FDA Accelerated Approval of Genervon's GM604 for Use In ALS
My name is Nick and I am 54-years old. In October 2011, I was diagnosed with ALS. Today, I am in a wheelchair and cannot walk or stand. My arms grow weaker almost every day and my breathing is starting to be affected. I used to be very active but now I can only leave my home when I have someone with me who's strong enough to lift me into my wheelchair once I'm done scooting down to the bottom of the stairs on my butt. It can feel like I'm a 100-year old man who can't do things for himself anymore. At 54, I should still be a vibrant part of my community, but this disease is kicking me where it hurts. Through the enthusiasm generated by the Ice Bucket Challenge, many people now know that ALS is a degenerative neurological disease that currently affects over 30,000 Americans, and as it stands the disease is always fatal. Most people with ALS are given only 2-5 years to live. When I was diagnosed, I was devastated - it took me months to accept it. Although I am now resolved, I have not lost hope. Currently, there is only one drug available to treat ALS (Riluzole) and it is only able to extend life expectancy by a couple months. That's why the recent news about a small company named Genervon Biopharmaceuticals and their trial drug "GM604" has been so exciting for the Global ALS Community. While most trials have a hard time even finding a positive trend, the GM604 trial data supports the view that this drug could very well be is a game changer in the battle against ALS. There are multiple, statistically significant data. Not only in clinical data and results alone, but also correlated biomarkers data and results as well. (Please see "Files" section on the campaign website: https://sites.google.com/site/aap4gm6/) Genervon met with the FDA in February 2015 and made a potentially life-changing request on behalf of the ALS community; they asked the FDA to promote GM604 to the Accelerated Approval Program with Post-Marketing Phase 4 Requirements, so all ALS patients can have legal access to GM604 now. Under the FDA's Accelerated Approval Program, the treatments would be covered by health insurance. Although Genervon knows that this request might complicate their relationship with the FDA, they were willing to take a stand and do everything they can to help the ALS community because it is the right thing to do. If the FDA does not grant Accelerated Approval, it will likely be 3 more years before patients are able to access this drug -- meaning that most people currently living with ALS will not live to see it reach market. While acknowledging the paramount importance of public safety in the FDA’s drug approval process, I believe that ALS presents a compelling case for an exception to the usual process. I am asking you to help me appeal to the FDA through their sense of compassion for those of us with this dreadful illness. People with ALS don't have time to wait for another clinical trial to be completed. By signing this petition, you'll be helping patients like me request that the FDA expidite the way potentially life-saving treatments are made accessible to people with ALS -- starting right now with GM604. Doing so could very likely mean a change in the course of ALS progression not only for myself, but hundreds of thousands of other patients worldwide. After you sign, please follow this link to tweet and/or email the FDA: https://www.change.org/p/lisa-murkowski-fda-accelerated-approval-of-genervon-s-gm604-for-use-in-als/u/9475826 Thank you, Nick Like us on Facebook: https://www.facebook.com/gm604forals Please go to the Genervon website for a true understanding of the facts and the science behind GM604: http://www.genervon.com/genervon/about_pressreleases.php
Tell the FDA to stop denying ALS patients treatment options
When I became a parent, I knew immediately that I would do anything to protect my daughters from the hardest parts of life. My mission would be to give them as much love and comfort as I possibly could. But now instead of me taking care of them, my daughters are often responsible for taking care of me, because in May of 2014 I was diagnosed with ALS. Now, instead of protecting them, my daughters are forced to watch as my body dies one muscle at a time. ALS is a devastating disease, that currently has no effective FDA approved treatments. However, there are promising therapies in the FDA approval pipeline that might improve my chances and quality of life, but the FDA isn’t willing to expedite the approval of these drugs, even though the average life expectancy of an ALS patient is 3-5 years and the average time it takes for a drug to become FDA approved is over a decade. Please join me and Hope NOW for ALS in petitioning Congress and the FDA to apply Accelerated Approvals (AAP) to promising treatments targeting terminal diseases, and implement faster, smarter, and more humane clinical trials using today’s science. This is not a radical or new idea. In 1992, in response to the HIV/AIDS epidemic, the FDA adopted the Accelerated Approval Program (AAP) – an expedited approval process to treat fatal diseases. This was a process to allow patients fast access to potentially life saving drugs, and has since been used for cancer and heart failure treatments. But the FDA refuses to apply it to ALS and other rapidly fatal diseases. How can it possibly be fair to exclude the most vulnerable and at risk people -- those with fast acting terminal diseases -- from this program? ALS is always fatal, and there are currently over 30,000 patients in the US with no options. We need help. We need options. My diagnosis is the greatest challenge my family has ever faced, and my daughters have amazed me with their grace and strength in taking on this battle with me. I know that even though my life has not turned out like I imagined it, I can still be the dad I always wanted to be, and I can still show my daughters what it means to take a stand for what counts. Please join me and Hope NOW for ALS to help save my life, and the lives of so many others around the country.
