Tell the FDA to stop denying ALS patients treatment options
When I became a parent, I knew immediately that I would do anything to protect my daughters from the hardest parts of life. My mission would be to give them as much love and comfort as I possibly could. But now instead of me taking care of them, my daughters are often responsible for taking care of me, because in May of 2014 I was diagnosed with ALS. Now, instead of protecting them, my daughters are forced to watch as my body dies one muscle at a time. ALS is a devastating disease, that currently has no effective FDA approved treatments. However, there are promising therapies in the FDA approval pipeline that might improve my chances and quality of life, but the FDA isn’t willing to expedite the approval of these drugs, even though the average life expectancy of an ALS patient is 3-5 years and the average time it takes for a drug to become FDA approved is over a decade. Please join me and Hope NOW for ALS in petitioning Congress and the FDA to apply Accelerated Approvals (AAP) to promising treatments targeting terminal diseases, and implement faster, smarter, and more humane clinical trials using today’s science. This is not a radical or new idea. In 1992, in response to the HIV/AIDS epidemic, the FDA adopted the Accelerated Approval Program (AAP) – an expedited approval process to treat fatal diseases. This was a process to allow patients fast access to potentially life saving drugs, and has since been used for cancer and heart failure treatments. But the FDA refuses to apply it to ALS and other rapidly fatal diseases. How can it possibly be fair to exclude the most vulnerable and at risk people -- those with fast acting terminal diseases -- from this program? ALS is always fatal, and there are currently over 30,000 patients in the US with no options. We need help. We need options. My diagnosis is the greatest challenge my family has ever faced, and my daughters have amazed me with their grace and strength in taking on this battle with me. I know that even though my life has not turned out like I imagined it, I can still be the dad I always wanted to be, and I can still show my daughters what it means to take a stand for what counts. Please join me and Hope NOW for ALS to help save my life, and the lives of so many others around the country.
Congress: Censure President Trump For His Heinous Remarks About "Shithole" Countries
Please also sign and share our net neutrality petition: https://www.change.org/p/jeff-flake-we-need-one-more-republican-vote-in-the-senate-to-save-net-neutrality And join our group here: https://www.facebook.com/groups/1721640631484675/ ----------- This petition began in a private, politically active facebook group of 6300 people consisting of Democrats, Independents, Socialists, Libertarians, and concerned Republicans. On Thursday, Jan 11, the Washington Post reported that President Donald Trump attacked potential immigrants from Haiti, El Salvador and African countries as part of a bipartisan immigration deal. The White House did not deny these allegations. This, a day before the 8th anniversary of the earthquake in Haiti that killed over 100,000 people. This is a step too far. If this were any other president, a censure would be an expected course of action. We realize that many in congress have become numb to Mr. Trump's rhetoric, but American voters have not. This is the language of fringe talk radio, not the President of the United States. He dishonors the office with these words. He is our chief diplomat around the world, and he represents millions of Americans who emigrated from these nations. He should act like it. It is time for congress to stand up and censure this president for his dishonorable remarks about our friends in Haiti, El Salvador and Africa, who rightfully look to the United States as a beacon of freedom and opportunity.
