Make Primary Amoebic Meningoencephalitis a nationally notifiable disease
  • Petitioned The Council of State and Territorial Epidemiologists and the CDC

This petition was delivered to:

The Council of State and Territorial Epidemiologists and the CDC

Make Primary Amoebic Meningoencephalitis a nationally notifiable disease

    1. Jeremy  Lewis
    2. Petition by

      Jeremy Lewis

      arlington, TX

Primary Amoebic Meningoencephalitis (amebic meningitis) is far too under-reported and misdiagnosed in the United States as well as throughout the world. This is primarily because it is not a NATIONALLY NOTIFIABLE DISEASE."PAM" is 99% fatal 100% preventable and has no known cure. With proper diagnosis it can be proven that this is not as "RARE" as people would lead you to believe. As a nationally notifiable disease it would bring more awareness to the issue which ultimately means more money and grants for one day finding a cure. A nationally notifiable disease means a disease required by law to be reported to official health authorities and that for every child that dies due to "PAM" each and every state is required to report the death. Currently in the United States, Florida is the only state that is required to report this. That said there are a few other states that offer the information on their own. For more information on "PAM" and the amoeba that causes it please visit www.KyleLewisAmoebaAwareness.org .

Recent signatures

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    1. Reached 750 signatures

    Supporters

    Reasons for signing

    • Joseph Trubinsky BOYNTON BEACH, FL
      • about 1 year ago

      friends son died from this

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    • Page Walter SULLIVANS ISLAND, SC
      • about 1 year ago

      Beautiful younger sister of my son's classmate was needlessly lost.

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    • Brandy Keener JOHNS ISLAND, SC
      • over 1 year ago

      A child in our school community and daughter of a friend succumbed to this horrific disease.

      REPORT THIS COMMENT:
    • Anne Glassburn MOUNT PLEASANT, SC
      • over 1 year ago

      Neighborhood child lost her life due to this awful disease.

      REPORT THIS COMMENT:
    • Sara Croft SCANDIA, MN
      • almost 2 years ago

      In memory of Hailee LaMeyer

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