Tell the FDA to stop denying ALS patients treatment options
When I became a parent, I knew immediately that I would do anything to protect my daughters from the hardest parts of life. My mission would be to give them as much love and comfort as I possibly could. But now instead of me taking care of them, my daughters are often responsible for taking care of me, because in May of 2014 I was diagnosed with ALS. Now, instead of protecting them, my daughters are forced to watch as my body dies one muscle at a time. ALS is a devastating disease, that currently has no effective FDA approved treatments. However, there are promising therapies in the FDA approval pipeline that might improve my chances and quality of life, but the FDA isn’t willing to expedite the approval of these drugs, even though the average life expectancy of an ALS patient is 3-5 years and the average time it takes for a drug to become FDA approved is over a decade. Please join me and Hope NOW for ALS in petitioning Congress and the FDA to apply Accelerated Approvals (AAP) to promising treatments targeting terminal diseases, and implement faster, smarter, and more humane clinical trials using today’s science. This is not a radical or new idea. In 1992, in response to the HIV/AIDS epidemic, the FDA adopted the Accelerated Approval Program (AAP) – an expedited approval process to treat fatal diseases. This was a process to allow patients fast access to potentially life saving drugs, and has since been used for cancer and heart failure treatments. But the FDA refuses to apply it to ALS and other rapidly fatal diseases. How can it possibly be fair to exclude the most vulnerable and at risk people -- those with fast acting terminal diseases -- from this program? ALS is always fatal, and there are currently over 30,000 patients in the US with no options. We need help. We need options. My diagnosis is the greatest challenge my family has ever faced, and my daughters have amazed me with their grace and strength in taking on this battle with me. I know that even though my life has not turned out like I imagined it, I can still be the dad I always wanted to be, and I can still show my daughters what it means to take a stand for what counts. Please join me and Hope NOW for ALS to help save my life, and the lives of so many others around the country.
Domestic Violence Victims shouldn’t have to wait a year and day to divorce their abuser
In the State of North Carolina the law for a married couple to get a divorce is a separation of a year and one day. There are no exceptions to this rule. This can be understandable for a cooling off period. However, there should be some exceptions to this rule. One in particular that would be in the instance of Domestic Violence. The victim has to remain married to their abuser for the year and one day before they can file for divorce. There should be an exception to the rule. There are so many things that are unable to be changed for the victim without the divorce decree. In a lot of instances, they feel unprotected. If there is proof and an order is in place, a victim should be able to file for divorce from their abuser within 60-90 days instead of the normal year and a day. I myself have experienced my abuser able to get a job at my same place of employment, loss of insurance without a divorce decree, and unable to have separation of items through courts leaving me in a financial drain and him in a financial gain. There is so much more as well but this was just the tip of the iceberg. I can’t change my name and he has used his status to illegally gain access to medical records. When I tried to remove my abuser from my health insurance, they told me that Domestic Violence orders and separations do not count as a change in status to remove him. I was forced to carry his health insurance until I couldn’t afford to pay the premiums and the insurance company dropped me. A person who has Lupus, RA, and other health issues. Victims need to be protected more.
Make Election Day a Federal Holiday. Americans Deserve Time and Equal Opportunity to Vote.
We the people believe that voting is the heart and soul of democracy. Nearly 60% of voting-eligible Americans did not vote in the last midterm elections, citing work or school-related conflicts as the primary cause. Americans deserve time and equal opportunity to vote. Blue Point Brewing Company, along with other forward-thinking companies, has committed to giving our employees the day off to vote. But we need implement this change on a bigger scale. Join us in creating the change and protecting democracy. Convince Congress to establish Election Day as a Federal holiday. Blue Point Brewing Company is committed to this initiative and will be making Voters' Day Off beer cans available for supporters to sign and further inspire change.
Holiday for Billy Graham
Let's get a National Holiday for Billy Graham!! Mr. Graham preached the Gospel to more people in live audiences than anyone else in history—nearly 215 million people in more than 185 countries and territories—through various meetings, including Mission World and Global Mission. Hundreds of millions more have been reached through television, video, film, and webcasts. Mr. Graham’s counsel was sought by presidents, and his appeal in both the secular and religious arenas is evidenced by the wide range of groups that have honored him, including numerous honorary doctorates from many institutions in the U.S. and abroad. Help us with our cause of setting a national holiday to remember this great man.