We Demand that the U. S. Senate not confirm Andrew Puzder as Secretary of Labor
Andrew Puzder is among Trump's more controversial Cabinet picks because he has publicly opposed the overtime rule and various other Department of Labor regulations, and because the fast-food industry, from which Puzder hails, is a top wage-theft enforcement target at the department. Puzder is CEO of CKE Restaurants, which includes Carl’s Jr. and Hardee's. It’s actually very hard to imagine a worse choice for Labor Secretary than Andy Puzder. The Labor Secretary’s job is to look out for American workers. Trump's Labor nominee has opposed increasing the federal minimum wage from $7.25 an hour to $10.10 an hour and efforts to expand eligibility for overtime pay. It would be kind of funny if it wasn’t so serious. During the election, Trump made a lot of promises to create good jobs. But he’s filling his cabinet with CEOs and right-wing billionaires who have spent their lives undermining working people’s rights to come together in unions, while fighting minimum wage increases, paid sick leave and family leave policies. The evidence clearly demonstrates that protecting the rights of the people who work at Puzder’s company or its franchisees doesn't seem to be his priority. Puzder has run a business model that has produced widespread labor abuses at the companies. According to data compiled by Bloomberg BNA, over the previous seven years, about 60 percent of all Labor Department investigations of Carl's Jr. Restaurants found violations of the Fair Labor Standards Act. While working people at his fast food chains sometimes were making below minimum wage, Puzder was taking big compensation packages. In 2012, he made 291 times as much as workers at his restaurants. Now, he could be in charge of enforcing our nation’s labor laws—from ensuring workplace safety to investigating wage theft. His companies had the fourth highest incidents of wage theft reported to the government. ‘Wage theft is a rampant, everyday problem in the fast-food industry: Nearly nine out of 10 fast-food workers across the country report having money stolen from their paychecks by their boss,’ Kendall Fells, the Fight for $15 national organizing director, told Bloomberg BNA via e-mail. Bloomberg reported. “Fells referred to a 2014 poll commissioned by the campaign of more than 1,000 fast-food workers nationwide. The survey documented such common worker complaints as being forced to perform tasks before clocking in or after clocking out, having the cost of uniforms deducted from their paychecks, and not receiving breaks during long shifts.” Puzder’s Carl’s Jr. restaurant chain also has a history of sexist television. He thinks it’s appropriate to peddle sex to kids if it sells the product. “We believe in putting hot models in our commercials, because ugly ones don’t sell burgers,” said the CEO in a 2011 press release, according to Fortune. “We target hungry guys, and we get young kids that want to be young hungry guys.” Let’s target Puzder’s nomination instead. Just Say No Puzder at Labor. This petition will be delivered to the full Senate and to the Health, Education, Labor, and Pensions Committee of the U.S. Senate
Please Bring Capone Home
A German Shepherd/Lab mix, Capone, has been a family-member of a family in Aurora, CO for the past 10 years. On February 24 2017, Capone jumped the fence in his backyard and was picked up by Aurora Animal Control. City officials are currently refusing to return Capone to his family because he is suspected to be a wolf-hybrid "after it's experts observed the animal's behavior, mannerisms and physical characteristics." If a DNA test finds that Capone is part wolf, he is at risk of being euthanized, re-homed or sent to an animal sanctuary. Please sign this petition urging the City of Aurora to return Capone to his family. Capone is currently being detained at the Aurora Animal Shelter. He is a loving family dog who does not have a history of violence and have never shown aggressive tendencies. In fact, Capone has proven himself to be a loyal and loving dog to the family's children. The owner, Tracy Abbato, feels like her children are being punished by having their dog taken from them. Abbato stated "they sleep with the dog at night and it's hard watching my kids because they are taking it rough." Owning a wolf hybrid is illegal in the City of Aurora but the State of Colorado law states that as long as a dog is at least 1% domesticated, it's legal to own said dog. Capone, who has lived with his family for the past 10 years and has never been show to be wild or vicious should not be condemned to death or a life without his current family when the State of Colorado allows dogs who are at least 1% domesticated to be owned as pets. For more information check out this 9News story or this one on the Huffington Post. This family dog deserves to come home, not caged up, just imagine, he may never get to have that life again. How would you feel?
We are Losing Hundreds of Family Dairy Farms Each Year in the USA
Currently dairy farmers are losing approximately 50-60 cents a gallon on all the milk they produce. This is the reason we are losing so many family dairy farms in the United States. The national production of milk is approximately 204 billion pounds of milk annually which means that dairy farmers are losing $5 per 100 pounds. Nationally this means the dairy farmers are losing over $10 billion each year. This translates into about a $60 billion loss for the rural economy. THIS CANNOT CONTINUE! WE NEED YOUR HELP IMMEDIATELY! THIS CAN BE CORRECTED! We are urging the United States Congress and the Dairy Division of the USDA to have open hearings for dairy farmers to hear and hopefully resolve their problems. We have outlined specific programs congress can take to correct this problem. Please refer to the "Dairy Farmers Are Left Behind Again" guest editorial by Arden Tewksbury located on the Progressive Agriculture Facebook page to view suggestions where congress can help dairy farmers. (Link included) https://www.facebook.com/Progressive-Agriculture-Organization-130911270336981/ Consumers, you must decide; Do you want to be drinking milk from the USA or milk imported from other countries? The decision is up to YOU! Act NOW and sign this petition! Thank you!
