Endocrinologists: Patients with Thyroid Dysfunction Demand Better Care
  • Petitioning International Society of Endocrinology
  • Responded

This petition will be delivered to:

International Society of Endocrinology
Society for Endocrinology
American Thyroid Association
American Board of Internal Medicine
European Society of Endocrinology
See response
American Medical Association- Council Of Medical Education
See response
European Thyroid Association
Austrian Society of Endocrinology and Metabolism
Danish Endocrine Society
Dutch Endocrine Society
German Society for Endocrinology
Hungarian Society of Endocrinology & Metabolism
Italian Society for Endocrinology
General Medical Council
Svenska Endokrinologföreningen
The Canadian Society of Endocrinology and Metabolism
Asia & Oceanic Thyroid Association
Brazilian Endocrinology & Metabolism Society
Society for Behavioral Neuroendocrinology
Association of Program Directors in Endocrinology
Prof Albert Beckers, President
Belgian Endocrine Society/ European Neuroendocrine Association
The Japanese Endocrine Society
The National Health and Medical Research Council of Australia
Puerto Rico: Sociedad Puertorriquena de Endocrinologia y Diabetologia
La Asociacion Mexicana de Tirodes
The Endocrine Society of India
Indian Thyroid Society
Polish Society of Thyroid
Polish Society of Endocrinology
Polish Society of Pediatric Endocrinology
Sociedad Chilena de Endocrinologia y Diabetes
Prof Vicki Clifton, President
The Endocrine Society of Australia
Peruvian Society of Endocrinology
The Endocrine Society of Australia
World Health Organization
Latin American Thyroid Society
The Royal College of Physicians
Chinese Society of Endocrinology
Philippine Society of Endocrinology & Metabolism
Philippine Medical Association

Endocrinologists: Patients with Thyroid Dysfunction Demand Better Care

    1. Thyroid Change™
    2. Petition by

      Thyroid Change™

      Hawthorne, NJ

Translations available: Español, Français, Deutsch, Dansk, Norsk, Svensk, Polski, Suomi, Nederlands, Italiano, Português, Tagalogעברית

Thyroid patients are increasingly aware that there is a deficiency in thyroid knowledge among endocrinologists. As specialists of the endocrine system, the title, endocrinologist, expresses expertise and richness in experience. Despite the promise of this title, we, the patients with thyroid dysfunction, are still suffering. The quality of our lives is diminished due to the difficulty we have finding doctors who are effective in thyroid management. The patient experience seems to demonstrate that there are large numbers of endocrinologists who are unable to diagnose thyroid disorder and/or have outdated knowledge of treatment methods.

Please sign this petition in an effort to increase awareness of this problem and hopefully, effect change. Then, spread the word for others to join us: e-mail, tweet, post this petition to your support groups and Facebook profile. "Like" us on Facebook. "Follow" us on Twitter. We need a large support base to gain the credibility we deserve. Visit ThyroidChange for further resources and information.

The petition calls for the following actions:

1) Doctors must demonstrate proficiency in diagnosis of and treatments in thyroid disorders BEFORE receiving his/her board certification in Endocrinology. This could be a more comprehensive section of the existing board examination that includes the use of testing Free T3, Free T4, Reverse T3, thyroid antibodies along with TSH.  Endocrinologists should also be proficient in the use of thyroid treatment which includes the use of natural dessicated thyroid medication, T3-only medication, T4-only medication, as well as combination therapies.

2) Board-certified endocrinologists who treat thyroid disorder must keep up-to-date on current thyroid disorder treatments. Such treatments should be incorporated into the already established continued medical education (CME) programs. Continuing education in this area should be maintained to keep certification in Endocrinology. It is inexcusable that endocrinologists are treating thyroid patients and not reading current practices in that discipline such as the use of natural thyroid, T3-only medication and T3/T4 combination therapies.

