Help My Autistic Son Get a Life-Saving Heart Transplant
  • Petitioning Penn Medicine at Radnor

This petition will be delivered to:

Heart Transplant Committee/Cardiology Department
Penn Medicine at Radnor
Pennsylvania Governor
President of the United States
Pennsylvania State Senate
Pennsylvania State House
U.S. Senate
U.S. House of Representatives

Help My Autistic Son Get a Life-Saving Heart Transplant

    1. Karen Corby
    2. Petition by

      Karen Corby

      Pottsville, PA

My son Paul was denied placement on the heart transplant list because of his mental disability. The doctor was more interested in the fact that he could not name all his medications (he takes 19 at the present time) and the Princess Peach doll he carries for comfort (he now carries a Princess Daisy as well), than the fact that he has never smoked or drank alcohol. Where will the discrimination end?


They never performed any tests to evaluate Paul's heart condition or mental status. He was denied placement on the list based solely on records from his cardiologist. How can they turn him down without performing a full evaluation?

Paul is a wonderful man that has taken his physical illness in stride. He has written three self-published novels geared toward preteens. He is now working on the fourth. This is really the only thing that keeps his mind off of his mortality. How do I explain to him why he can't have a new heart?

Can you help us tell the Transplant Committee they are wrong and he deserves the chance to grow old and watch his two young nephews grow up.

 

Please sign these petitions as well:

https://www.change.org/p/nintendo-don-t-let-princess-peach-get-kidnapped-in-any-more-games

https://www.change.org/p/make-hospital-psychiatric-programs-illegal-for-autistic-people-and-physically-disabled-people

Recent signatures

    News

    1. Thanks for your support

      Karen Corby
      Petition Organizer

      To All:
      Thank you for your continued support for Paul. He has been getting some unfavorable email concerning the other petitions he has started on his own. If you do not agree with him, please just don't sign the petitions. DO NOT send him an email or make an inappropriate comment. You are just making him feel worse about himself than he already does.
      Thank you again for your support.

    2. Please sign this in case it happens again.

      Karen Corby
      Petition Organizer

      There's a video game character that Paul has strong feelings for. She gets kidnapped in a lot of games and it bothers him so much that he wants to sue the company who makes the games. It is very upsetting to him and thousands of others who love to play these games. I want to make him feel safe. That is why I am promoting this petition that he feels so strongly about. To prevent this from happening, please sign this petition:

      https://www.change.org/p/nintendo-don-t-let-princess-peach-get-kidnapped-in-any-more-games

      Nintendo: Don't let Princess Peach get kidnapped in any more games.

      I'm autistic, and everytime I have an outburst outside, my neighbors call the cops on me. I act out even more when I see my worst neighbor. He calls...

    3. Still need support

      Karen Corby
      Petition Organizer

      To all:
      We still need support for Paul's Law. If you have not done so already, please take a moment to sign this petition as well.

      http://www.pahouse.com/Sabatina/pauls_law_petition.asp

    4. Guestbook

      Karen Corby
      Petition Organizer

      Paul has installed a guestbook on his site. You can sign it here:

      http://www.isaactherunner.com/guestbook/

    5. Help my son! Please!!!

      Karen Corby
      Petition Organizer

      Another threat to Paul's life might happen again, so please sign this petition:

      https://www.change.org/p/nintendo-don-t-let-princess-peach-get-kidnapped-in-any-more-games

    6. More illustrations

      Karen Corby
      Petition Organizer

      Illustrations are available here for book 3:

      http://isaac-the-runner.deviantart.com/

    7. Isaac the Runner 3

      Karen Corby
      Petition Organizer

      Isaac the Runner 3 is now available at Amazon.com

    8. Isaac the Runner 3

      Karen Corby
      Petition Organizer

      Isaac the Runner 3 has finally been completed and is in the printing stage. Should be about two more weeks and it will be available for purchase on amazon.com

    9. Isaac the Runner website

      Karen Corby
      Petition Organizer

      Please feel free to join us at www.isaactherunner.com
      If you would like to join and participate in the forums and don't know the answers to the security questions, feel free to email Paul at empblmmmsd@yahoo.com

    10. Paul's Law

      Karen Corby
      Petition Organizer

      The official announcement/press conference is scheduled for June 16 in Harrisburg. Fingers crossed that this bill (HB 1474) passes quickly.