Stand Against Food Waste in Colorado
Forty percent of all the food produced annually in the United States will be wasted. Of that, a quarter is discarded by grocery stores when the food is not immediately sold. In 2008, that quarter amounted to forty-three billion pounds. When an apple’s skin has lost its luster and is no longer as shiny, instead of being thrown out, it could be shipped out to food banks. Ours is a world where people starve, where many metric tons of perfectly good food in developed countries like the United States go straight to the trash. Yet, even with all this abundance, 1 in 8 Americans are facing food insecurity. That number even translates to Colorado where 1 in 8 Coloradans do not know when their next meal will be. We must mandate that food retailers partner with food banks and homeless shelters in order to reduce the amount of edible food being wasted. Instead of disposing of food approaching its sell-by dates or produce that has sat for a couple of days, it must be supplied to food banks or other charitable donation centers. To do this, a law must be introduced in the Colorado legislature. There are already several relevant precedents which we can look upon for guidance. The 1976 Tax Reform Act, among other things, “entitled” corporations to tax deductions, provided that they make a “contribution [...] of appreciated property” to a charity or other foundation. This means that retailers have little to lose financially in donating undesired food, as the government would, perhaps upon filing a claim, grant those tax deductions to the retailers that use this measure to their benefit. That Act has been out in the public sphere, without much mention or recognition, for forty years. Meanwhile, France has already passed a law mandating that supermarkets donate unsold food (food still retaining good quality but which is approaching its best-before date). With this law in place, more meals will be dished out each year to the needy and the poor. If we want to help stop food waste, we need to start the trend ourselves. Colorado is in a position to lead this change. Let us all petition our lawmakers to create a food reclamation act and put the issue on the map for other states looking to do the same thing.
Surrender Bandit to the no kill rescue
The nation has heard about Capone, the "wolf" dog. The same shelter that had unnecessarily kept Capone captive is holding another dog prisoner. On January 4th, 2017 Bandit was confronted by a screaming FedEx man, wearing a black hat and hoodie, when he went out the front door. Bandit ended up biting the FedEx man. Even though this resulted in only a minor bite and a few stitches, the FedEx man insisted that Bandit be destroyed. Bandit was taken from his family, in which his owner, who speaks little english, did not have a translator or an attorney at the time. Ms Piccone of The Piccone Law Firm now represents the family. Ms Piccone attempted to get a canine aggression specialist to do a behavioral evaluation. Aurora Animal Care would not allow Bandit to be taken out of his cage. This interference resulted in an incomplete evaluation. Even so, the city still insists that Bandit is an aggressive animal. Aurora Animal Care has lost creditability due to many recent public cases, and therefore cannot be trusted as the sole evaluator. A rescue in Colorado Springs has offered to take Bandit, and offer any behavior modification that may be warranted. However, Aurora refuses to surrender him to the no kill rescue. Bandit has been at the Aurora Animal Shelter in Aurora, CO for over 2 months now awaiting his execution. It's time to get him out! He has a rescue that is willing to take him. Please Help!
Act Now to Protect the Heart of Colorado’s Rocky Mountains!
Nestled in the heart of Colorado’s ski country lies the state’s Continental Divide—a haven for outdoor recreation and wildlife. The Continental Divide Wilderness and Recreation Act (H.R. 2554), introduced in the House of Representatives, would safeguard about 58,000 acres of the White River National Forest as wilderness and provide other protections. This region is home to incredible lands and waters that are at risk from the pressures of growth and development, which could threaten the area’s clean water, wildlife, and booming outdoor recreation economy. The legislation would preserve important wildlife habitat and watersheds while enhancing opportunities for outdoor recreation, such as fishing, backcountry skiing, mountain biking, hiking, snowshoeing, and hunting. What’s more, local supporters are advocating for the preservation of Camp Hale, a military training site, as a National Historic Landscape in part of a broader effort to protect the Continental Divide region. Camp Hale operated from 1942 to 1965 to prepare soldiers for winter combat and mountain training. Some of the veterans who served in the 10th Mountain Division during World War II returned there and established many of today’s world-famous Colorado ski resorts. PLEASE URGE SENATOR MICHAEL BENNET AND SENATOR CORY GARDNER TO PROTECT COLORADO’S CONTINENTAL DIVIDE. The legislation would preserve Camp Hale as a National Historic Landscape while creating wilderness areas in the Williams Fork Mountains, Tenmile Range, and Hoosier Ridge and would expand the Holy Cross, Eagles Nest, and Ptarmigan Peak wilderness areas. It would also create a special management area within the Tenmile Range to protect world-class mountain biking, hiking, and wildlife watching. Take action to protect Colorado’s Camp Hale and Continental Divide wild lands today!
