Decision Maker

Richard J. Durbin

  • IL
  • Senator

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Closed
Petitioning Tammy Duckworth, Dick Durbin

Net Neutrality Awareness (Illinois)

Despite the fact that millions of Americans use the internet each day, the issue regarding net neutrality still remains almost unheard of to the general population. The basic principle of net neutrality is that internet service providers should provide unrestricted access to all content, applications, and website regardless of where it is coming from. This means that internet service providers are required to provide unbiased service to all customers without discrimination such as the slowing of speeds from certain sources or protocols. This issue is currently being debated and voted on throughout the country. This year, after Chairman Pai of the F.C.C. heavily pushed to undo the Net Neutrality laws put in place by the Obama administration. He aims to reduce the amount of regulation on the businesses that provide internet to users, leaving the industry without strict rules. This could lead to companies giving unfair treatment to certain websites and services, effectively harming the online experience for users all over the country. This may seem like an issue that is out of your hands, but there is always something that you can do to fight against the repeals to net neutrality. In order to raise awareness, contact or write to your respective senator or the FCC. By doing this, you can bring your voice into this debate and show that you care about this issue. Help us raise awareness in order to defend net neutrality and protect internet users, not only in Illinois, but across the country.

Jake Diliberto
234,818 supporters
Closed
Petitioning U.S. Senate, U.S. House of Representatives, Dick Durbin, Tammy Duckworth

Put An End To Puppy Mills!

I am writing to request that Congress pushes for comprehensive federal legislation preventing “puppy mills” from operating and imposing stiff fines on any person or company found to be operating a puppy mill.  Right now, some states have laws prohibiting puppy mills outright or regulating this industry, but many states do not have any legislation at all and the laws (in those states that have them) are not consistent as between the states. Comprehensive legislation, at the federal level, will impose uniform standards by which these puppy mills can be judged.  This legislation will also allow the federal government to step in and prosecute violators, which will carry greater weight and penalties than just having the individual states pursue these claims. Federal legislation is needed because puppy mills are extremely horrific places. Animals are often forced to walk around in feces, urine or standing water filled with parasites and contaminants. The dogs are crammed into cages too small for them, without adequate food and water.  These animals don’t receive proper veterinary care.  The Humane Society of the United States' website details the types of horrid conditions and abuses these breeding dogs are forced to endure.  Many puppy mill owners have been repeatedly cited and some of them even have USDA violations for a number of years in a row.  One can only imagine the pain and suffering these helpless animals have experienced at the hands of the puppy mill operators! These puppy mills supply dogs to pet stores.  When people buy their dogs from pet stores, it allows these puppy mills to not only continue operating, but gives them profits to expand their operations.  It is a vicious cycle, where the revenue generated from the dogs bred at puppy mills and sold in pet stores are almost immediately funneled back to the puppy mills.  All in the name of greed and profit! People must step in and force Congress to address this issue and the masses are the only ones that have the power to make Congress act!  I realize Congress has many, many pressing problems and issues that are likely more important and urgent than stopping puppy mills. But no animal should have to endure a lifetime of being crammed into a small cage, being constantly bred with no time to recover between litters and never having a loving home and family.  Thus, I am asking Congress to please make passing federal legislation against puppy mills a priority.  

Sam D'Angelo
110,677 supporters
Petitioning Jill Schupp, Terry Kilgore, U.S. Senate, Roy Blunt, Dan Brown, Kathy J. Byron, Lee Ware, Mike Cunningham, Timothy Hugo, Bill Eigel, Jason Holsman, Daniel Marshall, III, Jacob W Hummel, Robert B. Be...

