@drharshvardhan : Save my 12 year son Arian #savearian #huntersyndrome
  • Petitioned Dr. Harsh Vardhan

This petition was delivered to:

Minister of Health and Family Welfare
Dr. Harsh Vardhan

@drharshvardhan : Save my 12 year son Arian #savearian #huntersyndrome

    1. Petition by

      Sib Sankar Chowdhury

      India

  1.  
  2.   

My 12 year old son Arian, has a rare disorder called the Hunter Syndrome. Estimates say that there are around 2000 people in the world who are affected by this disorder. We witness him struggling with his life everyday, battling this disorder.

This is one of the rarest disorders in the world. Most countries have subsidized treatment for this disease, but this is not the case in India.

Most patients die young because the treatment is very expensive. I don't want to lose my son, that’s why I need your support

The Indian Minister of Health and Family Welfare, Dr.Harsh Vardhan, has the power to change this and subsidise treatment for this rare disease.  

In order to live, Arian needs to undergo an enzyme replacement therapy developed by Shire, a US drug company. But the medicine is very expensive and impossible to find in India. If this treatment is subsidised in our country, anyone suffering from this disease will be able to afford it. 

That’s why I started a petition on Change.org, asking Minister Dr. Harsh Vardhan to subsidise the treatment for Hunter Syndrome patients in India, and save Arian’s life.

Over the years my son’s health has deteriorated drastically. We need as much support as we can get on our petition to ensure that Dr. Harsh Vardhan doesn’t ignore our demand.

Please sign my petition and share it with your friends. 

Thanks in advance for your support

Sib Sankar Chowdhury 

Recent signatures

    News

    1. Reached 100,000 signatures
    2. Reached 2,000 signatures

    Supporters

    @suhelseth

    Oct 05, 2013

    http://t.co/eRcxhyrWhd

    SUHEL SETH
    218k followers

    @abhijitmajumder

    Sep 25, 2013

    RT @Renjitweets: Please help this 11yr old Kolkata boy http://t.co/vwwzKacCsK His mother @Save_Arian fighting a lone battle to save him

    Abhijit Majumder
    40.8k followers

    @kenghosh

    Oct 01, 2013

    Shri Ghulam Nabi Azad: Save my 11 year son Arian #savearian #huntersyndrome http://t.co/OjSFIyqfCv via @change

    Ken Ghosh
    185k followers

    Reasons for signing

    • puneeth k INDIA
      • about 1 month ago

      Empower Direct selling support

      REPORT THIS COMMENT:
      • about 1 month ago

      We must support this cause....

      REPORT THIS COMMENT:
    • sunita pradhan NAVI MUMBAI (NEW MUMBAI), INDIA
      • about 1 month ago

      every child has the rite to life. so give this child a chance. live and let live.

      REPORT THIS COMMENT:
      • about 1 month ago

      Important to subsidize and save the adorable Arian. Thanks

      REPORT THIS COMMENT:
    • Misbhaudeen Munirudeen THANJAVUR, INDIA
      • about 1 month ago

      he is my brother from another mother,,, & i care about all my brothers & sisters.

      REPORT THIS COMMENT:

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