Petition To Restore CFS to the Neurological Chapter 6 in the ICD-10-CM
  • Petitioned Medical Classification Administrator National Center for Health Statistics - CDC

This petition was delivered to:

Donna Pickett RHIA, MPH
Medical Classification Administrator National Center for Health Statistics - CDC

Petition To Restore CFS to the Neurological Chapter 6 in the ICD-10-CM

    1. Petition by

      Coalition 4 ME/CFS

July 2012


We created an ME/CFS petition directed to the CDC/NCH, which already accomplished the first step of a ongoing conversation with the NCHS - the proposal we submitted to reclassify CFS in the ICD-10CM was accepted for review

On July 15, the Coalition 4 ME/CFS submitted a proposal to the National Center for Health Statistics (NCHS), ICD-9-CM Coordination and Maintenance Committee (C&M) to restore CFS to Chapter 6, “Diseases of the Nervous System,” code G93.3 in the ICD-10 Clinical Modification (ICD-10-CM). The Coalition's proposal was based on the scientific recommendations made by the federally-appointed Chronic Fatigue Syndrome Advisory Committee (CFSAC), a committee of national experts on ME/CFS, on September 2004, August 2005 and May 2011. 

The proposal was "accepted for review" by NCHS and only under ICD-10-CM since ICD-9-CM is now "locked down".

On September 14, the Coalition 4 ME/CFS made an oral presentation to the committee and responded to concerns expressed by audience members.

The coalition has written a letter to clinicians, researchers and other medical professionals outlining the two options 

The NCHS is asking for public input during the “open comment” period between now and November 18. The NCHS director will make a decision sometime in December. By signing this petition you will be sending a letter in favor of the Coalition option. For the complete information on the Coalition's proposal  please visit


Recent signatures


    1. Reached 100 signatures


    Reasons for signing

    • Geraldine Romero DENVER, CO
      • almost 3 years ago

      I have Fibromyalgia for more than 20 years now and fill that it is not reconized by Social Security judges who still have not educated themself in understanding Firbromyalgia. I have been denied twice SSDI and still appealing. I therefore support listing CFS with or along side ME.

    • Karen Rizzo FORT LAUDERDALE, FL
      • almost 3 years ago

      I concur with all being said, it's just a very sad day when we are so devastatingly sick that we have to fight for the obvious. I am bedridden and wheelchair bound, on disability and I can only pray that ME/CFS is recognized as it should be! Having Fibromyalgia doesn't help, because of the lack of knowledge I have suffered for over 30 years before this being recognized as a true disease. I support ME being listed with CFS

    • Jean Harrison SALEM, MA
      • almost 3 years ago

      It's the only way forward

    • Catherine Berger BETHLEHEM, PA
      • almost 3 years ago

      With all the research that has been complied and documented to date on ME/CFS, why would this illness continue to be classified under a code for "unspecified" fatigue?

    • leslie king AURORA, CO
      • almost 3 years ago

      I am totally in favor of this which is very important to those of us with CFS


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