Stop Forcing Mail Order Pharmacy as Only Choice of Coverage & Monitor Package Temperature

**Since starting the petition, I realized there are many issues other than temperatures with FORCED mail-order pharmacy. There are life-threatening delays, lack of face-to-face relationship with pharmacists for people with chronic conditions, and rapid closures of our independent pharmacies although a recent study showed people prefer independent pharmacy.  *************Our Story************* Our son, received a life-saving liver transplant at the age of 2. His life depends on the potency and effectiveness of chemotherapy/immune suppression medications to prevent his body's immune system from fighting off his transplanted liver. In the past mail order delivered his liquid oral medications in nothing but a plastic envelope on a 102-degree day on a hot enclosed not temperature controlled UPS truck. Shortly after, he went into liver rejection which could have resulted in complete liver failure or death. I speculated that the medication could have been too weak after the delivery of medications in high heat. I vowed to never again risk his life with mail order pharmacy. Recently, we were mandated/forced to only use mail order pharmacy in order to receive coverage for his life-saving medications. Hesitant, I begged for an ice pack. The package arrived in only a bag on an about 90-degree day again without an ice pack. The hot non-temperature controlled enclosed delivery truck can reach temperatures up to 170 degrees. His labs elevated again afterward. My son wants to know, "Why would they do that?" I contacted the manufacturer, who does all of the testings for my son drugs who stated that both of my son's medications should be discarded and considered less potent once stored above 86 degrees as higher temperatures and freezing could result in lower potency. I also found out that liquid medication is the most harmed by the mishandling of medications outside of the manufactures temperature storage guidelines.  I contacted the mail order pharmacy who refused to replace or take back the medication. They said the law & USP Pharmacopoeia allows them to ship up to 104 degrees, although the manufacturer states it is not proven safe at these temperatures. However, I have received communication from USP Pharmacopoeia who writes the guidelines for storage and they also said that the mail order pharmacy should follow the manufacturer's guidelines of 59-86 degrees for storage. I contacted the FDA, who states that the mail order pharmacy should be using the manufacturer's guidelines that have been proven safe.. However, since the mail order pharmacies are regulated loosely by the State Board of Pharmacy, not the FDA there was nothing that the FDA could do.  Since starting this petition, I connected with another petitioner for air conditioning of the back of UPS trucks as the trucks are not temperature controlled. Her husband went into renal failure, because the UPS trucks are hot and enclosed and temperatures reach up to 170 degrees. It's like walking into a low temp oven. When the temperatures of the outside are colder than your freezer, I'm not sure how cold the trucks are but I'm certain mailboxes and doorsteps can get in negative temperatures.  I made over 30 calls to the insurance company begging for them to please let us pick my son's medications up at the local pharmacy at which they are filled. My son's physician wrote a note/appeal as his transplant team has stated that they have tried to voice their concerns about this issue with their pediatric/child patients and no one is listening! The insurance company still denied the doctor's appeal for us to pick up my son's medications in the safest way. It was not until the Media became evolved that the insurance company budged.  I felt helpless and have united with many other pharmacists, physicians, patients, mothers and fathers, and caregivers who feel the same way. Helpless. Mail order of prescription drugs should be a choice not the only option of coverage. Mandatory mail order programs from all plan types (INCLUDING the plans that are regulated by ERISA) needs to cease until mail order pharmacies are forced to store and monitor medications during their deliveries at the temperatures tested and proven safe by the manufacturer. I would never put my son's medications in a hot non-temperature controlled environment, and shouldn't be forced to only use this option in order to get coverage for his life-saving medications. Mail order pharmacies may appear to save money, but when my son ended up in the hospital after taking medications that could have been compromised by having lower potency, the cost of the rejection was thousands of dollars. If his liver would have fully failed, the cost of his liver transplant for just 5 days (he was in the hospital for 5 weeks) was over $1,000,000. The lax regulation and oversight may save money on prescription drug plans but may come at an increased cost to the health plan itself. Also, keep in mind the endless waste of medications that automatically are sent regardless of whether or not patients need them. Also, people with chronic, complex conditions, should always have the option of face to face interaction with a pharmacist who knows their complex needs and medical history. The pharmacist and patient relationship is crucial to the successful outcome of the patient's overall health. Taking this away is harmful to patients and be more costly to our already stressed healthcare system. Since starting the petition, many have also stated that they experience life-threatening delays in receiving their prescriptions. Medications get lost, stolen, people are going days without medications that their life depends on. Only allowing mail-order pharmacy for coverage is unethical and irresponsible.  Another important fact. Mandatory mail order programs are discriminatory. It is estimated that 40% of our homeless are disabled. How is mandatory mail order fair and working for them as they may not have an address and not even know where they will be from day to day? It is crucial that All plans should include true fair coverage and reimbursements of our pharmacist.  Please help! We need legislation to protect all patients by ending the mandatory mail order pharmacy coverage in every type of plan offered in the nation.  We need your help to make mandatory mail order an option, not a mandate.  If you would like to support my advocacy, I plan on speaking to every regulator and State Board of Pharmacy that I can reach across our nation. Please feel free to donate to my GoFundMe  If you are interested in sharing your story or concerns with regulators and State Boards of Pharmacy, please let me know. Remember to include your state! Email: stopmandatorymailorder@yahoo.com Facebook Page: Issues with Mail Order Pharmacy @justamomwholovesherson Twitter: @BoesingLoretta The greatest way that you can help is by sharing this petition & gathering 2-3 people in your community who are having issues and go speak to your legislatures.  YOUR URGENT SUPPORT WILL SAVE LIVES! THANK YOU!! WE APPRECIATE ALL OF THE SUPPORTERS, CAREGIVERS, & PATIENTS. 