Stop Forcing Mail Order Pharmacy as Only Choice of Coverage & Monitor Package Temperature
My son, received a life saving liver transplant at the age of 2. His life depends on the potency and effectiveness of chemotherapy/immune suppression medications to prevent his body's immune system from fighting off his transplanted liver. In the past mail order delivered his liquid oral medications in nothing but a plastic envelope on a 102 degree day on a hot enclosed not temperature controlled UPS truck. Shortly after, he went into liver rejection which could have resulted in complete liver failure or death. I speculated that the medication could have been too weak after the delivery of medications in high heat. I vowed to never again risk his life with mail order pharmacy. Recently, we were mandated/forced to only use mail order pharmacy in order to receive coverage for his life-saving medications. Hesitant, I begged for an ice pack. The package arrived in only a bag on an about 90 degree day again without an ice pack. The hot non-temperature controlled enclosed delivery truck can reach temperatures up to 170 degrees. His labs elevated again afterward. My son wants to know, "Why would they do that?" I contacted the manufacturer, who does all of the testings for my son drugs who stated that both of my son's medications should be discarded and considered less potent once stored above 86 degrees as higher temperatures and freezing could result in lower potency. I also found out that liquid medication is the most harmed by the mishandling of medications outside of the manufactures temperature storage guidelines. I contacted the mail order pharmacy who refused to replace or take back the medication. They said the law & USP Pharmacopoeia allows them to ship up to 104 degrees, although the manufacturer states it is not proven safe at these temperatures. However, I have received communication from USP Pharmacopoeia who writes the guidelines for storage and they also said that the mail order pharmacy should follow the manufacturer's guidelines of 59-86 degrees for storage. I contacted the FDA, who states that the mail order pharmacy should be using the manufacturer's guidelines that have been proven safe.. However, since the mail order pharmacies are regulated loosely by the State Board of Pharmacy, not the FDA there was nothing that the FDA could do. Since starting this petition, I connected with another petitioner for air conditioning of the back of UPS trucks as the trucks are not temperature controlled. Her husband went into renal failure, because the UPS trucks are hot and enclosed and temperatures reach up to 170 degrees. It's like walking into a low temp oven. When the temperatures of the outside are colder than your freezer, I'm not sure how cold the trucks are but I'm certain mailboxes and doorsteps can get in negative temperatures. I made over 30 calls to the insurance company begging for them to please let us pick my son's medications up at the local pharmacy at which they are filled. My son's physician wrote a note/appeal as his transplant team has stated that they have tried to voice their concerns about this issue with their pediatric/child patients and no one is listening! The insurance company still denied the doctor's appeal for us to pick up my son's medications in the safest way. It was not until the Media became evolved that the insurance company budged. I felt helpless and have united with many other pharmacists, physicians, patients, mothers and fathers, and caregivers who feel the same way. Helpless. Mail order of prescription drugs should be a choice not the only option of coverage. Mandatory mail order programs from all plan types (INCLUDING the plans that are regulated by ERISA) needs to cease until mail order pharmacies are forced to store and monitor medications during their deliveries at the temperatures tested and proven safe by the manufacturer. I would never put my son's medications in a hot non-temperature controlled environment, and shouldn't be forced to only use this option in order to get coverage for his life-saving medications. Mail order pharmacies may appear to save money, but when my son ended up in the hospital after taking medications that could have been compromised by having lower potency, the cost of the rejection was thousands of dollars. If his liver would have fully failed, the cost of his liver transplant for just 5 days (he was in the hospital for 5 weeks) was over $1,000,000. The lax regulation and oversight may save money on prescription drug plans but may come at an increased cost to the health plan itself. Also, keep in mind the endless waste of medications that automatically are sent regardless of whether or not patients need them. Also, people with chronic, complex conditions, should always have the option of face to face interaction with a pharmacist who knows their complex needs and medical history. The pharmacist and patient relationship is crucial to the successful outcome of the patient's overall health. Taking this away is harmful to patients and be more costly to our already stressed healthcare system. Since starting the petition, many have also stated that they experience life-threatening delays in receiving their prescriptions. Medications get lost, stolen, people are going days without medications that their life depends on. Only allowing mail-order pharmacy for coverage is unethical and irresponsible. Another important fact. Mandatory mail order programs are discriminatory. It is estimated that 40% of our homeless are disabled. How is mandatory mail order fair and working for them as they may not have an address and not even know where they will be from day to day? It is crucial that All plans should include true fair coverage and reimbursements of our pharmacist. Please help! We need legislation to protect all patients by ending the mandatory mail order pharmacy coverage in every type of plan offered in the nation. We need your help to make mandatory mail order an option, not a mandate. YOUR URGENT SUPPORT WILL SAVE LIVES! THANK YOU!!
