succumbed to his injuries on May 24, 2013, in what we know now as one of the worst cases of child abuse known to the United States of America. On November 15, 2017, Isauro Aguirre was found guilty of 1st-degree murder with special circumstances of torture. A trial for Gabriel’s mother, Pearl Sinthia Fernandez, and the four social workers involved with Gabriel’s case are still pending. When looking into other child abuse fatalities, it was found that the Department of Child and Family Services began redacting all of their records to prevent the community from researching cases. Transparency is vital to instill confidence in the agencies entrusted to protect children. According to “The economic burden of child maltreatment in the Unites States and implications for prevention” (Child Abuse and Neglect. The International Journal. Fang, Brown, Florence, Mercy 2012), cited by the Center of Disease Control, “The estimated average lifetime cost per victim of nonfatal child maltreatment is $210,012 in 2010 dollars, including $32,648 in childhood health care costs; $10,530 in adult medical costs; $144,360 in productivity losses; $7,728 in child welfare costs; $6,747 in criminal justice costs; and $7,999 in special education costs. The estimated average lifetime cost per death is $1,272,900, including $14,100 in medical costs and $1,258,800 in productivity losses. The total lifetime economic burden resulting from new cases of fatal and nonfatal child maltreatment in the United States in 2008 is approximately $124 billion. In sensitivity analysis, the total burden is estimated to be as large as $585 billion. Findings concluded that the cost of living children who suffered maltreatment, in 2008, estimated a lifetime amount of approximately $210,012, while those whose maltreatment resulted in fatality cost an estimated lifetime amount of approximately $1.3 million. Problem There is a systematic failure in communication with regards to the safety and welfare of at-risk children who depend on adults to protect them. Had there been a system in place to allow for all agencies to effectively communicate with one another, and track all reports and documents, in regards to any reported child abuse, that may have helped save Gabriel’s life. Children depend on adults for protection and safeguarding. We are in an era of technology where we have need to improve, exponentially, our ability and duties to safeguard children. Records for child abuse fatalities should be unsealed and social workers who have repeat fatalities need to be investigated and retrained. Solution I. A nationwide system needs to be installed, in all schools, child welfare agencies, law enforcement agencies, doctor’s offices, and district attorney’s office, that help mandated reporters create electronic SCAR (Suspected Child Abuse Report), allow the agencies to track reports and status of child abuse. a. The system shall have an alert for law enforcement and social worker of any extended absence that doesn’t have any parent contact/medical documentation over a 2-day period/as reported by the attending school. b. The system shall have an alert for law enforcement and assigned social workers and their supervisors of any non-enrollment of children within a 2-day period. c. The system shall have an alert for CPS supervisors for a daily review of any child that has repeated reports. d. In conjunction with each agency, especially if a school alert comes in, an immediate action plan is put in place to ensure the safety of the child. e. Doctor’s may flag any injury as possible child abuse which will create an electronic SCAR. f. District Attorney’s office will have the ability to create customizable reports and alerts based on criteria needed to help with cases and decisions made in regards to court cases and as needed. II. A child abuse curriculum needs to be created and implemented starting at early education and moving up through high school. This curriculum needs to be implemented into the foster system and the juvenile hall system as well. The curriculum should include a discussion on all forms of abuse, from sexual harassment/sexual assault to all types of child abuse that can occur within the home. III. Specific changes need to be made within the Child Protective Services to ensure adequate and complete recording. a. Assign nurses to social workers for house visits and documentation of any abuse to any child. b. Social workers assigned to Child Protective Services need to be able to handle the caseloads and demonstrate effective investigative and communicative skills. The requirement is 40 hours of in-service training to advance from CSW II to CSW III. c. If a worker cannot perform their tasks effectively, there needs to be immediate consequences or corrective discipline to ensure the safety of children in their care. d. Supervisor technique training needs to be provided to all current and future supervisors, to help ensure supervisory skills. Additionally, they need to also have all the knowledge of working as a Child Protective Services social worker prior to being