Blue Cross Blue Shield: Don't Take Away My Meds to Prove I'm Sick
  • Petitioned Karen Atwood

This petition was delivered to:

BCBSIL
Karen Atwood
Blue Cross and Blue Shield of Illinois
President
BCBSIL
Stephen Ondra

Blue Cross Blue Shield: Don't Take Away My Meds to Prove I'm Sick

    1. Malea Wilson
    2. Petition by

      Malea Wilson

      Round Lake, IL

  1.  
  2.   
April 2014

Victory

Malea Wilson: BCBSIL changed the policy to requiring levels to be below 700 (low end of normal). This is a HUGE victory!

I was diagnosed with CVID nearly 2 1/2 years ago. I get a medication delivered via a pump once or twice a week to help give me antibodies to fight infection. While the treatment is inconvenient, it does help me to function normally as a middle school teacher. When on the medication, I have energy, drive, and am willing to take on a lot. I also get sick less often when on treatment. 

Without treatment, my numbers slowly drop and my body stops responding to illness and is overtaken by it. My moods change, my memory is affected, I get a lot of symptoms of arthritis, and I cannot sleep (even while exhausted).

With this new policy by BCBSIL (an insurance company), BCBSIL is allowed to determine who receives treatment instead of doctors who actually see the patients. Very few people who have CVID now qualify based on the new numbers (which would require the patients to be near-death and gravely ill).

According to the American Academy of Allergy, Asthma, and Immunology, stopping a patient from treatment on a difinitively diagnosed patient to run a trial for four months is medical malpractice. Furthermore, the AAAAI also states that IGG trough levels (the numbers that BCBSIL goes off of) fluctuate and should not be used as the sole determination for diagnosis. There are many things that need to be taken into consideration and no two CVID patients are alike. Some people have "normal" trough levels, others are incredibly low. Both groups respond well to IVIG/SUBQ treatment. I meet every other condition/category. 

That said, it is important for people like me to receive the medication that I require to keep me healthy. If caught early and if treated, I can live a normal life span. An insurance company cannot deny a diabetic insulin, so why should an insurance company be allowed to deny those with an immune deficiency life sustaining treatment? It is appalling. 

Once diagnosed, it is the job of the insurance company to provide treatment. End of story. No one should have to re-qualify for coverage by going off of treatment for 4 months and retesting (meaning that I will only receive treatment 8 mos out of the year IF I qualify after the 4 mos of NO treatment). It should be my doctor's decision, not BCBSIL's decision. Please sign this petition to help get this policy changed. 

To:
Karen Atwood, BCBSIL
President, Blue Cross and Blue Shield of Illinois
Stephen Ondra, BCBSIL
Change Policy #RX504.003. It is medical malpractice to deny a patient life sustaining treatment to wait and see just how low levels can get before re-qualifying for treatment. Please get BCBSIL to change this policy.

Sincerely,
[Your name]

Recent signatures

    News

    1. Reached 100,000 signatures
    2. Approval

      M W
      by M W
      Petition Organizer

      The policy still has not been changed, but it is under review. Because it is under review, I was able to get approval for the next year. However, the same problem could arise for next year... and not everyone has been approved. Please help us continue to spread this message so BCBSIL hears that a policy change is needed. Thank you so much for all of the support!

    3. Reached 30,000 signatures
    4. SICK

      M W
      by M W
      Petition Organizer

      Well, I have been dealing with a nasty upper respiratory infection all week. I MAY be digging out at this point. I have gotten wonderful support from a couple of drug companies, the Illinois Insurance Commissioner's Office, and the Immune Deficiency Foundation via email. Here's hoping we get BCBSIL's attention!

    5. Reached 250 signatures

    Supporters

    Reasons for signing

    • dawn bankston ORLAND, CA
      • 5 months ago

      the doctor you choose should be the only one to diagnose and treat

      your disease. that's why they have all the education. a life threatening disease is nothing to fool around with leaving important medical decisions up to insurance companies. risking human life for weal

      th is immoral and evil.

      REPORT THIS COMMENT:
    • Lois Crudden WARWICK
      • 5 months ago

      This is important to me because I am having almost the same problem with Medicare. They will not pay for my monthly infusions unless my IGG levels go below 600. In order to stay healthy I must have my IGG levels at 1,000. I ended up in the hospital with pneumonia. I have the same CIVD. I don't know why the government thinks it knows better than the doctors. I have never seen their degrees

      REPORT THIS COMMENT:
    • Donna Crane SAN TAN VALLEY, AZ
      • 6 months ago

      My 42 years old son with a pre-existing condition of pancreatitis had been in constant pain for the last 3 years. Thanks to Obamacare, he now has a Primary Care doctor, a Gastroenterologist Specialist, has had a CT scan which identified pancreatic cysts, and is scheduled for an outpatient procedure next week to, hopefully, help his unrelenting pain. All this amazing stuff has happened in the 2 months since he got coverage. So far, working just like my Medicare, which is great.

      REPORT THIS COMMENT:
    • Donna Crane SAN TAN VALLEY, AZ
      • 6 months ago

      Glad to know you won this fight....happy to help....

      REPORT THIS COMMENT:
    • stephanie wilson W. CHICAGO, IL
      • 6 months ago

      great to hear of your victory karen! may God be w/ you.

      REPORT THIS COMMENT:

    Develop your own tools to win.

    Use the Change.org API to develop your own organizing tools. Find out how to get started.