South Staffs NHS Trust: Stop denying me the operation I need. End the unfair "postcode lottery"
  • Petitioned Jeremy Hunt MP

This petition was delivered to:

Secretary of State for Health
Jeremy Hunt MP
Primary Care Trust - UHNS NHS
Primary Care Trust - UHNS NHS
Primary Care Trust - UHNS NHS
Chief Executive - South Staffs PCT
Stuart Poyner
South Staffordshire and Surrounds CCG
Ms Bennett - Head of Commissioning
South East Staffordshire and Seisdon Peninsula CCG
Dr P. Allan
Healthwatch Staffordshire
Enquiries

South Staffs NHS Trust: Stop denying me the operation I need. End the unfair "postcode lottery"

    1. Duncan Buckley
    2. Petition by

      Duncan Buckley

      Stafford, United Kingdom

  1.  
  2.   

In April 2010 I was involved in a serious car accident and given just a 5% chance of survival. Thanks to the incredible work of NHS staff I survived and 23 operations later I am almost making a full recovery. But I've been told that I can't have the final operation that will allow me to walk unaided because it's not on the list of procedures that my NHS Primary Care Trust have allocated where I live.

This final operation could end the nightmare of my last two years, allow me to walk again and to get back to work. I don't believe vital services should be a postcode lottery. Please join me in calling on the South Staffordshire NHS Trust to overturn their decision and give me this surgery.

Here's my reason for starting this campaign and a recent ITV report. You can see how it might affect someone you care about below.

-----------------------

Signing this petition has far more positive results than just supporting my case; for which I feel, typifies the NHS issues as a whole.

In the UK, different NHS trusts routinely make clinical decisions on individuals that need surgery to help with a variety of individual physical disabilities. These decisions are, seemingly, not based on individuals case history or given priority when recommended by surgical professional, but are made based on priorities given to funding, resources, and categorised by where, in each district, the individual resides corresponding to what surgical procedures that particular NHS trust has laid out its approved procedure list; an ‘NHS postcode health lottery’ to describe it as such.

"Why should I care?" Here's why you should.
Signing this petition will help you and others in many ways. I will be submitting this petition, not only in support of my own case to my local Trust in hoping they will reverse their decision on my surgery, but also to the Government to help reform the current system and better it for everyone.

Imagine this scenario in your life.
A loved one (sister, brother, daughter, son or your parents) in your own family, who has been paying into the system all throughout their working life, requires surgery to greatly improve their health and standard of living. Without it, they face a certain lifetime of difficulties and pain, more so than they are experiencing now. A recommendation is made, either by their own GP or surgical professional, for a modern treatment that will ease their on-going pain and help them to restore normality to their life. But, your local NHS hospital refuses to fund it. Why? Because the treatment that will help your loved one is not on the Trusts approved list that they have allocated to the area where your loved one lives.

As in my case, my surgical consultant ( a Professor of Orthopaedic Trauma ) has recommended a specific modern treatment that will better my quality of life in the long term and improve my current health care following a long line of corrective, necessary, surgeries. This particular surgery is not only better for me than the ‘approved alternative’ and help to return me back to useful citizen again, but also less painful, less prone to infection, and is also cheaper and more efficient than the Trusts ‘approved’ procedures. Doing nothing will only result in more invasive, painful, difficult and costly surgery further down the line. Why refuse to act now at less cost, instead waiting for a greater problem to hit later in life, when it could so easily have been rectified now?

The system needs to change. It must.
People's health and wellbeing should not be limited to where they live, when they have paid into the system all throughout their lives and, when they need for whatever reason or for however long, it lets them down.

This petition will be submitted to the CCG in 2013 and will continue until surgery is confirmed, so please share this link with all that you feel could benefit from a change in the system.

Thank you very much for signing my petition, and your support in my case.

