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Fw2 farmwifetwo
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Fw2 commented on the article |My Child Psych says a child should never be on a med longer than 6 to 12mths depending on their age. They should be weaned off a minimum of 2 weeks, 4 if you can handle it. When we did this nearly 18mths ago with my eldest we discovered that the Risperdal had rebounded - created the symptoms that we had been using the medication to lessen - behavioural, anxiety and hyperactivity. He is currently sans meds BUT.. should he ever need them again well try something else.
Little boy started this morning a mild dose of Adderall to see if it helps with the attention issues. It may, it may not. But I would like to give it try atleast.
Best of luck with the school mess. We have a new VP this year... not happy had our best school years ever last year and it took me 2yrs to teach that VP... My FSW says I'll like her, maybe so, but I don't know her and I definately don't trust her yet.
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Fw2 commented on the article |I can appreciate that you may not receive the same diploma as another child who passes the exam. But I don't see why you don't graduate from your program along with the rest of your class. You earned your "diploma" (certificate of completion) as much as they did.... why not get the "party" that goes with it. Now, being in a self-contained classroom do you graduate with your peers at 18 or at 21 when you've completed your program.... does it matter??
As for the child who didn't complete the IEP, I have no opinion b/c I wasn't there to help write it - I always have an opinion on my children's IEP's and they've been known to change IEP's due to that opinion - it may simply have been impossible due to his disabilities for him to meet the criteria written in the IEP... but that was up to the Courts to decide not the public.
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Fw2 commented on the article |The diet only worked on my elder b/c he had diahhrea, nightmares/terrors and it was only dairy that worked... months later we added gluten for nearly a year and it didn't help.
Dairy made huge changes instantly. Nightmares/terrors/diahhrea (which was all daily) gone. Also gone was the constant tripping/falling and the leaning when he sat.
I've posted the story more than once but we did give him some later and had 24hrs of nightmare behaviour that ended with him calm as calm slamming his head off the porch step (concrete) giving himself a bruise and swelling on the middle of his forehead.
Is it a cure... NO. Does it help... Yes. If you feel crappy all the time how easy is it for you to learn anything new?? If these Dr's were expecting "magic changes"... then they found none... if they were looking for happier children that were able to learn more/faster... then maybe they should have changed the terms of their paper.
What they just did was say "some autistic kids are like that" and allow Dr's to ignore the gastronmic issues once more in autistic children... whereas they would have dealt with them in "NORMAL" children.
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Fw2 commented on the article |I collect books.... and I'll lone you my china before I part with them too :)
Change does happen, growth happens. Which is why I had little sympathy for Ms Sarah and her rant at the NYTimes story.
Autistic adults need to remember they were not "adults" as small children. That someone had to help them learn to communicate, toilet, social and behavioural skills, the 3R's etc. And when we deal with autism in small children, it is scary... why?? B/c there is no firm answer on how to help them communicate, therapies range from the bizzare (chelation) to the Pavlov's Dog training of ABA to play with your kid of Floortime to Speech therapists to OT's to.... Then you get the aggressive behaviours on top (only one of my 2 and luckily the mild one so he's doing well now... but there was a time.....) You feel like you're in a big dark hole and nobody can help you.
Yes, change happens.... but maybe the adult self-advocates should be a little more sympathetic to those that just received the diagnosis.... They might get partners, not parents that aren't interested in listening to them.
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Fw2 commented on the article |Ummmm.... they are to blame for parents isolation and sometimes depression. They are the reason for our constant exhaustion, constant guilt, constant.....
I'm sorry if the self advocates don't like the fact that parents don't claim that living with autism is all rosy. To claim we paint our children as monsters is nasty and uncalled for. I'm sorry that now as an adult you think you were a perfect child and not a difficult one to raise. Autism is difficult, there is no treatment, there is no automatic services for parents to get, it's a constant battle of wills btwn the system and the parent to get you what you need to become that self advocate.
The phrase that gets me is the "I'm sorry but you have comments and opinions of autistics missing from your account".... WT??? So us parents are not allowed to tell it like it is?? That we cannot tell you how much it hurts to watch our children grow and know they will never be like the others?? We should just bury all of that when our children cry and say "R - camp" and tell him it's his fate, his right, his "autism is glorious" and not feel sad b/c he wants to do as the others do?? The fact I am not going to be able to send him now b/c his helper has gone half way across the country and there's nobody else.... But AUTISM IS GLORIOUS and he should be PROUD he can't go.... EXCUSE ME!!!!!!
Instead of attacking the very people that helped you learn, helped you grow, got you the education you needed... maybe those "self advocates" should learn to say "Thank you for trying your best".