a supervisor for that department. e. Computer systems must be well maintained and updated on a 5-year basis, to the most current technology, to keep up with efficiency. f. Any fatalities under a social worker must be thoroughly investigated and the worker must be removed from the Child Protective Services department until uptraining is completed and they can prove themselves capable of the position. g. Mandatory recorded interviews with social worker, nurse, and interviewee. IV. Law Enforcement needs to be accountable and understand that child abuse claims are not only important but need to be documented. a. Any type of child abuse needs to be reported, via the new system, which will generate a SCAR b. Any call to a scene should include an address lookup to see if there are children residing at the residence and if there are any child abuse reports made, to make sure they have a well-rounded understanding of what they are walking into. c. The alert for suspected child abuse reports should be reviewed by Special Victims Unit, or a specific unit, to ensure that follow up. V. Educational institutes should have the ability to have access to the system and file reports based on extended absences, tardiness or signs of abuse. a. Teachers should be able to file a SCAR from their desk in their classroom b. An alert from school should immediately trigger with Law Enforcement and Child Protective Services. VI. Doctor’s office will be able to flag and note a child’s record in ways that will flag agencies depending on the situation. a. Extended absences will be flagged to go directly to school’s attendance office and immediately alert school of extended absence. b. The doctor can flag any abnormalities that appear to be child abuse that will create a SCAR to alert Child Protective Services of injuries and suspicions. VII. All documents pertaining to a deceased child shall be made available, via an amendment to privacy laws, with all redaction markings removed. VIII. Increase Statute of Limitations for felony child abuse should be increased from 3 years to 6 years. In Many cases, children are not aware that they are victims to begin with. Often, it is not a single event, but consecutive instances over a span of time which requires that the statute be extended to the point where the victim first files a report of abuse. IX. Failure to Report Child Abuse should be changed from a straight misdemeanor to a “wobbler” with a 3 or 6-year statute of limitations. Negligence to report abuse is not an acceptable excuse to prevent a child from obtaining criminal action. Purposefully declining or avoiding to file a report of abuse should be met with the more severe penalty. X. Children who are in a coma or dying in manners consistent with murder or suspected foul play must undergo autopsy once deceased. XI. Mandatory Child Abuse Education classes for all new welfare applicants. XII. Adults living in a household, and witnesses to abuse of any minors within that household, who fail to report or try to prevent abuse to minors shall be charged as follows: a. Non-fatal injury to child - Accomplice to Child Abuse – min. 1-year b. Child Abuse resulting in fatal injury – Accomplice to Child Abuse resulting in Fatality – min 10 year.
Say Yes To Disability Rights
On February 15th, the House of Representatives passed HR620, the so-called Americans with Disabilities Education and Reform Act. Instead of stopping the few frivolous lawsuits that occur, the bill will roll back nearly thirty years of civil rights legislation for people with disabilities in the United States. By passing this bill, You will undo the foundation of the Americans with Disabilities Act, a piece of landmark legislation passed in 1990 that gives disabled people a chance at equal access to employment, education, and society in general. By voting yes, you will Force disabled people to endure a lengthy process that involves filing complaints with businesses when they face accessibility barriers. These businesses, some of which have violated the law for almost 30 years, will have up to six months to resolve accessibility issues, and even longer, if the businesses can demonstrate “substantial progress” toward resolution.No other civil rights law has ever put the burden on those it protects to start and maintain the enforcement process. HR620 places cost-cutting for business owners ahead of the human rights of people with disabilities. Imagine having to wait over six months to use the restroom, locate merchandise, or check out confidentially and independently when building codes and other provisions for your civil rights have existed for almost 3 decades. Republican Senator Jeff Flake of Arizona will soon introduce the bill to the rest of you in the United States Senate.Please, Senators, we urge you to vote against this unacceptable and unfair legislation. Do not weaken the Americans with Disabilities Act. Do not weaken current and future civil rights legislation for everyone by placing the responsibility for enforcement on those who need protection.Thank you for your attention.