Recent signatures

    News

    1. Two steps forward, one step back - the world of NHS Commissioning

      Duncan Buckley
      Petition Organizer

      To all fantastic supporters,

      It has been sometime since I contacted you all with any update on this petition, and my own case, but, frustratingly, the bureaucracy of ‘NHS Commissioning’ has taken its toll.

      I am orchestrating negotiations for a "Business Case" between the Hospital Trust and the CCG while looking further into the principles of NHS commissioning and 'Service Developments' in order to secure my much needed surgery. I will keep you all informed. Keep sharing and keep on signing this petition, it may affect you or a loved one you care about unless we can change the system.

    2. Reached 10,000 signatures
    3. Bureaucracy will still exist

      Duncan Buckley
      Petition Organizer

      To try to anticipate the move from the PCT's (Primary Care Trust) to the CCG (Clinical Commission Group), I have further applied to our local CCG that will take over the duties of decision making in my case, asking that the decision is considered from them. But for those of you, hoping like I was, that the CCG decision making will improve the system, I fear that it will be no different.

      I was hopeful that, considering the CCG would be employing medically trained operatives, that my decision would be fairly considered with the long term effects of medical inaction taken into consideration.

      A recent letter from them has suggested that the unfair system that is currently in place with the PCT will be transfered over to the CCG. Some of the same personnel involved in those decisions will also be transferring as the move completes. I'll keep you all updated as my case progresses.

      Duncan

    4. Reached 9,000 signatures
    5. Blog

      Duncan Buckley
      Petition Organizer

      For those of you interested in reading in more detail about my journey since the collision, I have been keeping a blog:

      http://my-lasting-miracle.blogspot.co.uk/

      Admittedly, it's not complete up to recent events because, understandably, my attention has been focused on this last operation authority. However, it does provide you with an insight on what it was like from my perspective; from waking out of the coma to all the operations, the wards, what to expect if you have to go into hospital as an in-patient, the food, the services and other breakdowns of hospital related views.

      A word of warning for the faint hearted, it does contain images of my injuries, X-rays and other references.

    6. Reached 8,000 signatures
    7. Recent letter

      Duncan Buckley
      Petition Organizer

      Although not a decision, the PCT has communicated that my statement for exceptionality has been received and my case is undergoing a 'screening process' before the Individual Funding Request board meets to decide. Fingers crossed that a compassionate decision is made.

    8. Reached 4,000 signatures
    9. Still no news from the PCT

      Duncan Buckley
      Petition Organizer

      Still no news from the Primary Care Trust. I am still hopeful that when comparing the cost of their current 'alternative' to the recommended treatment, the decision will be compassionately reconsidered and reversed.
      Only through all your magnificent support will this happen. Thank you and please keep it going; if you would feel the same in our position, share this petition.

    10. Reached 100 signatures

    Supporters

    Reasons for signing

    • Michelle Elston SHEFFIELD, UNITED KINGDOM
      • 4 months ago

      Let this young man walk again .

      REPORT THIS COMMENT:
    • Anne Biesta BRISTOL, UNITED KINGDOM
      • 4 months ago

      Because people deserve a chance to get on with life!

      REPORT THIS COMMENT:
    • Heather Page NORWICH, UNITED KINGDOM
      • 5 months ago

      It's the national health service ... not the health post code service ... unequal care needs to stop, after all we all pay for it out of our taxes we should all benefit equally from it

      REPORT THIS COMMENT:
    • Danielle Kenehan BRADFORD, UNITED KINGDOM
      • 6 months ago

      The postcode lottery is effecting us all. I'm 23 and almost immobolised by pain due to an RTA aged 11 and th best help i can get is opiates

      REPORT THIS COMMENT:
    • Russell Carey CHICHESTER, UNITED KINGDOM
      • 6 months ago

      One more operation is all?

      Let him have it jesus

      REPORT THIS COMMENT:

    Develop your own tools to win.

    Use the Change.org API to develop your own organizing tools. Find out how to get started.