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ASD momNC
Durham, NC
Recent Activity
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ASD commented on the article |I feel the same way. I remember reading a while back about a personal GPS locator that also had a built in digital sound recorder that recorded every sound around the person for a 24 hour period, and thought how that would be nice to have, so I could "play back" my son's day at school and REALLY know what his day was like.
He's getting better, little by little. Today he told us, spontaneously, that his leg hurt, and was able to show us where (bruised shin from a run in with a tree outside). Things like that are so important to me. I worry all the time about him being taken advantage of or worse, abused, and not being able to tell me about what happened.
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ASD commented on the article |Twyla, again, YOUR belief. Not mine. You're barking up the wrong tree. I do not believe the curebie line. You do, great. Go nuts. Go tell it to somebody at the rescue post.
ANYWAY....
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ASD commented on the article |
I dunno about autism in animals, but I believe to my very core that autism is absolutely, positively, unequivocally genetic. My hypothesis has been proven again and again and again. Nerd DNA, folks. Nerd DNA. We geeks are breeding.
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ASD commented on the article |Ah, "wrongful birth" lawsuits. Nothing like putting the clear message out there that says: I'm angry that you (my child) were ever born, and I wish you didn't exist. What a wonderful, loving, caring, accepting message to send to and about your special needs child. Awesome.
On a side note, it's stuff like this that makes me appreciate the book Expecting Adam all over again. -
ASD commented on the article |We chose to have another child after our first child was diagnosed, and the reactions of some people were nothing short of aghast horror. Especially since they know how we feel about autism's "cause," that it is genetic. One woman my sister in law works with even went so far as to say we were horrible people for having another baby when the chances were so good that we would have another "one of those" children.
Sigh. -
ASD commented on the article |Bravo, James. Spot on. Independence does not mean 'recovery,' it means you have learned a skill. Children with severe cerebral palsy or other severe disabilities can learn new skills and eventually live independently, but no one claims they are 'recovered' or 'healed' or 'cured.'
It's what I've been saying over and over (often falling on deaf ears): you can learn to "pass" for neurotypical (in that you can be socially appropriate, hold down a job, live independently, etc.), but your brain still works in the same way. Autistic. And there's nothing at all wrong with that. Autism is not the devil, it does not need to be exorcised. -
ASD commented on the article |That is heartbreaking. Yet, I can understand that level of grief. I would not want to go on living if my children died. God love them, that's just horrible.
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ASD commented on the article |Those would fall into the category of "interferes with life," and I agree, need to be treated.
We don't interfere with our son's stims, to a point. Meaning, he can't take stimmy objects into the classroom, he can't stim at the dinner table if it's loud and intrusive to those around him, he can't stim intead of sleeping, etc.. When he first started OT, the therapists had to clear the sensory gym of all things with wheels when my son came in for therapy, because he would stim instead of focusing on the task at hand.
I'm pretty liberal with not breaking stims, but like you so well articulated, there are definitely stims that need to/have to be broken from time to time. -
ASD commented on the article |
In her book, "The Fabric of Autism," Judith Bluestone explains that repetitive behaviors actually release endorphins in autistic persons. She talks about how when she suppresses her stims in order for her to present at conferences or work in therapy sessions with clients, that she often comes home and sort of has a stim explosion in order to "reset" her body and her sensory systems.
I am of the frame of mind that as long as the behavior is not harmful to the individual or to anyone else, and as long as it does not interfere with things necessary for daily life such as sleep and eating, then let it be. Benign repetitive behaviors can be a way of him attempting to self regulate and self soothe. -
ASD commented on the article |Twyla, here's the thing...facts cannot be altered. Saint Jenny has changed her story many times to fit her audience.
You think she hung the moon. Wonderful. I think she spouts nothing but quackery and nonsense. If you are trying to convince me she is anything but a hack, you are talking to the wrong woman. You're entitled to think she's wonderful. I'm entitled to think she's a liar who has spreads potentially harmful misinformation. End of discussion.