Remove sub-Asian boxes on Census Form 2020! Stop racist anti-Asian anti-immigrant legacy!
Dear fellow Americans for justice, brothers and sisters against racism, The glaringly racist legacy of sub-Asian boxes on the Census form was started in 1870, after the Burlingame Treaty of 1868, which eventually led to the infamous, racist, and inhumane Chinese Exclusion Act spanning from 1882 to 1943, which among other terrible abominations, banned U.S. residents of Chinese descent from having children or getting married; their family members in Asia were forbidden from entry to U.S. and reuniting as families. The Census form has no "Asian/Asian American" category. In its place are a group of boxes signifying foreign nationalities in Asia as if Asian Americans were all “perpetual foreigners.” It intrusively identified and collected data on which U.S. residents were of Chinese, Filipino, Indian, Vietnamese, Korean, Japanese...descent. While the Chinese Exclusion Act ended in 1943, did these racist, humiliating, dehumanizing sub-Asian boxes get removed from the Census form? No, they were kept on the Census form by the U.S. government even until today, and if we don't fight back and boycott the Census form with sub-Asian boxes, it will stay on the 2020 Census form and beyond, prolonging a racist American legacy, a shame to all Americans. This legacy treats Americans of Asian descent as perpetual foreigners, and collects intrusive personal ancestral origin data used in many kinds of racial discrimination and persecution. In one example, the U.S. government used information from the Census Bureau to identify native born Americans of Japanese descent and sent them to Internment Camps during the World War II. There were also discriminatory laws against Americans of various Asian descent, such as Filipino. Such horrendous trampling of humanity will happen again unless you and I act now to boycott a 2020 Census form with sub-Asian boxes. We demand these sub-Asian boxes be removed and replaced with one description--"Asian/Asian American." Injustice to one human being is injustice to all human kind. If we don't stop this racist and anti-immigrant legacy, its “logic” and mentality will be repeated in current and future policy-making. Let's keep fighting against racism and improve the human condition step by step. Please join the good fight to make this historically significant change happen for now and forever, by signing this petition and sharing it on social media and by email, word of mouth. Power to the people! Fighting on, Americans against racism and anti-Asian anti-immigrant legacy
Bring Howard the War Hero Home
Howard the Hero once fought and served his country on foreign soil to ensure us Americans have freedom....now he lives out his life on American soil on the end of a chain or in a tiny kennel muzzled. But he does not have to, his handler is desperate to get him back and has searched for years. What joy he must of felt when he tracked his beloved Howard down...and what horror when he saw the truth. Here is the handler's story. Please share this petition and let's bring this American hero home: I just wanted to post an overview of this sad story thus far... My name is Alexander Reimer, I'm an Army Veteran, who is looking for some assistance. While in the service I deployed to Afghanistan in 2012 with a companion, name Howard. Howard is a Pit bull, and the 1st Pit bull to be a certified military working dog. Howard and I actually had a couple articles done on us while overseas, and you can find a lot of information on us from various other sources. I am now a veteran dealing with PTSD among many other things, and am considered 80% disabled through the VA. I got out of the service in 2013 and handed Howard off to be loved and used by another handler. I was Howard's 1st handler having him since he was 9 months old. He was actually a rescue dog to begin with, and was rescued out of the Howard County Pound out of Indiana, hence his name "Howard". Howard and I have been through so much together and I owe that dog my life. I wear his patch on hat and back pack as much as I can in honor of my brother. So now for the story and assistance I could use... After I handed Howard off back in 2013, he immediately went back on deployment to Afghanistan with the other handler. To only come back from that and be tossed to someone else. This is where I lost track of where he was. Now present day, I finally found Howard under the ownership of a local Taylortown Police Officer by the name of Deon Fuller and his girlfriend/wife Katrinda Pettiford. So I reached out to Katrinda via Facebook, she accepted a friend request and I quickly was aware that she knew exactly who I was, and Howard’s and my past together. She had stolen picture from my Facebook and or the photographer who had followed me around while we were severing overseas. So I reached out to her via Facebook message and enlighten her on our story and asked if there was any way I could see Howard… I never heard back after multiple messages which was very sad. Well after further investigation on Katrinda’s