We demand that The United States Senate not confirm Jeff Sessions as Attorney General
As the nation’s chief law enforcement officer, the Attorney General of the United States must be independent of politics and respect the dignity of all Americans. The Attorney General has a duty to enforce the rule of law fairly and pursue equal justice under the law. One of the core functions of the Department of Justice is to protect Americans’ civil rights, and to defend those who have been denied them. Another key function of the Department of Justice is to protect our security, but never sacrifice our civil liberties. Not only has Senator Sessions been a staunch opponent of reforming the tragic shortcomings in our criminal justice system, he holds a number of views that are inconsistent with how most Americans believe justice should be applied under our Constitution.
Tell the H.E.L.P Senate Committee to Make Federal Employment Equal and Safe For People With Autism/ Mental Disabilities
Former FDA Consumer Safety Officer, Stacey A. Meyer is seeking a petition of a writ of certiorari to the Supreme Court of the United States due April 21st, 2015. She is also seeking to unite special interest groups as amicus curiae to file a brief in support of this case. Her prayer and plight is to bring change to “how” and “who”, neutral third party, handles the requests for reasonable accommodations for individuals with invisible or barely visible mental or developmental disabilities. Often times, the employee with a developmental or mental disability cannot advocate for themselves or even know “what” types of accommodations the employer could make for them. The very essence of their disability impedes them from requesting or speaking up for themselves. Additionally, if the decision making process is left to an employee’s first, second or third level supervisor, a conflict of interest or negative biases will ultimately impact “how”, “if” and “what” the employer will provide for the qualified disabled employee seeking relief. Now, the employee is left exposed, vulnerable and if not valued subjected to resentful and/or discriminatory treatment. Everyone knows someone who has autism either through direct interaction or indirectly. It affects all of us and unless we stand united together injustices will continue to be committed against individuals with autism whether they are children at home, in school or adults in pursuit of the American dream, gainful employment and independent living. Stacey was a proud public servant for the United States Government for 17 years. She was terminated “because of” the mental disabilities she suffers from on July 15, 2011. The last position she held was with the Department of Health and Human Services, Food and Drug Administration as a Consumer Safety Officer regulating the imported commodities, primarily foods, which enter into our domestic commerce. She was a loyal, trustworthy, dedicated and hard-working individual despite her mental disabilities (panic attacks, major depression, social anxiety, avoidant personality disorder, dependant personality disorder and sensory processing disorders). It is more than likely, because of these traits and symptoms, that she falls under the autistic spectrum disorders. The disabilities listed are co-morbidities of the autism. She is a 46 year old woman and often, especially women, do not find out until much later in life. She has been in litigation for 3 ½ years and this process has intensified her health issues and put her in financial ruin. She has lost everything through all of the litigation expenses. She never had her day in court with the administrative judge in the Merit Systems Protection Board, because her trial attorneys led her to believe that the Administrative Judge was going to rule against her and for the defendant the Department of Health and Human Services. Under their guidance, she withdrew from the MSPB process and filed a civil employment lawsuit in the Southern District of Florida in early July of 2012. Her day in court was slated for the first two weeks of December 2013. On November 15, 2013 the defendant moved for Summary Judgment on all four counts and the District Judge Cecilia Altonaga dismissed all 4 counts and closed the case. The four counts: Count I – Discrimination based on disability for Meyer’s termination in violation of the Rehabilitation Act of 1973, 29 U.S.C. sections 701-791b; Count II Discrimination based on disability for the FDA’s failure to accommodate Meyer’s disability in violation of the Rehabilitation Act; Count III – Retaliatory termination