The right to be diagnosed and treated for Lyme and related diseases
  • Petitioned US senate, Senators Schumer and Gillibrand
  • Responded

This petition was delivered to:

Lyme Girl
US senate, Senators Schumer and Gillibrand
See response
U.S. Senate
Connecticut
Sen. Richard Blumenthal
New York
Sen. Kirsten Gillibrand
New York
Sen. Charles Schumer

The right to be diagnosed and treated for Lyme and related diseases

    1. Bernadette Durham
    2. Petition by

      Bernadette Durham

      New York, NY

Every human being has the right to heal from an illness. The right to be given an accurate diagnosis, and to have proper and sustainable treatment and support. What if I told you that there is a countless number of people right here in America, who have been denied their right to a proper diagnosis of Lyme and other related infections related to tick bites, and then once properly diagnosed, they struggle to get treatment, to get insurance companies to pay for that treatment, and so on. The hardest of all, is these people struggle to find support as they heal from these infections. Most doctors, their families, friends and associates do not believe these people - they doubt them because there is a LACK of knowledge and understanding. Most people think that Lyme disease is easily diagnosed & cured... One is told that it is in your head... Why- because there is no research and education coming out of the medical community and there is no awareness or advocacy for Lyme Disease and it's associated diseases in the Public sector. Lyme patients want action NOW- we want to take back our right to heal and move on with our lives in peace without fighting a brutal bureaucratic political health care system in America. Please sign this petition if you want to take back your right to heal (or if you have a family member, friend or associate that you know who has faced this challenge)!

Recent signatures

    News

    1. Reached 2,000 signatures
    2. Decision-maker US senate, Senators Schumer and Gillibrand responds:

      US senate, Senators Schumer and Gillibrand

      I began suffering from some mysterioujs illnessses in 2000. I did not get a diagnosis until late 2009. Now it is too late for me. the damage has been done. I will be lucky to see 50. I am 47, single, jobless and penniless with no hope ...


    3. Reached 1,500 signatures

    Supporters

    Reasons for signing

    • jen lehman BRANDON, IA
      • almost 2 years ago

      I was misdiagnosed for at least 4 years. I was told I was crazy, had fibromyalgia, carpal tunnel, over extended joint etc. It was because of my own persistent and a friend of a friend who also had Lymes telling me what tests to ask for that I was finally diagnosed. Lymes disease has taken a toll financially, emotionally and on my ability to do my job to the best of my ability. We have one Lymes literate Dr in my state who is always under fire for using long-term antibiotics. Without him I would not be getting my life back and regaining my health. I'm on my 16th month of treatment and I can see the end in sight. Many of my fellow Lymies are still struggling with major health problems and cannot work. I know children who have not been in school because they have late stage lymes and are too sick to enjoy their childhood. I have referred 9 people from Buchanan County Iowa who have told me about their symptoms. 8 of those 9 have tested positive for Lymes. If Doctors are educated maybe they will start to look at symptoms differently and get their patients tested and look at symptoms to make a diagnosis. Testing is another issues .... there is no Lymes test currently that is reliable. My first ELISA test came back negative....a false negative which had them dismiss me having Lymes costing me months of treatment that could of been started. Please take notice Lymes is the next epidemic let's stop the needless suffering,

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    • marie tommassello PALM HARBOR, FL
      • almost 2 years ago

      This is a complex and misunderstood disease that deserves the same recognition and funding as all life altering and disabling diseases.

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    • Susan Burghart STATEN ISLAND, NY
      • almost 2 years ago

      Close friend with Lyme Disease

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    • mark mantovi STATEN ISLAND, NY
      • almost 2 years ago

      because my sister has lyme and she is having hard time getting any type of treatment and she's suffering!

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    • christopher purcell EAST STROUSBURG, PA
      • almost 2 years ago

      This is important to me because my fiance has lyme disease and struggles each and every day. Since ive met her ive watched her struggle with two boys having to do everything all by herself. When people like this struggle everyday with children and then add a disease on top of everything it become increasingly difficult for them. I see people with other diseases with no cure get more help and understanding then lyme patients. The goverment needs to wake up and realize that this is a serious matter that needs to be understood and treated in anyway possible but instead they want to rip doctors licence away from them, doctors swore an oath to help people in need with many different problems but this and why is that? Maybe if they had this dreadful disease they too would fight as hard as each and everyone of these people do. It destroys lives it takes lives and most importantly it destroys childrens lives. Wake up america and fight for a cause that makes impacts on everyone everyday.

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