USPSTF: Include Cancer Survivors in the Guidelines on Risk Assessment, Genetic Counseling, and Genetic Testing for BRCA-Related Cancer
  • Petitioned Virginia Moyer MD, MPH

This petition was delivered to:

Chair, U.S. Preventive Services Task Force
Virginia Moyer MD, MPH

USPSTF: Include Cancer Survivors in the Guidelines on Risk Assessment, Genetic Counseling, and Genetic Testing for BRCA-Related Cancer

    1. Petition by

      FORCE: Facing Our Risk of Cancer Empowered

Despite hearing from over 3000 survivors, previvors, organizations, researchers, and clinicians, the USPSTF just released their brand new guidelines on genetic counseling/testing for BRCA-related cancers. These guidelines still have many gaps and importantly exclude cancer survivors in the "B" letter grade! 

http://www.uspreventiveservicestaskforce.org/uspstf12/brcatest/brcatestfinalrs.htm 

Please sign our petition to protesting this injustice. 

The new US Preventive Services Task Force (USPSTF) Guidelines on Risk Assessment, Genetic Counseling and Testing for BRCA-Related Cancer discriminate against cancer survivors.  The USPSTF has implied that once a person is diagnosed with cancer, all additional health interventions are considered treatment of the disease. By dismissing the preventive value of BRCA counseling and testing in this population, they also dismiss the value of preventive services in cancer survivors in general, many of whom will go on to live long healthy lives if they are given access to appropriate preventive services.  

 As of January 2014—due to provisions in the Patient Protection and Affordable Care Act (PPACA)—U.S. citizens with a pre-existing condition can no longer be denied or dropped from their health insurance plans. It is ironic that at a time when PPACA is being implemented to eliminate pre-existing condition exclusions by insurance companies, the USPSTF is, in effect, giving back a pre-existing condition status to cancer survivors with their exclusion of genetic testing in cancer survivors, and therefore adding barriers to cancer survivors’ access to preventive care. More information about this important issue can be found at:
http://www.facingourrisk.org/advocacy/current_action/USPSTF_draft_guidelines_hboc.php.

Please join FORCE and others who care about ensuring that the high-risk breast and ovarian cancer community has access to critical screening and preventive services by adding your name to this petition and letter to the USPSTF: 
http://www.facingourrisk.org/advocacy/current_action/documents/final_response_USPSTF_sign_on_010.pdf

To:
Virginia Moyer MD, MPH, Chair, U.S. Preventive Services Task Force
Include Cancer Survivors in the USPSTF Guidelines on Risk Assessment, Genetic Counseling, and Genetic Testing for BRCA-Related Cancer

Sincerely,
[Your name]

Recent signatures

    News

    1. Reached 3,000 signatures

    Supporters

    Reasons for signing

    • Karen McFall DAVISBURG, MI
      • 9 months ago

      My dear, dear friend, Katie was taken by this awful disease.

      REPORT THIS COMMENT:
    • Helga Müller WIEN, AUSTRIA
      • 9 months ago

      Family history

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    • Marie Phillips LOXAHATCHEE, FL
      • 10 months ago

      Survivor

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    • Sandy Marits BOYNTON BEACH, FL
      • 10 months ago

      I was diagnosed with breast cancer at age 29 years old. Had genetic testing 12 years after diagnosis and was found to have a mutation in the BRCA1 gene. I had prophylactic oophrectomy because of the knowledge of my increased risk of life threatening ovarian cancer. It may have saved my life knowing this information.

      REPORT THIS COMMENT:
    • gina cavarretta BOYNTON BEACH, FL
      • 10 months ago

      Im a breast cancer survivor!

      REPORT THIS COMMENT:

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