against Meyer for engaging in a protected activity in violation of the Rehabilitation Act; and Count IV – Discrimination based on gender in violation of Title VII of the Civil Rights Act of 1064, 42 U.S.C. section 2000e-2(a) (“Title VII”) Case No. 12-22666-CIV-ALTONAGA/Simonton. HHS admitted that she is a “qualified individual with a disability” under the Rehabilitation Act. The only hurdle that she appears to be facing in the court of law is that the DHHS terminated her under the “guise” that she broke a policy, misuse of a Government Owned Vehicle GOV and misrepresentation of her time and attendance by performing “fieldwork” in the field. She worked from within the GOV to escape the inadequate cubicle, high foot traffic and its location to supervisor William Keck. The court is hinging on the fact that she was not terminated “solely, because of” her disabilities. She revealed her mental disabilities to her first and second line supervisors, respectively, William Keck and Florida Director of Imports Branch, Facundo Bernal. She requested a minimal reasonable accommodations through the EEOC process a flexible any 80 hour schedule. In September 2010, Bernal called a meeting to create the facade that he was willingly engaging in the interactive process that the American with Disabilities and the Rehabilitation Act envisions. This process is a give and take between employee and employer is to determine the exact limitations and to consider what types of accommodations might help the otherwise qualified individual effectively perform the job. This process is also ongoing not a one stop deal. The needs of the individual may change through time or circumstances. Bernal used this meeting as a platform , as a pretext, not to discuss her needs for accommodations, but instead ridiculed and mocked her limitations surrounding her conditions: 1) interacting with others 2) concentration and 3) inability to learn new things. Bernal called her a “liability” during the meeting and flat out stated he did not think she was qualified for the position. Bernal questioned her abilities to do fieldwork, drive a GOV and interact with the officials at the firms FDA regulates. Stacey experienced a panic attack and became overwhelmed when Bernal called her a “liability” and publicly humiliated her in front of the other five individuals involved in the meeting. This disrespect of Stacey as a human being and as a contributing employee to the department caused irrevocable damage to her. Stacey’s behavior, “avoidant” followed after this contemptuous treatment. Even though Bernal did not think she could do the fieldwork, he chose to leave her in that very environment to fester her conditions. Union representatives brought up various accommodations during the meeting, including inner office duties (i.e. entry review and filer evaluations). Those duties are within the position of her former position and there are individuals that are not disabled performing those duties exclusively. Rotation into the inner office duties would have allowed Stacey to decompress from the continual flux of sensory and social engagement countered performing fieldwork. EEOC strongly advised Bernal to grant the any 80 hour schedule and offer FMLA (Family Medical Leave Act) as an additional accommodation. Basically, because of the EEOC laws, Bernal reluctantly granted the any 80 hour schedule, but never mentioned to Stacey about invoking her FMLA right. Only 3 weeks later, Bernal unilaterally changed the accommodation, to a First 40 schedule, without consultation with the EEOC. He notified her of the change without union representation and did not engage in a discussion for alternative accommodations. This schedule conceptually looked similar to the 80 hour, but was quite different and was difficult in application. Stacey volunteered every other weekend to perform entry review, remotely, and counted on those hours for the 80 hour pay period. After this change to her schedule Stacey “shutdown”. In November 2010 Stacey’s reasonable accommodation needs changed when the import personnel relocated to a larger building. Stacey’s cubicle in the previous office was a secluded partitioned cubicle. The new cubicle was an open space just outside Keck’s office. Because of the new exposed cubicle, her conditions became exacerbated with sensory overload and a change of routine, important for autistics, and the proximity to Keck’s office. This cubicle became a contaminated area for her. Stacey began to experience panic attacks while sitting there and within eyesight of Keck. Stacey’s previous involvement, with