Florida Medicaid: Maintain skilled nursing care services for disabled young adults after they turn 21 years of age.
  • Petitioned Carol Schultz

This petition was delivered to:

Medical/Health Care Program Analyst
Carol Schultz
Secretary of Agency for Health Care Administration
Elizabeth Dudek
President of the United States
Florida Governor

Florida Medicaid: Maintain skilled nursing care services for disabled young adults after they turn 21 years of age.

    1. Jordan Stroman
    2. Petition by

      Jordan Stroman

      Orlando, FL

  1.  
  2.   
June 2012

Victory

Florida Medicaid said they will provide this care until she graduates college. Thank you for all of your efforts and support. Your voices were heard!! Praise Jesus. It is by his deep provision that this has come to pass. "21 Disabled" will continue to fight this battle until permanent policy is made to ensure the livelihood of disabled young adults. 'Like' us on facebook to stay involved with our cAUe. https://www.facebook.com/21Disabled

Let Jordan Stroman maintain her essential skilled nursing care services after she turns 21 years of age. 

 

Hello friends,

My name is Jordan Stroman and I am a disabled young adult with a progressive neuromuscular disease.  Because of the severity of my disabilities, I require substantial medical services including skilled nursing care assistance. I am wheelchair dependent, with little use of my arms. I use a breathing machine to assist me 24 hours a day and I have a feeding tube.  I  occasionally experience frightening  choking and aspirating episodes, where I have great difficulty in coughing.  I have been blessed to always have a very skilled nurse with me who can intervene immediately whenever this occurs. 

For 3 years now Florida Medicaid has recognized my need for skilled nursing care.  Medicaid currently provides me with 24 hour care / 6 days a week, and 16 hours on Sundays.  I have used the opportunity and independence that this assistance has afforded me to attend college at the University of Central Florida in Orlando.  My family home is 70 miles away, in Indian Harbour Beach, so I live on campus in a dorm room and my nurses come here to assist me.  My parents come over every Sunday to visit and care for me.  I am completing my junior year at UCF and pursuing a major in digital media. 

I would love for you to visit my web-site at www.21disabled.wordpress.com if you would like more information about me and my campaign.

On June 25 I will be turning twenty-one and, because of my age, Florida Medicaid requires me to be moved into a different program.  This program is called the 'Aged/Disabled Adult Waiver Aging Out Program'. The objective of this program “is intended to ensure the smooth, uninterrupted provision of services necessary for the recipient to maintain the highest practical level of physical, emotional, and psychosocial well being while remaining in the home and community.” 

This program is supposed to take disabled young adults and transition them into a different program with “smooth, uninterrupted services”.  Unfortunately I have been informed that my skilled nursing care services will be decreased to 16 hours a day on June 25.  This loss of care cannot be interpreted as “smooth” or “uninterrupted”.  

The consequences of not having the skilled care that my circumstances require could be life threatening.  Without this assistance, I would also be forced to drop out of college and return home, without the opportunity to finish my degree and graduate. 

I would like to insist that Medicaid honor their written objective for this Aging Out Program.   Medicaid needs to truly offer “uninterrupted services” with the continuation of all approved skilled nursing care services as provided to a recipient prior to their twenty-first birthday. Medicaid services should be based on acuity of care and not be limited by age.   

 

Help me keep my skilled nursing care.

Help me finish college and graduate.

 

 

Recent signatures

    News

    1. Medicaid has agreed to continue to provide Jordan with 24 hour nurse care!

      Jordan Stroman
      Petition Organizer

      They have said they will provide this care until she graduates college. Thank you for all of your efforts and support. Your voices were heard!!
      Praise Jesus. It is by his deep provision that this has come to pass.

      "21 Disabled" will continue to fight this battle until permanent policy is made to ensure the livelihood of disabled young adults. 'Like' us on facebook to stay involved with our cause.

    2. Reached 2,500 signatures

    Supporters

    Reasons for signing

    • Ryan Christianson MINNETONKA, MN
      • over 2 years ago

      21 should not be the end!

      REPORT THIS COMMENT:
    • Alexa d'Angelo TEMPLE TERRACE, FL
      • over 2 years ago

      Because disabled young adults who want to try to live as independently as possible should be able to do so. Care should not stop just because you turn 21. Just because a person turns 21 does not mean that their need of care is any less.

      REPORT THIS COMMENT:
    • Zack Kemmet SANTA MARIA, CA
      • over 2 years ago

      Why not sign this :D

      REPORT THIS COMMENT:
    • Anon Cumar OREM, UT
      • over 2 years ago

      Because I believe that those who require medical care should receive it, regardless of their age.

      REPORT THIS COMMENT:
    • Paige Coley ORLANDO, FL
      • over 2 years ago

      Good luck :)

      REPORT THIS COMMENT:

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