Many patients are speaking out about the inadequacy of T4-only synthetic drugs. Patients on natural thyroid typically express the improvement in the quality of their life. Improvements are also reported by patients using T3/T4 treatments or T3-only, as opposed to synthetic T4-only. However, T4 synthetic drugs are usually the only prescriptions considered. The dosage on the prescription is based on TSH level. Patients report that the TSH level does not necessarily correlate with symptoms. Thus, a patient may have a target TSH level, but still be under-treated. New tests, such as Free T3, Reverse T3 and Free T4, tell a revealing story; however, endocrinologists generally are not utilizing these tests. Instead, they test for Total T4 and Total T3, but these do not quantify what hormones are free and useable within the body.

Patients with thyroid dysfunction complain of difficulty with mood management and lethargy. To remedy this, endocrinologists recommend anti-depressants or refer us to psychiatrists. This is a travesty and an oversight. Research demonstrates an improvement of depression using T3 medication. However, thyroid patients find it challenging to find endocrinologists willing to prescribe Cytomel or natural thyroid, which contain T3. The failure of an endocrinologist to correctly attribute the psychological and systemic symptoms of a thyroid patient to thyroid dysfunction perpetuates the patient's illness. This usually leads to the prescription of a pharmaceutical that may alleviate the reported symptoms, but ignores the root cause; the mismanaged thyroid.

Thyroid dysfunction and ineffective treatment of thyroid dysfunction is also correlated with high cholesterol levels. When a patient has high cholesterol, endocrinologists prescribe dangerous statins when T3 supplementation can lower our cholesterol more safely.

Endocrinologists may be skilled in diabetes and innovative in this sub-specialty, but appear to be lacking the knowledge and expertise in thyroid diagnoses and management.  This is unacceptable. As a result, patients are forced to self-educate, self-treat or worse, receive inadequate treatment and suffer needlessly. Many patients feel failed by the medical community and are turning to online sources and sharing knowledge. One such online source is the method pioneered by Paul Robinson who has created and published a method of administering thyroid hormone, mainly T3, according to circadian rhythm or T3CM. Patients are finding relief with his T3CM method. Paul Robinson is not a doctor, rather, he is a patient who has suffered over twenty years from inadequate thyroid treatment.

This petition is bringing the underground movement created by thyroid patients the mainstream attention that it deserves. This is an international patient revolution, and we demand change. It is inexcusable that patients continually encounter endocrinologists who perpetuate their illnesses by insufficient or outdated knowledge.

Each signature on this petition represents a patient, or a person who loves a patient who has been misdiagnosed, mistreated or dismissed by their endocrinologist. There must be someone who takes notice and hears our voice. Read our stories. We are collectively asking our endocrinologists to hear our plea. This petition is our initiative to restore our faith in our doctors.We believe that with awareness will come change. Please help us end the unnecessary suffering of thyroid patients worldwide.

Written by: Michelle T. Bickford

Edited by: Denise Rodriguez

Recent signatures

    News

    1. FREE WEBINAR REGARDING THYROID HORMONES!

      Thyroid Change™
      Petition Organizer

      Hello!

      Thank you so much for your continued support of ThyroidChange! We have received word that we have achieved our official 501c3 status and are a federally tax-exempt charity (US). We could not have done this without your funding support!

      To thank our supporters, Dr. Hotze agree to do a FREE webinar for our supporters regarding thyroid hormone. Please feel free to view it as it will be available until Monday for viewing:
      http://www2.hotzehwc.com/watchthyroidchangewebinar

      Be sure to click on the link for Dr. Hotze's FB page if you have any questions as he will be answering them as he is able.

      Thank you again for all of your support!

      Cheers to your good health!

      ThyroidChange

    2. Reached 20,000 signatures
    3. ThyroidChange Becomes a NJ Nonprofit Organization

      Thyroid Change™
      Petition Organizer

      On September 20, 2013, ThyroidChange, Inc was formed under 12A:2-6 of the New Jersey Nonprofit Corporation Act. Congratulations!

      We are now moving for federal nonprofit status!

