Revise IDSA Guidelines for Lyme disease
  • Petitioned Infectious Diseases Society of America; IDSA

This petition was delivered to:

Infectious Diseases Society of America; IDSA

Revise IDSA Guidelines for Lyme disease

    1. Robert Hillje
    2. Petition by

      Robert Hillje

      Schenectady, NY

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Countless Americans suffer from the chronic form of Lyme disease and its co-infections. It is very difficult to get treatment after the current IDSA guidelines of a 28-day regimen of antibiotics. It is even more difficult to get health insurance companies to pay for treatment after 28 days as IDSA does not recognize chronic Lyme. The tests for Lyme disease are inadequate and often result in false negatives in persons who have been infected for extended periods of time. The symptoms can be widely varied among individuals, and multiple systems may be affected. In the absence of proper diagnostic tests to accurately identify Lyme disease and its co-infections, we ask IDSA to revise its guidelines to include the option for antibiotic treatment extending beyond 28 days if the prescribing physician makes a clinical diagnosis that it would be in the best interest of the patient based on presenting symptoms, history and response to medication.

Recent signatures

    News

    1. 2,000 signatures, almost there!

      Robert Hillje
      Petition Organizer

      Share, send and spread the word! Thank you for supporting this effort.

    2. Reached 2,000 signatures
    3. 1,500 signatures!

      Robert Hillje
      Petition Organizer

      Thank you, everyone! We have over 1,500 signatures and we're going strong. Please share the link on Facebook, Twitter, Lyme forums and any other way you can imagine. Our deadline of May 11th is the day before MayDay in Washington DC. We can make it if we all work together. We will be heard!

    4. Reached 1,500 signatures

    Supporters

    Reasons for signing

    • fombonnat armonia ST VICTOR, FRANCE
      • over 2 years ago

      liberté

      REPORT THIS COMMENT:
    • trish malone LAFAYETTE, CO
      • over 2 years ago

      this disease is major rampant. i am watching my family in georgia (4 members) dying of complications of this immune-fuck of a disease. we recognize other immuno defficiancy diseases... why not this one?

      REPORT THIS COMMENT:
    • Holly Froeschner NIWOT, CO
      • over 2 years ago

      I have lyme disease, and it took 14 years to receive a diagnosis, because doctors are not educated about it and do not recognize it. I believe that the IDSA guidelines were formulated for the benefit of insurance companies, and directly contribute to the misleading of doctors about the disease. The symptoms are not easily curable with antibiotic treatment, as I and many others have discovered. Many formerly healthy, happy people have lost our chances of having a normal life and livelihood. We are not just having normal aches and pains, in need of psychiatric treatment, or "making it up." Lyme disease has clear patterns that anyone talking to a group of Lyme sufferers can see. All we ask is that you stop ignoring the overwhelming body of evidence - our experience - and pushing it under the rug. If you do not want to deal with Lyme disease, then please resign as "experts" on the topic!

      REPORT THIS COMMENT:
    • Holly McMeekin OAKTON, VA
      • over 2 years ago

      I am a newly diagnosed Lyme patient who is anticipating significant medical bills because of the ignorance & arrogance of those on the ISDA board.

      REPORT THIS COMMENT:
    • Susan Julia DOBBS FERRY, NY
      • over 2 years ago

      My life has been devastated by this terrible disease, as has the lives of so many people I know. This year thousands more will become infected and they, in turn, will find that doctors are limited (both in terms of understanding & treatment options) by the totally inadequate & incorrect IDSA guidelines.

      It's long past time that the IDSA acknowledge the reality of this terrible disease and the long-term devastation it causes to the lives of those unlucky enough to contract it....

      REPORT THIS COMMENT:

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