Say Yes To Disability Rights
On February 15th, the House of Representatives passed HR620, the so-called Americans with Disabilities Education and Reform Act. Instead of stopping the few frivolous lawsuits that occur, the bill will roll back nearly thirty years of civil rights legislation for people with disabilities in the United States. By passing this bill, You will undo the foundation of the Americans with Disabilities Act, a piece of landmark legislation passed in 1990 that gives disabled people a chance at equal access to employment, education, and society in general. By voting yes, you will Force disabled people to endure a lengthy process that involves filing complaints with businesses when they face accessibility barriers. These businesses, some of which have violated the law for almost 30 years, will have up to six months to resolve accessibility issues, and even longer, if the businesses can demonstrate “substantial progress” toward resolution.No other civil rights law has ever put the burden on those it protects to start and maintain the enforcement process. HR620 places cost-cutting for business owners ahead of the human rights of people with disabilities. Imagine having to wait over six months to use the restroom, locate merchandise, or check out confidentially and independently when building codes and other provisions for your civil rights have existed for almost 3 decades. Republican Senator Jeff Flake of Arizona will soon introduce the bill to the rest of you in the United States Senate.Please, Senators, we urge you to vote against this unacceptable and unfair legislation. Do not weaken the Americans with Disabilities Act. Do not weaken current and future civil rights legislation for everyone by placing the responsibility for enforcement on those who need protection.Thank you for your attention.
Don't deport Gerardo Suarez, father of Afghanistan War Veteran!
_______________________________________________________________ Victory! ALRIGHT EVERYONE! SMALL VICTORY, BUT A VICTORY INDEED! MY father was just released on his Own Recognizance. It's not over, but my father doesn't have to suffer in jail anymore. Now we are awaiting the hearing with the Immigration Judge. CONTINUE TO PRAY STEADFAST. Pray for the softening of the judge's heart. We now have a chance to actually present his case! WOOO! PRAISE GOD! Thank you to all the petition signers, everyone who wrote their Congress, ICE, DHS, Senators, and our Governor. Your support has been paramount, and I'm proud to be an American, standing alongside all of you who helped. THANK YOU! God bless you all! _______________________________________________________________ ORIGINAL MESSAGE: Hello Everyone, As we all know, our country is in drastic need of Immigration Reform. Immigrants are fighting for their lives to be with their families day and night. As an American Soldier, and U.S. Citizen I have witnessed and experienced the hardship of battle, and separation from family whilst serving a tour overseas in Afghanistan. I have just returned home on January 15th 2012, with no injuries and all thanks to God. As of March 24th 2012, just 69 days after my post-deployment transition, my father, who is a Legal Permanent Resident, was taken by ICE Agents in my living room while I was asleep. My father has lived in the USA as a Legal Permanent Resident since 1989. 14 Years ago he was convicted of a Class D felony, and was sentenced to Probation which he was discharged Honorably (and early) because of good conduct. Since his conviction, my father has learned his lesson and completely turned his life around. As a child, my father was distant, because of type of lifestyle he was involved in. Yet, I knew he loved me, and his children, and he always took care of me as best he could. His addiction to drugs (which at the time, I was unaware of) was starting to overpower him, and finally our home was raided. After 1998, when my father was honorably discharged, he took proactive steps to make our life better. We went from poverty, to living in a room in a relative's house, to eventually renting our own place. My dad worked painstakingly hard trying to find good work to support me, pay for college, and raise me. For years, nobody would hire him. He worked odd jobs, here and there, but nothing significant enough to really get our own place to live. Finally, in 2007 he got a big break, and was hired by Veolia Transportation, driving and serving the citizens of Las Vegas on the Citizens Area Transit Bus. He was so proud. His pay was finally good enough to start saving, and he did just that. Often times telling me: "Everything I have here is for you, son." He would sacrifice his whole day doing work that very rarely gets recognition. Day in and Day out he'd wake up at 2am, deal with the abuse of the passengers, and the inability to take breaks despite working 14 hour days. He always lived by "Hard work, is good work." He always talked to me about principles of life, teaching me to "obey and submit to authority." "Strive, work hard, make investments and save money." He was really focused on setting me in the right track. In 2008, I enlisted in the Nevada Army National Guard, and 2 years later I was promoted to Sergeant. When I first heard word of my impending deployment, my dad was broken hearted. The look on his face, when I told him that I was leaving to Afghanistan was filled with shock, worry, disdain, and bitter sadness. My father suffered for a year without me in 2011, often times not even knowing if I would make it home, or if the phone would ring again with my voice on the other end. However, he remained so strong, and really