    11. Isaac the Runner 1

      Karen Corby
      Petition Organizer

      Isaac the Runner 1 is now back in stock at Amazon.com.

    12. Fingers Crossed

      Karen Corby
      Petition Organizer

      Please visit State Representative John Sabatina's home page and ask Congress to pass "Paul's Law."

      http://articles.philly.com/2013-11-24/news/44416148_1_karen-corby-transplant-list-transplant-programur latest development here.

    13. New Book

      Karen Corby
      Petition Organizer

      Isaac the Runner 3 is complete. All we need to do is type, edit and print. Stay tuned.

    14. New Illustrations

      Karen Corby
      Petition Organizer

      Paul has added the illustrations from book 2 on devianart.com To view them: http://isaac-the-runner.deviantart.com

    15. Isaac The Runner 2

      Karen Corby
      Petition Organizer

      Isaac The Runner 2 is finally complete and available for purchase on amazon.com. Great job, Paul. We are so proud of you.

    16. New Picture

      Karen Corby
      Petition Organizer

      This new picture better reflects who my son has become. He is no longer the smiling man he once was.

    17. Still Fighting

      Karen Corby
      Petition Organizer

      It is obvious to us now that this petition has not helped us thus far. I took notice that the only time change.org is willing to help is when your petition is getting national media attention. That is very sad. I am so tired of the excuses why my son is being denied but we will keep on fighting. 2013 is a new year and we plan on consulting with a few more hospitals. I just hope my beautiful son does not continue to question his self-worth. How many times can he be told no before he chooses to give up.

    18. Illustrations

      Karen Corby
      Petition Organizer

      Paul has created an account on DeviantArt. To view illustrations, go here:

      http://isaac-the-runner.deviantart.com/

      Isaac-the-Runner on deviantART

      Art - community of artists and those devoted to art. Digital art, skin art, themes, wallpaper art, traditional art, photography, poetry / prose. Art prints.

    19. We will never give up.

      Karen Corby
      Petition Organizer

      Even if the Mayo Clinic tells us no for the same reason, we will never give up. Paul's life is worth saving and he means the world to so many people. We will keep on fighting for him and the rights of all people with disabilities!

    20. Mayo Clinic

      Karen Corby
      Petition Organizer

      We are heading to the Mayo Clinic in October for an evaluation. We are asking all of our wonderful supporters to keep your fingers crossed once again that they put Paul on the transplant recipient list.

    21. Keep Your Fingers Crossed

      Karen Corby
      Petition Organizer

      We have an appointment next month at the Mayo Clinic. We are asking all of our friends to keep your fingers crossed that they will put Paul on the transplant list.

    22. Isaac the Runner T-Shirts at Zazzle.com

      Karen Corby
      Petition Organizer

      To buy an Isaac the Runner T-Shirt, visit here: http://www.zazzle.com/isaac+the+runner+gifts

    Supporters

    Reasons for signing

    • Jefferson Santos CURITIBA, BRAZIL
      • 5 days ago

      I am parent of a child with autism. I believe Paul, as my child, deserve to live. We are Brazilian people, but our quest is the same quest.

      REPORT THIS COMMENT:
    • Emily Brown PETAL, MS
      • 5 days ago

      My brother is autistic and he would take very well care of his self and their are other around to help him.

      REPORT THIS COMMENT:
    • Alexis Crochunis NEW RINGGOLD, PA
      • 6 days ago

      things need to change, let's care for people who need help not turn our backs, good luck paul

      REPORT THIS COMMENT:
    • Teresa Chappell SCHUYLKILL HAVEN, PA
      • 6 days ago

      My boyfriends 42 yr old brother is autistic n has down syndrome as well n he's no more less of a person. He's on of the sweetest men I know and has infectious laugh!! Prays to this family needing help...♡♡♡

      REPORT THIS COMMENT:
    • Savannah Grier WEIMAR, CA
      • 7 days ago

      My nephew is autistic and the thought of him being discriminated in such a way makes me physically sick.

      REPORT THIS COMMENT:

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