Keck, incited emotions that triggered these panic attacks and extreme anxiety. As a new accommodation, she asked Keck for a different cubicle reassignment and was denied and mocked. Stacey was trying to stay gainfully employed at the same time she was being mistreated and dealing with all the triggers causing her health to deteriorate. This cubicle affected her concentration and anxiety levels. Stacey began to avoid this space at all costs. Keck, on many occasions mocked her limitations regarding her disabilities by exclaiming “What’s a matter can’t you concentrate at this desk?” Keck also made reference to one of her limitations, social communication, by making inflammatory comments “If you shake your ass I know you won’t have any problems while out in the field”. Instead of reporting these inflammatory comments to the EEOC or third or fourth level supervisors, she mistakenly, because of her conditions, stayed silent. Staying silent for too long ultimately caused her termination. After visiting the importing firms Stacey would continue the “fieldwork” at a small park one block across from the office to perform administrative duties, which is not uncommon, within the “safe” space of the GOV or on the park bench. She used the GOV as a satellite office. She also combined her lunch and two – 15 minute breaks while at the park. The flexible schedule was requested and granted, although modified, for exactly this reason to flex her schedule when needed. Stacey chose to avoid the cubicle triggering her panic attacks and work from the field. She also utilized the hour break to walk decompressing from the sensory overload and prepare to return to the contaminated cubicle. Her first and second line supervisors believed she was taking too long out in the field, so allegedly Keck did surveillance for 4 days while she performed fieldwork. Instead of questioning her or asking if her disabilities were causing difficulties while driving or performing the fieldwork, they contacted her third line supervisor, Emma Singleton who allegedly contacted the Office of Internal Affairs (OIA) to conduct an investigation. These managers, Facundo I. Bernal and William M. Keck were so derelict of their duties as the Florida’s Director of Import Operations Branch and as a Supervisory Consumer Safety Officer making over $100,000 each annually neither offered to discuss what was causing Stacey’s delay doing the fieldwork. From the reasonable accommodation meeting held only 1 ½ months earlier both officers gleaned that Stacey was a qualified individual with a disability and struggled with the limitations of 1) social communication 2) concentration and 3) ability to learn new things but neither cared enough to try to engage Stacey when they both noticed a difference in her behavior after moving to the new office. This clearly demonstrates their disregard and animosity for Stacey’s limitations and as an employee in general. Their number one action should have been for her welfare and safety under their purview. This gave them the ability to remove Stacey from her federal career under the pretext that she violated a policy. The investigation through a GPS, of course, confirmed that she was going to the park across the street. Stacey was fired under the pretext that she misused a GOV and that she did not perform work while at this park. Stacey timely appealed, Case No. 13-15685-BB, to the 11th Circuit, on December 13th, 2013. On November 17, 2014 the 11th Circuit Judges: Chief Judge Ed Carnes, Gerald Tjoflat and Adalberto Jordan per curiam AFFIRMED the lower court’s ruling as a matter of law stating that there were no material facts in dispute for a trial jury to decide. Stacey’s trial attorneys and appeal attorney have raised several significant material facts of dispute that collectively; together create a mosaic of circumstantial evidence. These facts should be left to a jury of her peers to decide if there was intentional retaliation and/or discrimination for seeking a reasonable accommodation for her disabilities. The case has many, many more tiles, components to it, that taken together demonstrate intentional discriminatory and retaliatory actions from her first line supervisor, William M. Keck and her second line supervisor, Facundo I. Bernal. Quite prudent to this case is a glaring conflict of interest that has been disregarded and over-looked intentionally. Count IV, gender discrimination, was not appealed to the 11th circuit and is therefore not considered. However, if a jury heard her case in its entirety; the perjuries committed by Keck, about any former