Reinstate amino-acid based formula prescriptions for children
  • Petitioned Dr Suzanne Hill, Chair

This petition was delivered to:

Pharmaceutical Benefits Advisory Committee
Dr Suzanne Hill, Chair

Reinstate amino-acid based formula prescriptions for children

    1. Reflux Infants Support Association Inc
    2. Petition by

      Reflux Infants Support Association Inc

      Sydney, Australia

The prevalence of cows milk protein intolerance (2% of the infant population under 1 yr) and soy intolerance (approx 1%) is significant in the Australian paediatric population. The numbers above equates to about 6,000 babies each year in Australia. Admittedly all of these are not severe enough to require the prescription of amino-acid based forumulas;

Paediatricians and GPs are perfectly capable of diagnosing and managing milk protein intolerance in babies. It is a simple series of questions. And they have done so perfectly well up until now.

There are simply not enough specialists to see or "consult" with the number of families requiring the forumla. For instance, there are approximately 35 paediatric gastroenterologists in the country, most of whom have lengthy waiting lists (through both the public and private systems), or closed books. In WA the waiting list to see a paed gastro is approx 2 years. Most children have grown out of the condition that sees them require these formulas by 12 mths old.

As the prevalence of allergy grows in the community and the awareness of gastro-intestinal issues in the paediatric population grows among GPs and paeds, its hard not to see this as a cost saving measure.

Consider writing to:

The Secretary
Pharmaceutical Benefits Advisory Committee
GPO Box 9848
Canberra ACT 2601

The Hon Tanya Plibersek
Minister for Health and Ageing
PO Box 6022
Parliament House
CANBERRA ACT 2600
Minister.Plibersek@health.gov.au

The Hon Peter Dutton MP
Shadow Minister for Health
PO Box 6022
Parliament House
CANBERRA ACT 2600
Peter.Dutton.MP@aph.gov.au

Recent signatures

    News

    1. Thanks - only a few hours to go!! Please share.

      Thanks to everyone who has signed this petition. Please share it on facebook and remind friends to sign it. We're closing this petition tonight. Every last signature counts. Thanks again.

    2. Prescription baby formula petition closing soon!

      While over 600 have signed this petition, not as many have signed this one to the Minister for Health who is more likely swayed by public opinion!! We've only got a week to go. Share this with as many of your friends and family as you can! Thanks so much for your support and wonderful messages so far.

    3. Reached 500 signatures
    4. 350 signatures already!

      Don't forget to sign the one to the Minister for Health too. Link below

    5. Over 250 signatures already!

      Thanks so much everyone. Don't forget to sign the petition to the Minister for Health too if you haven't already. It's here:
      http://www.change.org/petitions/minister-for-health-and-ageing-reinstate-amino-acid-based-formula-prescriptions-for-children
      Thanks so much!

      Jo Matthews
      RISA President

    6. Reached 250 signatures
    7. Thanks for all your wonderful support and comments guys.

      Please remember that your GPs and paeds still can prescribe these formulas so long as they are in consultation with a specialist. If your GP or paed is in any doubt (and its sounding like lots are) our letter from the PBAC is attached at the link below. Go and download it and take it to your appointment so they can feel more comfortable about prescribing. We still need to petition BUT in the mean time it should still be possible to get access to food for your kids.

    8. Reached 100 signatures

    Supporters

    Reasons for signing

    • Lisa Bradley AUSTRALIA
      • about 2 years ago

      It is so important that a mother can feed their baby what is best for them. And that they can do it easily.

      REPORT THIS COMMENT:
    • kristie smith DONNYBROOK, AUSTRALIA
      • about 2 years ago

      We are in WA, it's hard enough just getting help with reflux!

      REPORT THIS COMMENT:
    • Michelle Cole PERTH, AUSTRALIA
      • about 2 years ago

      We are currently waiting to see a pediatrician for my 4 months old who has had diarrhea and colic since birth. Suspecting lactose intollerence and milk protein allergy and reflux.

      REPORT THIS COMMENT:
    • Bethanie Furey JANE BROOK, AUSTRALIA
      • about 2 years ago

      my daughter doesn't have a diagnosed CMPI but she can't tolerate any other formula, including soy. she's tried elecare and it worked well. i wish we'd be able to get it as she is very underweight and was thriving on this formula but i am unable to get it anymore.

      REPORT THIS COMMENT:
    • Amanda Johnson PALMERSTON, AUSTRALIA
      • about 2 years ago

      My son has cows milk and soy protein intolerance, I want to support other families.

      REPORT THIS COMMENT:

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