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Katharine Annear
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Katharine commented on the article |hmm well my cat definitely has autism. she is very anti-social and has some very challenging behaviour. she prefers deep pats and massages over light touches. she has one main obsession - water. she will do almost anything to get access to running water. we have spent 100's of $ buying water bowls because she tips them to watch the water run. the heavy ceramic bowl now sits in the bath so spills go down the drain. she will play with a driping tap for hours and has been known to try and turn the tap on. her other obsession is a thermocouple plug on the end of a piece of wire which she will cary around the huse and take to bed with her. her other mum says she gets it from me. ;)
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Katharine commented on the article |see luke's appaling living conditions now and in the past
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Katharine signed the petition | -
Katharine commented on the article |Dora - Great Post - I just finished talking at a conference with seven other people on the spectrum and a 16 member ASD theatre company and one of the major questions posed by a section of the audience was "where are the real Autistic people?" meaning I guess the one's that don't present at conferences??!!**?? What maddened me was that I 'felt' I had to justify my position - and to somehow explain the position of each individual on the spectrum. People get mad because they don't see "thier child" or the child they work with reflected on stage. They don't see their child because they are looking at a group of adults, who have over time, and with a great deal of persistence from their parents, service providers and of course themselves, developed skills. Communication skills, self help skills, self managements skills etc...... Do we need to wear signs like:I didn't talk until I was 12I only talk in the 3rd personI only communicate using stored phrases from tv commercialsI take 4 different medications to function everydayMy house is full of visuals to help me stay on track
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Katharine commented on the article |Congratulations Meg - the work on communication pays off, 21 years - great achievement!!
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Katharine commented on the article |Jen, Sorry that this is the case for your son. Very frustrating that we are on the other side of the world from each other. I would like to help you and him if I could.
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Katharine commented on the article |
Jen, it really concerns me that anyone would even still consider prescribing Haldol. The side effects can be so debilitating particularly tardive dyskinesia. Having been prescribed older (the oldest first generation ) neuroleptics I can attest to the side effects myself. Is there not a newer medication that could be trialed for your son?
I am not anti medication I take it today for anxiety and a movement disorder. In fact I am going through some interesting times with medication changes and it is taking me a very long time to type this as I progressively lose motor function over the day!
It is not easy to get this all right but we do know a lot about the effects of Haldol to know it would be a last last last resort drug - I hope that is not the situation with you. -
Katharine signed the petition | -
Katharine commented on the article |
To use a popular Aussie expression "Bloody Brilliant"
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Katharine commented on the article |DoraJust catching up with Change.org after being sick in bed all week *cough cough*. After reading this post I would like to let you know about a program developed here in South Australia. The program is called Spectrum PMP (Peer Mentoring Program). The project started in 2006 as a pilot Action Research Project and the outcomes were so favourable it is now a core service for the organisation I work for. Spectrum PMP trains adults with ASD to become youth mentors. The training offered is accredited training in Youth Mentoring at a certificate level and is tailored to meet the needs of ASD learners. The Mentors then sign up as volunteers to work in a group stting with young people on the spectrum aged between 15-25. The program focuses on promoting resillience and aiding transition. Mentors and Mentees go through various processes to identify comonailities and differences, share experiences and set goals. I would be happy to be contacted about the program if people are interested!
Regards,
Katharine Annear