    4. DONATE NOW!

      Thyroid Change™
      Petition Organizer

      We know that we cannot stop until we create the needed change evidenced by this petition. Every donation brings us closer to becoming a charitable organization.

      https://www.fundraise.com/thyroid-change/help-thyroid-change-become-a-non-profit-501-c3

      Help ThyroidChange Become A Nonprofit Organization, 501(c)(3)

      WE NEED CHANGE! Help ThyroidChange (www.ThyroidChange.org) become a nonprofit organization dedicated to change in the treatment of thyroid disease! Patients worldwide are suffering due to current guidelines in the treatment of hypothyroidism. This situation motivated thousands worldwide to unite as the ThyroidChange community.

    5. Local Feature on ThyroidChange Co-Founder, Michelle Bickford

      Thyroid Change™
      Petition Organizer

      ThyroidChange Co-Founder, Michelle Bickford, is featured by her local paper in New Jersey, USA.
      http://www.northjersey.com/news/221594811_Hawthorne_resident_launches_an_organization_to_help_hypothyroidism_victims.html

      Hawthorne resident launches an organization to help hypothyroidism victims

      When Hawthorne resident Michelle Bickford, 36, had what she calls a "crash" after the birth of her third daughter, doctors attributed it to post-partum depression. She refused the diagnosis and instead went after the medical community for not properly addressing the illness she's lived with for most of her life: hypothyroidism.

    6. ThyroidChange's Wall Street Journal Mention

      Thyroid Change™
      Petition Organizer

      ThyroidChange is mentioned in this article regarding our movement for improved thyroid treatment!

      http://online.wsj.com/article/SB10001424127887324635904578644532652110970.html

      Why are so many hypothyroid patients organizing and agitating?

      Some people with hypothyroidism, or underactive thyroid glands, are organizing and agitating. Their complaint? That traditional means for diagnosing and treating the condition don't work for all patients.

    7. ThyroidChange is fundraising to become a nonprofit organization!

      Thyroid Change™
      Petition Organizer

      We know that we cannot stop until we create the needed change evidenced by this petition. We are 75% funded in only 3 weeks. Please help us keep momentum by making a donation. Every amount brings us closer to becoming a charitable organization.

      https://www.fundraise.com/thyroid-change/help-thyroid-change-become-a-non-profit-501-c3

      Help ThyroidChange Become A Nonprofit Organization, 501(c)(3)

      WE NEED CHANGE! Help ThyroidChange (www.ThyroidChange.org) become a nonprofit organization dedicated to change in the treatment of thyroid disease! Patients worldwide are suffering due to current guidelines in the treatment of hypothyroidism. This situation motivated thousands worldwide to unite as the ThyroidChange community.

    8. Reached 12,500 signatures
    9. We Need Change Video

      Thyroid Change™
      Petition Organizer

      Have you seen our video to spread awareness about this petition and resulting movement? http://www.youtube.com/watch?v=2-7AkhKhDsA&feature=youtu.be&hd=1

      Please share it with every person you can. You will help us create change and spread awareness to other patients that there are treatment options and tests beyond TSH. So many are suffering unaware!

      WE NEED CHANGE (by ThyroidChange)

      Current diagnosing and treatment guidelines for thyroid patients are leaving many thyroid patients undiagnosed, under-treated or suffering on the wrong medication. We need your help to facilitate greater awareness for better care among thyroid patients. Please share this video. We need vast public awareness to make our voices heard and to effect change in thyroid health care.

    10. Reached 10,000 signatures
    11. Pennsylvania Senators Respond To Our Congressional Letter!

      Thyroid Change™
      Petition Organizer

      Senators Toomey and Murphy from Pennsylvania have forwarded our congressional letter for change in thyroid care to the Washington D.C. office for review. A ThyroidChange collaborator also has a meeting with the Senators in December 2012. Wish us luck!

      Read our congressional letter here: http://www.thyroidchange.org/letter-to-policy-maker/ and mail your state congressmen or policy maker!

    12. Decision-maker American Medical Association- Council Of Medical Education responds:

      American Medical Association- Council Of Medical Education

      Where is it being sent?


    13. Reached 6,000 signatures
    14. TRANSLATIONS AVAILABLE!

      Thyroid Change™
      Petition Organizer

      Please join us at ThyroidChange where we have various translations of the petition, as well as helpful information for our supporters.

