• Petitioned Julie Hamos, Director of the IL Dept of Healthcare and Family Services

This petition was delivered to:

Director of the IL Dept of Healthcare and Family Services
Julie Hamos, Director of the IL Dept of Healthcare and Family Services
IL State Representative
Patti Bellock
IL State Senator
Heather Steans
IL State Representative
Sara Feigenholtz
IL State Senator
Dale Righter

Not cut the Medicaid waiver for medically fragile/tech dependent children

    1. Susan M.
    2. Petition by

      Susan M.

      Chicago, IL

Without this program, up to 500 children with the highest levels of medical complexity in Illinois will lose their home nursing care and other additional medically necessary services, forcing most of them to live permanently in hospitals and skilled nursing facilities. This program provides these children with home nursing care, at 1/3 the cost of permanent hospitalization.

Virtually every state in the US has a program to assist children who are extraordinarily medically complex and have catastrophic medical expenses, regardless of their family income. Many of these children are on ventilators, have IV lines, or have other medical technologies. Many have private insurance, but their insurance policies do not cover private duty nursing. This program provides them with dignity and independence, allowing them to live at home with their families by providing them with home nursing care and other Medicaid benefits.

If this program is eliminated, many of these children will only be eligible for Medicaid if they live in a hospital or skilled nursing facility. If they live at home, they will no longer be eligible for Medicaid, even though it is less expensive to care for them at home. Families will be forced to make tough decisions, such as choosing to permanently hospitalize their children, quitting their jobs to become financially eligible for Medicaid, or giving up custody of their children. No family should ever be forced to make these decisions.

Please encourage your Illinois state senators and representatives to treat these children and their families with dignity by continuing the Illinois Medicaid waiver for children who are medically fragile and technology dependent.

Visit http://www.SaveMFTDWaiver.com for more information.

Recent signatures


    1. Reached 7,000 signatures
    2. IL House and Senate Pass SB 2840

      Susan M.
      Petition Organizer

      This bill unfortunately places an income cap on the MFTD Waiver and creates exorbitant cost-sharing payments. Hundreds of children will be hospitalized as a result of this bill, and the state will lose millions of dollars paying for them. Please visit our website to find out more ways you can help.

    3. Urgent Action Needed!

      Susan M.
      Petition Organizer

      URGENT!! Tomorrow 5/16/2012 the Illinois House plans to vote on the SMART Act, which contains cuts to the state Medicaid program. These cuts include limiting eligibility for the MFTD Waiver to families earning $94,450 or less (500% of the federal poverty level). The proposed 500% FPL cap will force many families to hospitalize their children at THREE TIMES the cost of home care.

      Please call the following people:
      Mike Madigan, Speaker of the House (217) 782-5350
      Tom Cross, House Republican Leader (217)782-1331
      Sara Feigenholtz (217) 782-8062
      Patti Bellock (217) 782-1448
      Your Representative

      More info at http://www.SaveMFTDWaiver.com

    4. Reached 5,000 signatures
    5. New website!

      Susan M.
      Petition Organizer

      The waiver families have developed a new website for our cause. Please check it out We ARE making an impact!

    6. Reached 1,500 signatures


    Reasons for signing

      • over 1 year ago

      These children are people too, and deserves the utmost medical care just as much as the next individual. If the family choose to take care of them in their homes it should be granted with the help of health officials and whoever else in charge! Where are people morals today?

    • Sandra Budwash TINLEY PARK, IL
      • almost 2 years ago

      Families need this help so they can continue their employment to support their family & it is a better way to help the child by keeping them at home.

    • Ruth Gibson TINLEY PARK, IL
      • almost 2 years ago

      Ruth E Gibson

    • Rebecca Schiller LIBERTYVILLE, IL
      • almost 2 years ago

      I think it is unethical to deny these children coverage to be cared for at home. As a medical professional, going against this waiver would go against the ethical principals I have been taught to follow. Putting an income cap on this program could deny 5% of people coverage, and who's to say some people are deserving of coverage over others. I feel we are sending the message to parents that they should work less and make less money in order to properly care for their children. Shouldn't we promote hard-work and taking responsibility for caring for children!? I think it's great these parents want to care for their children at home. It would be inhumane to take these children out of their homes. Besides, more than enough money should have been set aside to cover this program (program estimated cost per year is $7.5 million) from increasing income taxes (estimated to be $7 billion annually). Making cuts to this program is a selfish gain at the cost of a vulnerable population.

    • heather Burbank BURBANK, IL
      • almost 2 years ago

      My cousin Sydney Peterson is effect by this.


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