Petition To Restore CFS to the Neurological Chapter 6 in the ICD-10-CM
  • Petitioned Medical Classification Administrator National Center for Health Statistics - CDC

This petition was delivered to:

Donna Pickett RHIA, MPH
Medical Classification Administrator National Center for Health Statistics - CDC

Petition To Restore CFS to the Neurological Chapter 6 in the ICD-10-CM

    1. Petition by

      Coalition 4 ME/CFS

  1.  
  2.   
July 2012

Victory

We created an ME/CFS petition directed to the CDC/NCH, which already accomplished the first step of a ongoing conversation with the NCHS - the proposal we submitted to reclassify CFS in the ICD-10CM was accepted for review

On July 15, the Coalition 4 ME/CFS submitted a proposal to the National Center for Health Statistics (NCHS), ICD-9-CM Coordination and Maintenance Committee (C&M) to restore CFS to Chapter 6, “Diseases of the Nervous System,” code G93.3 in the ICD-10 Clinical Modification (ICD-10-CM). The Coalition's proposal was based on the scientific recommendations made by the federally-appointed Chronic Fatigue Syndrome Advisory Committee (CFSAC), a committee of national experts on ME/CFS, on September 2004, August 2005 and May 2011. 

The proposal was "accepted for review" by NCHS and only under ICD-10-CM since ICD-9-CM is now "locked down".

On September 14, the Coalition 4 ME/CFS made an oral presentation to the committee and responded to concerns expressed by audience members.

The coalition has written a letter to clinicians, researchers and other medical professionals outlining the two options http://coalition4mecfs.org/ICDLetterPhysicians.pdf 

The NCHS is asking for public input during the “open comment” period between now and November 18. The NCHS director will make a decision sometime in December. By signing this petition you will be sending a letter in favor of the Coalition option. For the complete information on the Coalition's proposal  please visit http://coalition4mecfs.org/ICD-Home.html

 

Recent signatures

    News

    1. Reached 100 signatures

    Supporters

    Reasons for signing

    • Geraldine Romero DENVER, CO
      • almost 3 years ago

      I have Fibromyalgia for more than 20 years now and fill that it is not reconized by Social Security judges who still have not educated themself in understanding Firbromyalgia. I have been denied twice SSDI and still appealing. I therefore support listing CFS with or along side ME.

      REPORT THIS COMMENT:
    • Karen Rizzo FORT LAUDERDALE, FL
      • almost 3 years ago

      I concur with all being said, it's just a very sad day when we are so devastatingly sick that we have to fight for the obvious. I am bedridden and wheelchair bound, on disability and I can only pray that ME/CFS is recognized as it should be! Having Fibromyalgia doesn't help, because of the lack of knowledge I have suffered for over 30 years before this being recognized as a true disease. I support ME being listed with CFS

      REPORT THIS COMMENT:
    • Jean Harrison SALEM, MA
      • almost 3 years ago

      It's the only way forward

      REPORT THIS COMMENT:
    • Catherine Berger BETHLEHEM, PA
      • almost 3 years ago

      With all the research that has been complied and documented to date on ME/CFS, why would this illness continue to be classified under a code for "unspecified" fatigue?

      REPORT THIS COMMENT:
    • leslie king AURORA, CO
      • almost 3 years ago

      I am totally in favor of this which is very important to those of us with CFS

      REPORT THIS COMMENT:

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