played an instrumental role in my service. He would always encourage me, comfort me with scriptures, provide advice on leading my troops, and giving me the strength to move forward day by day waiting for the longest 365 days until I can reunite with him. My father has been an active member of our church, Calvary Chapel Green Valley, where he would attend regular Military Ministry meetings, often times comforting family members of deployed soldiers. While I was gone, he would spend his weekends attending the church's "Downtown Outreach" where he would feed the homeless, give them bibles, support, prayer, and minister to them. When I finally returned him this past January, my father greeted me with tears of joy. He was so happy, and proud of his son's service. He would often brag about the medals I got, my rank, and about the accomplishments during my deployment to his friends, and the cashiers at the local grocery store. It was a bit embarrassing to say the least, but that's how he showed his love and pride. I guess the picture I am trying to paint is that my father, yes he made a mistake 14 years ago, was drastically changed from that. He is a completely different man! Gone are the days where he'd be cooped up in his room with his "friends". Gone are the days, where we would barely even talk because he was too doped up. In fact, my father is a proud patriot, parent of a soldier, a productive member of society, a servant of the public sector, a tax payer and an amazing, christian father. He has taught me so much, and honestly even now, as I face his incarceration and possible deportation proceedings, all of his training that he has instilled in me is kicking in. Without it, I would have been an unorganized mess. I owe everything to my father, and even as a soldier, my performance in duty, and decorations are a direct result of his input. My father has been instrumental in my morale, my troop's morale and most importantly my re-integration into society after experiencing war. My whole family is full of Servicemen, U.S. Citizens, and law enforcement. To strip him away from me is both shattering to my morale, well-being, and inspiration to strive. This year, when I returned we were already planning to buy a house, and have signed our paperwork. I was planning to fulfill my lifelong dream of taking care of him. He is a 54 year old man, and he's turning 55 this year. He's a frail image of what he used to be in his younger days, and as his son, I've always wanted to care for him. The Arrest: The sad morning transpired as my father responded to knocks on the door by ICE Agents. My father, being as docile as he is opened the door. He was under the impression that they were just "policemen." They began asking him questions about his truck that he owned. Worried, my father opened the door a little more and started asking if everything was alright. One ICE agent already put his foot in the door. Well, noticing that, my father asked them "Who are you?" To which only a badge was shown, but no positive Identification from the agents. Nothing stating that they were ICE or anything like that. Well, a little confused, he said "come in the living room, I will brush my teeth. I just woke up." My dad ran upstairs, brushed his teeth and came back down. They began interviewing him, asking questions about his prior conviction. Moments later, they said "We have to take you in for questioning" and without a warrant of any sort, they started to cuff him. My dad submitted, as he felt it was the right thing to do (and it was). As they took him out of the house, he said "My son just returned from Afghanistan. Please let me say goodbye to him" to which they replied "No." My dad called my name, in hopes I'd awake so he can say goodbye. Sadly, I didn't hear him. The ICE Officer then walked upstairs, rummaged through my dad's belongings to get his Green Card, Wallet and House Keys. I woke up that morning thinking he was kidnapped, when I then received a call from ICE saying they had my father in custody. As a veteran who fought to protect the freedoms, and defend the constitution of this great nation this situation poses questions: Was my fight in vain? Why serve a federal duty, protect freedom, if my family will get immediately separated? I am proud of my service this great country. I know my sacrifice will not be in vain, because of everyone here that makes this place so great! I am urging anyone who sees this petition to please help me. My father is all I have. He is my motivation, my inspiration, my best friend, and most of all: MY HERO! A great man. He's a father of four, a grandfather, an Uncle, and a brother and a friend to many. A 55 year old man, that just wants to love his family, and is loved very much by them. If he is deported to the Philippines, there is no life there for him. He doesn't have the protections of Equal Employment Opportunity in a country where age discrimination is so rampant; Therefore, he wont be able to support himself. All of his brothers, sisters, friends, and most of his children are here. There is nobody there to take care of him. His life is here in America. He has nothing there. It is an old country that he left 24 years ago. My father has already done his time, and he is now a contributing member of society. He pays his taxes, he loves his family, he gives to his church, ministers to members of his community, and lives his life just. He should be allowed to stay, because he has earned that right. I hope my sacrifice has helped earn his right as well. Thank you for your consideration, Sincerely, Sergeant Marc-Johann Suarez B 422nd Expeditionary Signal Battalion