Help My Autistic Son Get a Life-Saving Heart Transplant
  • Petitioning Penn Medicine at Radnor

This petition will be delivered to:

Heart Transplant Committee/Cardiology Department
Penn Medicine at Radnor
Pennsylvania Governor
President of the United States
Pennsylvania State Senate
Pennsylvania State House
U.S. Senate
U.S. House of Representatives

Help My Autistic Son Get a Life-Saving Heart Transplant

    1. Karen Corby
    2. Petition by

      Karen Corby

      Pottsville, PA

My son Paul was denied placement on the heart transplant list because of his mental disability. The doctor was more interested in the fact that he could not name all his medications (he takes 19 at the present time) and the Princess Peach doll he carries for comfort (he now carries a Princess Daisy as well), than the fact that he has never smoked or drank alcohol. Where will the discrimination end?


They never performed any tests to evaluate Paul's heart condition or mental status. He was denied placement on the list based solely on records from his cardiologist. How can they turn him down without performing a full evaluation?

Paul is a wonderful man that has taken his physical illness in stride. He has written three self-published novels geared toward preteens. He is now working on the fourth. This is really the only thing that keeps his mind off of his mortality. How do I explain to him why he can't have a new heart?

Can you help us tell the Transplant Committee they are wrong and he deserves the chance to grow old and watch his two young nephews grow up.

 

Please sign these petitions as well:

https://www.change.org/p/nintendo-don-t-let-princess-peach-get-kidnapped-in-any-more-games

https://www.change.org/p/make-hospital-psychiatric-programs-illegal-for-autistic-people-and-physically-disabled-people

Recent signatures

    News

    1. Still need support

      Karen Corby
      Petition Organizer

      To all:
      We still need support for Paul's Law. If you have not done so already, please take a moment to sign this petition as well.

      http://www.pahouse.com/Sabatina/pauls_law_petition.asp

    2. Guestbook

      Karen Corby
      Petition Organizer

      Paul has installed a guestbook on his site. You can sign it here:

      http://www.isaactherunner.com/guestbook/

    3. Help my son! Please!!!

      Karen Corby
      Petition Organizer

      Another threat to Paul's life might happen again, so please sign this petition:

      https://www.change.org/p/nintendo-don-t-let-princess-peach-get-kidnapped-in-any-more-games

    4. More illustrations

      Karen Corby
      Petition Organizer

      Illustrations are available here for book 3:

      http://isaac-the-runner.deviantart.com/

    5. Isaac the Runner 3

      Karen Corby
      Petition Organizer

      Isaac the Runner 3 is now available at Amazon.com

    6. Isaac the Runner 3

      Karen Corby
      Petition Organizer

      Isaac the Runner 3 has finally been completed and is in the printing stage. Should be about two more weeks and it will be available for purchase on amazon.com

    7. Isaac the Runner website

      Karen Corby
      Petition Organizer

      Please feel free to join us at www.isaactherunner.com
      If you would like to join and participate in the forums and don't know the answers to the security questions, feel free to email Paul at empblmmmsd@yahoo.com

    8. Paul's Law

      Karen Corby
      Petition Organizer

      The official announcement/press conference is scheduled for June 16 in Harrisburg. Fingers crossed that this bill (HB 1474) passes quickly.

    9. Isaac the Runner 1

      Karen Corby
      Petition Organizer

      Isaac the Runner 1 is now back in stock at Amazon.com.

    10. Fingers Crossed

      Karen Corby
      Petition Organizer

      Please visit State Representative John Sabatina's home page and ask Congress to pass "Paul's Law."

      http://articles.philly.com/2013-11-24/news/44416148_1_karen-corby-transplant-list-transplant-programur latest development here.

    11. New Book

      Karen Corby
      Petition Organizer

      Isaac the Runner 3 is complete. All we need to do is type, edit and print. Stay tuned.

    12. New Illustrations

      Karen Corby
      Petition Organizer

      Paul has added the illustrations from book 2 on devianart.com To view them: http://isaac-the-runner.deviantart.com

    13. Isaac The Runner 2

      Karen Corby
      Petition Organizer

      Isaac The Runner 2 is finally complete and available for purchase on amazon.com. Great job, Paul. We are so proud of you.

    14. New Picture

      Karen Corby
      Petition Organizer

      This new picture better reflects who my son has become. He is no longer the smiling man he once was.

    15. Still Fighting

      Karen Corby
      Petition Organizer

      It is obvious to us now that this petition has not helped us thus far. I took notice that the only time change.org is willing to help is when your petition is getting national media attention. That is very sad. I am so tired of the excuses why my son is being denied but we will keep on fighting. 2013 is a new year and we plan on consulting with a few more hospitals. I just hope my beautiful son does not continue to question his self-worth. How many times can he be told no before he chooses to give up.

    16. Illustrations

      Karen Corby
      Petition Organizer

      Paul has created an account on DeviantArt. To view illustrations, go here:

      http://isaac-the-runner.deviantart.com/

      Isaac-the-Runner on deviantART

      Art - community of artists and those devoted to art. Digital art, skin art, themes, wallpaper art, traditional art, photography, poetry / prose. Art prints.

    17. We will never give up.

      Karen Corby
      Petition Organizer

      Even if the Mayo Clinic tells us no for the same reason, we will never give up. Paul's life is worth saving and he means the world to so many people. We will keep on fighting for him and the rights of all people with disabilities!

    18. Mayo Clinic

      Karen Corby
      Petition Organizer

      We are heading to the Mayo Clinic in October for an evaluation. We are asking all of our wonderful supporters to keep your fingers crossed once again that they put Paul on the transplant recipient list.

    19. Keep Your Fingers Crossed

      Karen Corby
      Petition Organizer

      We have an appointment next month at the Mayo Clinic. We are asking all of our friends to keep your fingers crossed that they will put Paul on the transplant list.

    20. Isaac the Runner T-Shirts at Zazzle.com

      Karen Corby
      Petition Organizer

      To buy an Isaac the Runner T-Shirt, visit here: http://www.zazzle.com/isaac+the+runner+gifts

    21. Paul's Book

      Karen Corby
      Petition Organizer

      Isaac The Runner is now back in stock on amazon.com

    22. Reached 200,000 signatures

    Supporters

    Reasons for signing

    • Shari Champlin SHEPHERD, MI
      • about 9 hours ago

      i believe children should always be made our first priority!

      REPORT THIS COMMENT:
    • jennifer jones BETHLEHEM, PA
      • about 11 hours ago

      My son has autism and this really hits home for me. not to mention its just wrong

      REPORT THIS COMMENT:
    • Vassana P. BANGKOK, THAILAND
      • about 13 hours ago

      I also have an asperger son

      REPORT THIS COMMENT:
    • Derek Bencze LONDONDERRY, NH
      • about 15 hours ago

      He needs a transplant!

      REPORT THIS COMMENT:
    • cate smith BURLINGTON, NJ
      • about 20 hours ago

      Discrimination because of intelligence is awful. What if it was your child your family. haven' you a heart.

      REPORT THIS COMMENT:

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