Nebraska Legislature / Nebraska Hospitals : Monitor children in hospitals using vital signs monitors
  • Petitioned Nebraska Legislature / Nebraska Hospitals

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Nebraska Legislature / Nebraska Hospitals

Nebraska Legislature / Nebraska Hospitals : Monitor children in hospitals using vital signs monitors

    1. Janine Stearns-Petracek
    2. Petition by

      Janine Stearns-Petracek

      Lincoln, NE

My daughter Savannah was a special needs child who had a seizure disorder and was admitted to a hospital for observation. She was not hooked to any monitors and had a febrile seizure that resulted in a episode where her oxygen level fell to a serious low level and caused a hypoxic injury to her brain in which resulted in death. Had she had this 25 dollar probe on her it would of showed a drop in her oxygen saturation level and a nurse would of entered room and they would of intervened given her medicine to stop the seizure and administered oxygen that would of kept her from a lack of oxygen injury. My daughter was 14 and totally dependent on care and monitoring by the nurses. since the recent weeks I have been told numerous times the nurses did not know what her baseline was. I am asking a tool be developed that helps protect the child and if the answer is yes to more than 2 of the questions a vital sign monitor be applied to observe the child totally. This could of saved my daughters life... July 15th,  would be Savannah's birthday she would of been 15 years old I ask that you turn on your front porch light in awareness that no child ever be left behind in medical monitoriing  The Savannahs Light Law Lighting the way to good care for the medical complex children .Please sign my petition and help a child who cannot help themselves.... Be their voice....I am also asking our Nebraska Law Makers to review the law in which pertains to Nebraska and that if a child is born with a birth injury and nebraska law makers have devalulized the child by allowing doctors to give a special needs child a very low life expectancy and after the child has reached that low life expectancy , if the child has bad care resulting in another injury or even death you cannot seek a monatary settlement as the child was already devalued and there is no way to measure the result of further damage. .... I am seeking to change the way the law is written as it does not protect special needs children or the elderly. In Nebraska after the age of 74.5 years they have reached their quality life expectancy according to the current law in Nebraska.. It is applauling if we continue to move forward with managed health care.

To:
Nebraska Legislature / Nebraska Hospitals
Monitor children in hospitals using vital signs monitors

Sincerely,
[Your name]

Recent signatures

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    1. Reached 100 signatures

    Supporters

    Reasons for signing

    • Monti Starkey HASTINGS, NE
      • 10 months ago

      I have a one on one care daughter. She would have died in a facility because she needs to be monitored closely. This was a senseless death and I feel for the family and the nurse who was on duty. A life is a life no matter what the doctors say the expectancy is.

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    • Juliana Bliuvas-Eaken SANTA ROSA, CA
      • about 1 year ago

      I recently became an Angel mom to my son Nicholas super bat spiderman who had a long complex medical list, including cancer, Bone Marrow failure and Mitochondrial to name a few. Our trips to the hospital were like a revolving door and became more critical as time passed. After being released from the hospital within 2 and no more than 6 weeks would pass and we were back in. As my son's health became more concerning I STRONGLY advocated that he remain on monitors which was met with objections. I was often informed it wasn't advisable to monitor the monitor. However I had good reason, the monitors alerted me to blood pressure issues that feel on deaf ears until my son went into renal failure. They also alerted me to heart issues that also feel on deaf ears until my son had a true V-Tach episode, QT Prolongation Torssade. I am a strong advocate for monitoring our complex special needs children. I also strongly believe the laws regarding filing malpractice need to change especially in the event of the child passing. Apparently some states allow 1 year from the death others are 6 months. The last thing I wanted to think about when my son passed away 01/03/13 was filing a law suit. Believing I supposedly had 1 year still really wasn't long enough, but just about the 6 month I was informed California has strict guidelines an only 6 months. This just ripped at my heart so badly as filling a suite wasn't about becoming rich it was about mistakes, after mistakes an being met with opposition and being told by one of my son's doctors it was Nicholas' dumb luck he got cancer. He also informed me that i needed to stop looking for a genetic problem as I have 3 healthy children and perhaps I need to see a shrink. Oh the list goes on as did the over 6 year journey and having to leave my other children to go across the united states and stay there for over 4 years because my son actually did have a genetic disease plus Bone Marrow failure. Because I couldn't trust the doctors in our home state my son and I were separated from my other children his brothers for over 4 years. Nicholas always asked me to promise him, that someday I would take him back to California, I did but not until his passing. He also wanted me to make sure that bad doctor didn't do other children and mommy's what he had with us. At this point that may not be an option! He also wanted me to help children not be in the hospital so much and be able to do more fun things. I pray everyday that God will lead me in the direction to help other parents become stronger advocates for their children and also become more involved and comfortable with hands on in the hospital so they may be able to get out of a hospital sooner. I hope and pray for this change as even if they didn't know her base line the monitors would have alerted them to a problem. Rest In Peace Savannah

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    • Lynette Newton CRETE, NE
      • about 1 year ago

      Every human being deserves the best care possible. No one deserves to have "substandard" care...especially when it results in possible death or injury. If there are ways to protect patients from injury or death, then those means should be utilized. EVERY life matters.

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    • Marilyn Harker LINCOLN, NE
      • about 1 year ago

      Quality of life should not have a number place on it.

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    • Diane Archer GRAND ISLAND, NE
      • about 1 year ago

      She was my Great niece. And her life was important to all of our family. She will be very much missed.

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