relationship, sexually, with Stacey would illustrate his lack of candor. Also the perjuries from the Director, Bernal that he never called Stacey a “liability” and even openly admitted that it was wrong when he unilaterally changed her accommodation, justice could be served. WHAT YOU CAN DO TO HELP: Please write, call, email and tweet the following individuals to change the outcome of my case and life. President Barack Obama, DHHS Secretary Sylvia Mathews Burwell, FDA Commissioner Margaret A. Hamburg, U.S. Senator Bill Nelson (D) - FL, Florida District Director Susan Turcovski and the United States Attorney for Appellee Wilfredo A. Ferrer. If you decide to tweet, justice4stacey.com, please include the hashtag #justice4stacey #accountability #williamkeck and #facundobernal. The message is simple: Stacey deserves justice and her right to a jury trial. You can reach the President Barack Obama at: The White House Attention: President Barack Obama 1600 Pennsylvania Avenue NW Washington, DC 20500 Phone (202)456-1111 Twitter: @BarackObama@WhiteHouse Facebook: https://www.facebook.com/barackobama You can reach U.S. Senator Bill Nelson (D) - FL at: Office of Senator Bill Nelson 225 East Robinson Street, Suite 410 Orlando, Florida 32801 Phone: (407) 872-7161 Twitter: https://twitter.com/SenBillNelson Facebook: https://www.facebook.com/billnelson E-mail: http://www.billnelson.senate.gov/contact-bill You can reach my congresswoman Debbie Wasserman-Schultz at: Congresswoman Debbie Wasserman-Schultz Congresswoman D. Wasserman-Schultz 118 Cannon H.O.B. 10100 Pines Blvd Washington, DC 20515 Pembroke Pines, FL 33026 Phone: (202)225-7931 Phone: (954)437-3936 Twitter: @DWStweets Facebook: https://www.facebook.com/RepDebbieWassermanSchultz You can reach the DHHS Secretary, Sylvia Mathews Burwell at: U.S. Department of Health and Human Services Attention: Secretary Sylvia Mathews Burwell 200 Independence Ave. SW Washington DC 20201 Phone: 1-877-696-6775 E-mail: Sylvia.Burwell@fda.hhs.gov Twitter: @SecBurwell You can reach the FDA Commissioner, Margaret A. Hamburg at: Food and Drug Administration Attention: Commissioner Margaret A. Hamburg 10903 New Hampshire Avenue WO1 RM2219 HF-01 Silver Spring, MD 20993-0002 E-mail: Mhamburg1@fda.hhs.gov Phone (301)796-5000 You can reach the FDA Regional Director, Anne Reid at: Food and Drug Administration Attention: Regional Director Anne Reid 60 Eighth Street DO-ATL Annex1 RM214 HFR-SE1 Atlanta, GA 30309 E-mail: Anne.firstname.lastname@example.org Phone: 404-253-1171 You can reach the Florida District Director, Susan M. Turcovski at Food and Drug Administration 555 Winderley Place 2nd Floor, Suite 200 Maitland, FL 32751 E-mail: email@example.com Phone: (407)475-4702 You can reach U.S. Attorney Wilfredo A. Ferrer at: US Attorneys Office Southern District Office 99 NE 4th St Miami, FL 33132-2131 United States Phone: (305)961-9001 Fax: (305)530-6444 Email: firstname.lastname@example.org Thank-you everyone for your help and support! Without you I won't make a difference. Stacey Meyer twitter @samfashion43
Department of Justice Investigation of Civil Rights Violations of MD Schools without AC.
In 1983 Maryland's highest court in Hornbeck v. Somerset County Board of Education, 458 A.2d 758, held that the education clause of the Maryland constitution embodies a right to “an adequate education measured by contemporary educational standards.” If climate control to keep temps at safe levels is not a "contemporary standard" when most schools in the state have AC then we don't know what is. When classroom conditions lack minimum safe standard that other classrooms have, this puts a limit on the access to education of those students. Particularly when the schools have to close as a result. Education is a civil right. All children have an equal right to education. The civil rights violation that a lack of AC represents is based on the fact that a lack of AC in schools when other schools have them, creates unequal access to education.Furthermore when those schools without AC have a disproportionate concentration of children who qualify for free and reduced meals, this creates socioeconomic based discrimination, violating these student legal right to equal access to education. The Comptroller and NAACP have written to the Federal Department of Justice calling for an investigation of civil rights violations of the children without AC in Baltimore County and Baltimore City. We need to support thier request.Please sign this petition asking the Department of Justice to investigate the civil rights violations of Maryland children.