Also, I'm tired of the fact those with Asperger's keep claiming to have AUTISM. Where's the parents of children with speech and developmental delays??? Sorry, any child that can talk and understand what is spoken to him, can also learn a lot easier that those of us with children that have to be taught ever word.
I know.... I have one that was mild PDD and is now NLD. He's learning social and behavioural as quick as it can be taught and is doing amazing at 10 yrs of age.
I also have one with severe, non-verbal PDD... so self advocates... don't tell me I don't know anything about autism.
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Fw2 commented on the article |I don't think anyone has the right to advocate for you which is why I dislike Autism Speaks, The Autism Acceptance Project, ASAN, ABA camps, biomed camps etc.
How dare any one of those claim to know what my family needs or wants. How dare any of those claim to know better than I for whatever reason (parent advocates or an autistic advocate) what my family needs.
Community Living believes in advocating for each family individually. This is the group from which my family support worker is employed. I appreciate that individual attention to our individual needs, very much.
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Fw2 commented on the article |It's one of the reason's I don't want my youngest to go from a regular class to a self-contained handicapp class in h/s b/c they don't like putting in 1:1 in h/s when they have these "special" classrooms.
These classrooms also teach "self help" with a small helping of academics... we do self help at home, we do extra school work at home.... If I lose the battle he will come home and be homeschooled at home.
S
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Fw2 commented on the article |Best of luck finding a new placement. I don't think it's right that the school system should remove your child that easily from his classroom if there's no proof of need. Although, I am surprised that you didn't know what testing had been done b/c I have all reports and I am the first one to nag and get it done.
We have a process "Individual Placement Review Committee Report" (IPRC) that both school and parent can argue over placement, and also use that document to get the Province to pay for supplies - like my youngest's ball chair and my eldest's keywriter.
I have to admit I am slightly envious that there are autism private schools in the USA AND the State will pay for you to go there. I wish at times we had that option.
Being we don't have those options I am seriously considering homeschooling both in highschool. I'd do it tomorrow but the truth is, except for the extra in the summer/holidays/weekends none of us is ready for them to be out of school yet.... although considering the behaviour problems (not my kid, the "so called" NT ones) in their school... it may be sooner rather than later b/c I'm tired of it and more and more, so is the eldest.
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Fw2 commented on the article |"Did Sicile-Kira include citations? Like, information on how she knows those are "the top three areas?" If so, could you let me know where she got her information; I am interested"
Had to snicker, when autistics (ND Autistics since those that are not ND friendly are shunned in Hub-land) have an opinion it's "gold standard" when a non-autistic has an opinion, something they've seen with their own children or the children/adults they may have worked with it has to be "official proven results". Michelle Dawson slapped me back for that as well.
Talk about double standards.
As a PARENT of TWO (2) children with autism one with NLD and one with Severe, non-verbal PDD I suspect her findings are true b/c they are the very things I have found have increased my children's learning when addressed.
If you can help cope with the sensory/anxiety issues, bring these "flight or fight or pain causing" issues under conscious control, communication seems to become easier. It's hard to think and be part of the world when the world is too big, too painful to cope with. It's very noticable when my little one becomes ill, communication of any kind becomes almost non-existant on his part. He curls up on the sofa, ignores everything except for the tv. All I can do is guess, and make him as comfortable as I can until he feels better.
Once communication becomes easier btwn parties, you can deal with safety issues. Until you understand and have language skills how can you explain things like "if you do (a), (b) will happen". Language and communication are necessary for executive functioning to improve. How can you manage your own home, money, etc without language and communication skills. How can you not be scammed out of those things without language skills. Others like BOLTING which is a huge problem when your 7yr old runs a LOT faster than you do and is becoming very strong that one day you won't be able to control that bolt from happening when you are holding hands and walking down the road.
Those would be my top 3 concerns/goals for my children.
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Fw2 commented on the article |If he understands right from wrong he is able to stand trial for his crimes in the USA.
ASAN and it's ilk keep claiming that "AUTISTICS" should be treated without discrimination. Yet to turn around and use the diagnosis as an excuse to advoid trial "but sir I didn't know any better." allows for that discrimination to continue. It allows goverments to make laws that in their POV protects those with autism but may seriously curtail the independance of autistics that would never go against societies laws.
So.... those with autism - like ASAN and the ND crowd - have to decide... is Autism a mental illness or a difference. A mental illness he can get off from being charged but will probably have to go into protected care and you run the risk of the US gov't changing disability rules back to the dark ages. A difference and he is returned to the US for trial and those with the "difference" realize the "do the crime, they do the time".
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