    15. Hormones Matter!

      Thyroid Change™
      Petition Organizer

      Please read this voice regarding the petition provided by Lucine Biotechnology, Inc.'s Blog: Hormones Matter. Please consider sharing your voice with ThyroidChange.

    16. Welcome ThyroidChange!

      Thyroid Change™
      Petition Organizer

      ThyroidChange began with this petition, but had now evolved into a web-based initiative to unite the thyroid community and give global support to each initiative. Together, we WILL change the future of thyroid care!

    17. Welcome International Petition Ambassadors

      Thyroid Change™
      Petition Organizer

      We are still looking for other ambassadors for other languages. If you would like to become an International Petition Ambassador, simply respond to this post or message us, and we will add you to the list. Basic description of duties is found on FB. Click on the link below.

      Australia/New Zealand: Tracey Keen
      Denmark: Nina Björk Eliasson
      Latin America/Mexico: Natali DF and Milindra LC
      The Netherlands and Dutch-Speaking Countries: Anouk van Goens Y
      Norway: Sonja Midtlien
      Poland: Jadwiga Białobrzeska-Urbańczyk
      Russia/Azerbaijan: Sam Aliyev
      Spain/Gibraltor: Derek Porro
      Sweden: Sigrid Marléne Jeanette and Anna Magnusson
      United Kingdom: Mary Foord-Brown, Sheila Turner

    18. Reached 3,000 signatures
    19. Follow us on Twitter!

      Thyroid Change™
      Petition Organizer

      Tweet! Tweet! ThyroidChange @ ThyroidChange

    20. Thyroidboards.com supports us!

      Thyroid Change™
      Petition Organizer

      Built by a fellow thyroid patient who was looking for support, Thyroidboards.com is an expansive community of patients with thyroid dysfunction. It is a network of thyroid patients sharing information and offering emotional support. This community is thriving and serves all those who are seeking other thyroid patients because we have a unique bond due to our shared journey.

    21. Reached 2,500 signatures
    22. Websites/ Blogs supporting our petition

      Thyroid Change™
      Petition Organizer

      Please check out the websites and blogs that are currently supporting our petition. Some excellent reading material! Click on the link below...

    23. Our 1st Interview

      Thyroid Change™
      Petition Organizer

      Check out this interview with the author, Michelle Teresa, and editor, Denise Rodriguez of this petition. Find out more about the petition and how it came to be:

    24. Thyroid Support Ireland (TSI) offers their support!

      Thyroid Change™
      Petition Organizer

      Founded by Shan Kelly, TSI aims to provide thyroid patients living in Ireland with information about thyroid illness and the latest treatment available in Ireland and abroad. TSI also provides patient-to-patient support for those living with thyroid disease and to those aiming to improve their health.

    Supporters

    Reasons for signing

    • edy favero ITALY
      • about 3 hours ago

      perchè dopo essere stata operata di emitiroide,in cura dal 1990 con eutirox le mie sofferenze sono innumerevoli, è vero non ne muoio ma sono tante cose che rendono la vita difficile

      REPORT THIS COMMENT:
    • Eniko Pongracz BUDAPEST, HUNGARY
      • about 6 hours ago

      All possible tests done, prior to any decision based on simplest basic tests. Shorter waiting times. Acceptance by docs and prescription of natural meds instead of synthetic. Etc

      REPORT THIS COMMENT:
    • Nancy Berry CASPER, WY
      • about 7 hours ago

      For four years my TDC levels have changed several times, my levothyroxin dosage adjusted, and have been told to "see if this works". I feel worse now than when I was diagnosed with hypothyroidism after radiation treatments and chemotherapy for cancer.

      REPORT THIS COMMENT:
      • about 16 hours ago

      Wegen einem langen Leidensweg, der auf der Unkenntnis von Endokrinologen beruht.

      REPORT THIS COMMENT:
    • Sharon Heeley BRISTOL, UNITED KINGDOM
      • 1 day ago

      We need to have choice so that we can live a full and energetic life. Live well, be well. Be happy and well!!!

      REPORT THIS COMMENT:

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