Facebook page I found the pictures you have seen on this page of how Howard was being tied up to trees with nothing around him. Not how a war dog/veteran should be living out his life!! Something had to be done! Well I actually had a friend who was down in the area go knock on the door to be let in and find Howard in a kennel, while Katrinda was home. The home is in bad shape, and Howard was locked up in this kennel with no blanket, food, water or anything. He also had kennel rash, missing hair on his elbows in poor shape and obviously neglected. My friend had snapped some photos that you have seen of his tattoo number and him locked in the kennel with nothing. Since finding out all of this, Deon has been contacted and offered money to put Howard back with me in a home where he will be loved and spoiled and well taken care of. Deon responded to our offer and pretty much has told me and many others such as Mission K9 Rescue and Operation Releash (non-profit organizations), tough luck and he is providing another type of service now (Therapy Dog), which by the pictures you can see that Howard is not providing this man any type of service and instead is being neglected and not living out a life as a war hero or any dog for that fact should. Again all of these sad pictures of Howard on this page were either taken by Katrinda, Deon, or her kids, and were found and or taken while I was searching for my battle buddy, my brother who I owe my life to. Howard should be taken out of this family’s home and put with his rightful owner, who will love, cherish, and treat him how any veteran should be treated, or any dog for that fact. Howard was adopted to this family incorrectly, and I should have been notified once Howard was up for retirement as I was his first handler. And since this family is mistreating him and he is not a service dog for Law enforcement Howard should be rightfully mine and should have been in the first place.(According to H.R.5314/Robby’s Law passed in 2000, Military Working Dogs Adoption process, the unwritten code of a working dog handler, and many other sources) The veteran community, Mission K9 Rescue, and Operation Releash and many others have been helpful spreading the word of this very sad situation and are asking for more help. We have created this Facebook page for Howard return home from this disgusting situation and are looking for any support that can lend us some assistance! It would be much appreciated!! Feel free to reach out to me, Mission K9 Rescue or Operation Releash! Thanks For The Support!Veteran Alexander Reimer
We Demand that the U. S. Senate not confirm Andrew Puzder as Secretary of Labor
Andrew Puzder is among Trump's more controversial Cabinet picks because he has publicly opposed the overtime rule and various other Department of Labor regulations, and because the fast-food industry, from which Puzder hails, is a top wage-theft enforcement target at the department. Puzder is CEO of CKE Restaurants, which includes Carl’s Jr. and Hardee's. It’s actually very hard to imagine a worse choice for Labor Secretary than Andy Puzder. The Labor Secretary’s job is to look out for American workers. Trump's Labor nominee has opposed increasing the federal minimum wage from $7.25 an hour to $10.10 an hour and efforts to expand eligibility for overtime pay. It would be kind of funny if it wasn’t so serious. During the election, Trump made a lot of promises to create good jobs. But he’s filling his cabinet with CEOs and right-wing billionaires who have spent their lives undermining working people’s rights to come together in unions, while fighting minimum wage increases, paid sick leave and family leave policies. The evidence clearly demonstrates that protecting the rights of the people who work at Puzder’s company or its franchisees doesn't seem to be his priority. Puzder has run a business model that has produced widespread labor abuses at the companies. According to data compiled by Bloomberg BNA, over the previous seven years, about 60 percent of all Labor Department investigations of Carl's Jr. Restaurants found violations of the Fair Labor Standards Act. While working people at his fast food chains sometimes were making below minimum wage, Puzder was taking big compensation packages. In 2012, he made 291 times as much as workers at his restaurants. Now, he could be in charge of enforcing our nation’s labor laws—from ensuring workplace safety to investigating wage theft. His companies had the fourth highest incidents of wage theft reported to the government. ‘Wage theft is a rampant, everyday problem in the fast-food industry: Nearly nine out of 10 fast-food workers across the country report having money stolen from their paychecks by their boss,’ Kendall Fells, the Fight for $15 national organizing director, told Bloomberg BNA via e-mail. Bloomberg reported. “Fells referred to a 2014 poll commissioned by the campaign of more than 1,000 fast-food workers nationwide. The survey documented such common worker complaints as being forced to perform tasks before clocking in or after clocking out, having the cost of uniforms deducted from their paychecks, and not receiving breaks during long shifts.” Puzder’s Carl’s Jr. restaurant chain also has a history of sexist television. He thinks it’s appropriate to peddle sex to kids if it sells the product. “We believe in putting hot models in our commercials, because ugly ones don’t sell burgers,” said the CEO in a 2011 press release, according to Fortune. “We target hungry guys, and we get young kids that want to be young hungry guys.” Let’s target Puzder’s nomination instead. Just Say No Puzder at Labor. This petition will be delivered to the full Senate and to the Health, Education, Labor, and Pensions Committee of the U.S. Senate