CBD saves lives. Demand DEA remove CBD from schedule 1 controlled substances list.
CBD has a wide range of medical benefits. CBD non-psychoactive. Charlotte Figi who was born with Dravet Syndrome, a severe form of intractable epilepsy. Intractable means the seizures are not controlled by medication. CBD has reduced her seizure frequency from roughly 400 a week, to almost zero. Pharmacies in the United Kingdom make CBD available as an oral mucosal spray available for relief from conditions associated with multiple sclerosis. GW Pharmaceuticals produces a drug called Epidiolex. The drug contains 98% CBD, no THC, and has been approved by the U.S. Food and Drug Administration for trials on children with certain forms of epilepsy. Conveniently, CBD was just listed as a Schedule 1 substance, making it illegal to obtain naturally shortly after FDA approved Epidiolex.
HELP ENCOURAGE REVITALIZATION at SECURITY SQUARE MALL
Many Baltimore regional shopping malls are seeing revitalization around the Maryland area. However, the shopping malls in the 7th Congressional district (Security Square Mall & Owings Mills Mall) have been abandoned many times over. With all the attention on the defunct Owings Mills Mall, our quaint Security Square Mall that outlines the beltway and 3 major federal government agencies (Social Security Administration, Health Care Administration/ CMS and FBI) has been forgotten. Forgotten so much that about 80% of the income earned right here in Windsor Mill Maryland is spent elsewhere. The "Why?" is because of two simple reasons. One being, Gov. Larry Hogan stopped the Red Line project that had Security Square Mall earmarked as a major station along the route of connecting Northwest region to our downtown area. Even canceling this project he never gave a second thought at offering an alternative to the land and business owners that had prepared themselves to grow off this project. Millions were wasted on infrastructure planning, yet no one saw fit to give the area another ounce of hope. Secondly, our elected officials have failed to hold the retail center's investors accountable for there investment in our neighborhood. They are not required to live up to the like standards of area homeowners. For example, Macy's owns two defunct, boarded restaurants on the front parking lot of Security Square Mall. These two restaurant buildings have been vacant for more than 7 years. Yet to the contrary homeowners in the area can expect a $300 fine for not having a tight fitting lid on the their trash can. In my comparison, there has been trashy buildings littering the parking lot of a viable mall within the community and there has been no push to correct this issue or "put a lid on it". Where is the equity? Furthermore, there should be state limitations on how long buildings commercial and/or residential can stay vacant within our state. Constantly seeing the defunct restaurant sites on Security Square Mall's parking-lot, for so many years, is beyond an eyesore and gives a stench of despair. Retailers within the mall are starting to feel the monetary tension within the community and the chatter as patrons leave the area to spend their dollars elsewhere. Despite efforts like the movie theater at the mall undergoing renovation as we speak, and the inside mall maintaining a high occupancy rate, more needs to be done. The outer image in conceptually deceiving and needs to be corrected very soon because patrons will continue to flee and maybe even relocate in droves to be apart of more thriving communities. As one rides the boulevard to visit the areas medical centers, go to their government job, attend a formal event at the luxurious Martin's West facility, visit the local 92Q radio station hub, or to access the beltway at exit 17, the visual of dysfunctionality does not escape you. There is clearly two high profile vacancies that are attractive locations, yet have sat empty for far too long. Security Blvd area desperately needs a high profile restaurant or two that allows the mall to compete with the likes of Mondawmin Mall (has TGI Fridays), Reisterstown Road Plaza (has Applebees), Towson Town Center (has Cheesecake Factory, PF Changs, Stoney River, & TGI Fridays) & the new Foundry Row in Owings Mills (has Bar Louies). I encourage us residents of the Windsor Mill area to petition Macy's, our elected officials of the 7th congressional district, and the mall owners to change the image of our local mall, show the economic growth needed, and allow this retail center to be a beacon of light to our community.