Loretta Boesing
78,624 supporters
Closed
Petitioning Food and Drug Administration, Lamar Alexander, Patty Murray, Mark Kirk, Dick Durbin, United States Department of Health and Human Services, Janet Woodcock, M.D., Office of New Drugs, FDA Public Aff...

Urge FDA to approve new treatment for Carcinoid Tumors

Hi. My name is Kerry and I’m a zebra. Now, before you think I'm crazy, I hope you'll please let me have a minute of your time to explain. In medical school, doctors-to-be are often taught the adage “If you hear hoof beats, think horse”. In other words, the most obvious answer is usually the right answer. But sometimes the hoof beats come from something rarer: a zebra perhaps. For nearly 5 years, doctors heard hoof beats as they looked at scans of my liver and saw some small “things” taking up residence. And, for nearly 5 years, they thought horse. They did blood tests, colonoscopies, upper endoscopies; all of the tests you would do looking for the “normal” cancers such as colon cancer, but the tests were negative. So they concluded that my liver had some benign growths on it. Nothing to worry about. In January of 2016 a biopsy of my liver resolved the mystery. I was diagnosed with a rare form of cancer called Carcinoid or Neuroendocrine Tumor (NET). The disease is so rare it is referred to as the zebra of cancers and represents only about 2% of cancers treated each year. In honor of its rarity, the zebra has been adopted as the official mascot of those who suffer from it and we, the patients, are called zebras. In my desperate quest for solutions to my problem, I read about a treatment called Peptide Receptor Radionuclide Therapy, or PRRT for short. It has been available in Europe for more than a decade and clinical trials here in the United States have recently concluded. The results have been very promising. According to one of the doctors who participated in the phase 3 clinical trial, “The findings were, in my opinion, extraordinarily impressive, the median progression-free survival improved by nearly 80%, which is fairly unprecedented in oncologic studies. The finding is important because limited therapeutic options exist for such patients, who comprise 20% to 45% of neuroendocrine tumor cases.” (1) As you can imagine, I have been following these trials with great interest as I am their target patient: my tumors are inoperable and are known to respond to the drug being used in the treatment. Earlier this year, there was hope the treatment would be approved by mid-year 2016. Then it was sometime in the fourth quarter of 2016. The latest timeframe for approval is now early 2017. I understand and appreciate the fact that the FDA has to perform their due diligence to insure that new drugs are safe and effective. None of us want unsafe drugs to be hurried to market. In the case of PRRT, it appears to have proven its worth, both in US clinical trials as well as in more than 10 years of use in Europe. I don’t profess to know or understand what the holdup is in obtaining approval. I’m certainly not a doctor. What I do know is that every day that passes without this treatment being approved thousands of us zebras get sicker and closer to the point where treatments won’t matter any longer. Will you please join me in urging the FDA to keep the approval of PRRT at the top of their priority list? I’m only 55 years old and I’m not ready to leave this world yet. I and my fellow zebras thank you. Kerry (1) Full article discussing PRRT can be found online at http://www.carcinoid.org/2016/05/03/one-step-closer-us-peptide-receptor-radionuclide-therapy-prrt-neuroendocrine-cancers/

Kerry Downing
65,080 supporters