Designate the Nolichucky as a National Wild and Scenic River
The Nolichucky River is one of the last major free-flowing rivers in the Southeast. From its origins high on the slopes of North Carolina's tallest peaks, the 'Noli' carves its way through one of the deepest river gorges in the Eastern US before joining the French Broad River in Tennessee. A 7.2 mile section of the Nolichucky Gorge between Poplar, NC and Unaka Springs, TN was recommended by the US Forest Service for protection under the Wild and Scenic River Act in 1994. Unfortunately, a bill has never been introduced to congress to finalize a Wild and Scenic River designation. The Noli is known for it's outstandingly remarkable scenic, recreation, geologic, and ecological values. It is home to several endangered or threatened species of animals and plants such as the Appalachian Elk-Toe Mussel and Virginia Spirea. The river is a major destination for whitewater enthusiasts who venture into the gorge to challenge themselves in the class II-IV rapids. It's also popular among anglers, hunters, and hikers. Thousands of visitors pass through the Noli Gorge every year with whitewater rafting companies and fishing guide services. This tourism generates great economic benefits for the local economies. The Nolichucky Gorge stretches through parts of Mitchell and Yancey Counties in North Carolina, as well as Unicoi County in Tennessee.There is a rich human history in the area, yet the gorge remains largely untouched by development with the exception of a CSX rail line that parallels the river. In the last year, traffic on the line has dramatically decreased and will likely continue to do so in the future. While there have been problems with water quality in the Nolichucky in the past, it is improving as upstream communities become more aware of the effects of pollution and sedimentation on downstream resources. Designation of the Nolichucky as a Wild and Scenic River will invigorate the local economies through increased tourism while giving permanent protection to this unique resource and ensuring it's enjoyment for future generations. Realizing the dream of a Wild and Scenic Nolichucky River will take widespread community engagement and support from our elected officials. As the 50th anniversary of the Wild and Scenic Rivers Act approaches in 2018, there is no better time than for building a movement around the Nolichucky Gorge. Let's get a bill passed through Congress. Please support the permanent protection of the Nolichucky River Gorge as a National Wild and Scenic River. https://www.facebook.com/nolichuckyriver/
TSA: DO NOT allow knives on airplanes!
I am a flight attendant and this news outrages me: the Transportation Security Administration just announced rollbacks of security rules -- allowing pocket knives to be carried on US planes, starting April 25. This policy would affect the safety and well-being of FLIGHT CREWS and PASSENGERS. This decision must be reversed to protect EVERYONE. Unions representing flight attendants and pilots and passenger rights groups are speaking out against this. A flight attendants union with Southwest Airlines called the new policy "dangerous" and "shortsighted," saying it was designed to make "the lives of TSA staff easier, but not make flights safer."Veda Shook, president of the Association of Flight Attendants-CWA, told the Wall Street Journal: "This is a step back in time by allowing weapons on-board aircraft." In addition to being a potential weapon for terrorists, she said, "if someone gets inebriated on board, then these knives can be wielded as a weapon."Gregg Overman, a spokesman for the Allied Pilots Assn., the union that represents pilots from American Airlines, told the Los Angeles Times that the announcement caught him by surprise. "It represents a significant step backward in security."And check out this comment that was just posted on my petition by K Leeder:“this is so sickening and unacceptable. One of my dear friends, had her throat slit with a knife on flight 93!! How dare you put all us flight attendants back into danger by allowing knives back on the airplanes??? This is despicable that you would do this..it will make our airplanes less safe, and we want to have you reconsider this and throw it out. NO KNIVES and or any other weapons needed!!! PLEASE!”Knives do NOT belong on planes! Tell the TSA: Protect your fellow Americans, do the right thing and get rid of this policy!