Help bring baby Emily home she has 3 siblings waiting and grieving
Baby Emily was placed in the custody of a foster family in Florida awaiting ICPC transfer paperwork to move her to Maryland. The paperwork was done incorrectly which delayed the process long enough so that the foster parents were awarded custody on the grounds that she was already attached at 6 months. Her room was ready, her 3 siblings were excited and every day calling her name in their own special way. My wife, Tina, flew down to Florida with baby Em's 7 year old sister with the intent of bringing her home only to be told she was being awarded custody to the foster parents because she had now been attached to them. My wife made many attempts to set up visitation so her sister could see her and either ignored or denied a visit when they were in Florida. When my wife called the Guardian ad litem (GAL) she was told that her siblings would basically just need to get over the fact they will not see her sister. Note: Laws do not allow using the baby's real name
Tell Congress to End Lead Poisoning Now
Lead poisoning is completely preventable, but there are still over 535,000 children with elevated blood lead levels in the United States. Even at low levels, childhood exposure to lead has lifelong consequences including decreased IQ and cognitive function, developmental delays, and behavioral problems; very high exposures can cause seizures, coma, and even death. Children of color and children from low-income housing are disproportionately impacted by lead poisoning. It is completely unacceptable to poison our children. We must find and eliminate lead hazards before children are exposed, and we must provide needed services to those already impacted. The time for the new administration and Congress to write the budget for Fiscal Year 2018 is fast approaching. In the wake of Flint and the lead poisoning crises across the country, this budget must include funding to eliminate lead poisoning. Programs at the Department of Housing and Urban Development, the Centers for Disease Control, the Department of Education, and the Environmental Protection Agency are critical in eliminating lead hazards, identifying children exposed to lead, and providing needed services. We urge Congress and the administration to launch a national comprehensive effort to eliminate lead poisoning in five years by increasing funding to these programs. Sign this petition and demand that Congress: Increase funding for the Department of Housing and Urban Development’s (HUD’s) Office of Lead Hazard Control and Healthy Homes from $110 million to $2.5 billion annually over five years. This will allow us to fix lead hazards proactively in all at-risk low-income housing before they harm children. Increase funding for the CDC’s Healthy Homes and Lead Poisoning Prevention Program from $17 million to $50 million. This will provide blood lead level surveillance and outreach for all states, not just some. Provide $25 million in new funding for EPA to increase enforcement, including by grants to states, of the Renovation, Repair, and Painting Rule, public awareness of the Rule’s requirements, and the use of lead-safe work practices. This will ensure that children across the U.S. are protected from lead poisoning when their homes are renovated. Provide significant additional funds to local governments to replace lead drinking water pipes. Ensure that states have the funds necessary to enroll children with elevated blood lead levels in the Head Start and Early Head Start programs, allocate the Individuals with Disabilities Education Act parts B and C in part based on numbers of children in communities with elevated blood lead levels, and fund research to test best educational interventions for children exposed to lead. This will ensure that affected children receive needed services to enhance cognitive development and lifelong success. #FindFixFund #SHHCoalition @NCHH
Public Education Needs a Leader Who Knows About… well, Public Education!
Did you benefit from free public education? Do you have children who did? Do you have grandchildren currently in public schools? Do you agree that public education is the basis of our free and democratic society? Do you believe that public money should stay in public schools? And do you agree that we should invest in our public schools? Regardless of whether you are a Republican or a Democrat... If you’re a “Public School Person,” please speak up. You do not have to work in the educational system to be concerned with the future of public schools. No one benefits from living in an uneducated society. Therefore, we are urging our senators in Washington to vote for a qualified educator as Education Secretary and whose ideas do not contradict the very beliefs that universal public education is built upon. Betsy DeVos has no experience in public education in any capacity, and her only education agenda is to take funds from neighborhood schools and give those funds to private schools and for-profit charters. We are asking that our US senators vote against the current nomination of Betsy DeVos - and to oppose any misguided policies that weaken public education. #StandUpforPublicEducation #VoteNoforDevos