• Petitioned Mass Health of Massachusetts

This petition was delivered to:

Mass Health of Massachusetts

STOP APARTHEID MEDICINE IN MASSACHUSETTS!

    1. Petition by

      R D

      Amherst, MA

  1.  
  2.   
December 2012

Victory

From Rev. Julianna Donofrio: A small group of participants made a great impact in both supporting my energies of self advocacy and by being a container for transformation. I received insurance coverage from Neighborhood HEalth CAre Mass Health Standard for the PET scan, transportation services and tests that I required. My health is greatly improved and lab reports are showing a body which is in balance. thank you for this forum. I am deeply grateful to those who supported me.

Update: This week a friend told me to look into changing my BMC plan for another. Upon researching this and talking with Mass Health Connector, I found I could change plans and therefore get the doctors I need. I was not aware of this and neither did BMC Health Net let me know that it was an option. But the fact remains it is an easy process and not restricted to limits. When the student is ready the teacher appears!

It will entail some extra work to arrange rides from Amherst to Boston through Mass Health's available transportation service non  the less, so good to report that some goals have been met. I await hearing from my senator's office about returning to Commonwealth Care. Again thanks to all, Rev. Julianna

Update; I want to thank the many healthcare employees and public servants, legal advisors,  friends and colleagues who have been working to the best of their ability, to assist me to get the best possible outcome for my needs. These individuals have answered my long phone calls; listened with patience and undestanding; given me encouragment and are advocating for the changes I seek. Amends for any short temper experiences they may have encountered, I am truely blessed to know that they are putting in countless hours to help me and many many others. They come from the Hospital Systems; the political systems and legal supports and many other places. Blessing on you all..   Rev. Julianna

 

Massachusetts is often spoken of as having the best hospitals in the world, especially in Boston, it's capital. Mass Health is the name of Medicaid in Massachusetts and though I have been diagnosed with both cancer of the uterine lining and non small cell lung cancer with metastases to bone and liver, I am in very good health over all for a woman of 63 years and yet, have had reasonable prior authorizations refused to receive the premier medical care that others with money to spare get when they come from all around the world to Massachusetts for treatment, as a matter of routine. This includes the prestigious and well-advertised Dana Faber Cancer center, which takes Mass Health but not without a prior authorization. One is destined it seems to prove oneself worthy of advanced cancer treatment.

It also includes the famous Beth-Israel/Deaconess Medical Center's outstanding gynecologic oncology department along with its best physicians, of which I chose a team of two, which are well educated in cancer research and both are on the list of covered providers along with the hospital to receive Mass Health payment, but Mass Health denied me access to them stating I had to go to Boston Medical Center which does not have the same caliber program of treatment.

Also due to an apparent misdiagnosis in the original and only biopsy for the uterine cancer, possibly life saving treatment for the lung and bone cancer was delayed for at least 3 mos, as I was not given the corrected diagnosis as soon as the probable error was discovered. I did not get it until an Emergency Room visit - and then mostly by chance.

Mass Health asks customers to choose a provider to dispense healthcare. Mine is Boston Medical Center Health Network one of the few that is accepted in the Western part of the state where I live. Because I had worked, I had this coverage under their subsidized Commonwealth Care Plan from 2009 to Feb 17, 2012 until an arbitrary decision downsized me to coverage under Mass Health Essential, a very limited plan. This happened just as cancer treatment costs were beginning to rise. It took Health Law Advocates of MA. to get me back to coverage under Mass Health Standard, considered the gold, but still not as comprehensive as Commonwealth Care. Little did I know that I was going to be mainlined for treatment to the Boston Medical Center; left without choice, and would have to sacrifice quality and advanced care in order to cover this medical center's growing fiscal deficit.

Please tell Mass Health to give me and all cancer patients equal access to the quality health-care our state is known for.

Recent signatures

    News

    1. The tide is turning and I am finally getting stellar medical care

      R D
      by R D
      Petition Organizer

      So sorry this update is so long in coming. Lots of movement including my self to a new apartment but still in Amherst.. Recent scans now two months old showed lots of regression and no advancement of the cancer. Very good and generally I am feeling well. Best news is the new provider Neighborhood health plan has approved PET scan scheduled for 10/22/12 for re-staging. Also have a sharp and supportive new Primary Care Physician.

      This is good because the drug crizotinib was strongly affecting my lung health and has caused some very difficult to deal with leg and arm swelling so as of 10/6/12 I am off of it temporarily. We will proceed with next steps when PET results are in...

      I am in good spirits and enjoying my life especially my granddaughter who is seven years old. I commissioned to paint me a picture for my new digs and she did a great job. She also just learned how to read...Life is good and I am grateful.

      blessings for your support
      Julianna

    2. Reached 25 signatures

    Supporters

    Reasons for signing

    • May Tulin SAN FRANCISCO, CA
      • over 2 years ago

      Born and raised in Mass, this is important to me even x-country. Thanks.

      REPORT THIS COMMENT:
    • Deevea Johnson HOUSTON, TX
      • over 2 years ago

      I am signing this because I know, if God ever spoke to me, (he hasn't), that he would say that medicine should not be tied to the Almighty Dollar--this effects people of all ages, races, sexes--we all need good medical care and should be able to get it without jumping through hoops or dying in the process of trying to obtain it.. I am a retired nursing home administrator and have seen many cases where my residents were harmed by the system and there was nothing I or anyone else could do--you can only beg for so many from your local drugstores, etc. I know Rev. Julianna Donofrio personally and feel equal access to health care saves lives and there are countless numbers of people who have died waiting for it.

      REPORT THIS COMMENT:
    • Mary Rose Kaczorowski BERKELEY, CA
      • over 2 years ago

      Equal access to health care at critical stages of treatment does save lives. This is a personal issue for me- because it is happening to people I know and love. Mass Health can give Rev. Julianna Donofrio and all cancer patients equal access to the quality health-care MASS. is known for.

      REPORT THIS COMMENT:
    • Mrs Judith A LaBonte WORCESTER, MA
      • over 2 years ago

      Because i personally know the person whose petition this is and i know that this has all happened as she has presented it - i know her to be a person who strives for the highest ideals as an ordained Minister and has done everything to avoid this becoming so critical as to require doing this. Mrs. j. a. LaBonte

      REPORT THIS COMMENT:

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