Rose Walker

Recent Activity

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  Rose signed the petition | 11 months ago

  Tell the CDC "No" on Abuse-Enabling "Wandering" Code!
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  Rose signed the petition | about 2 years ago

  Protect Children by Supporting the Preventing Harmful Restraint and Seclusion in Schools Act
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  Rose signed the petition | over 2 years ago

  Pass the Community Choice Act with Comprehensive Health Care Reform!
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  Rose commented on the article | over 2 years ago

  In Search of Research That's Relevant

  Kristina:
  
  You wrote: "Did you find any ways to get people to think a bit differently?"
  
  I don't know if I did or not.  It's tough for me to talk about that job.  I dream about it A LOT!  I've got to tell you, the people I worked with were spectacular in that I know the kids felt safe with them.  They were kind, they were protective, and it was understood that their reactions were as much responsible for the kids behavior as anything.  What they did, they did remarkably well. They knew instictively what made the kids (they were all under 18) comfortable, and they gave it to them. They also had the very real threat of the time out room...
  
  Mark hit it on the head when he wrote: "they just assume we don't have much of a quality of life."
  
  The answer?  I don't know.
  

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  Rose commented on the article | over 2 years ago

  In Search of Research That's Relevant

  This isn't the study. but some information about it.  It makes a lot of sense to me....http://www.thestar.com/article/633688
  
  Man, does that make me think of the kids I've known, and even myself.  MORE sensitive, not less.  Puts a whole new perspective on things.  I am reminded of the testing of one of the kids at the institution I worked at for 7 months.  He "understood" at an 11 year old level.  He "reacted" at a 2 year old level.  So, of course they appealed to his "reactions", not his intelligence. It made no sense to me.  It's like nobody saw his intelligence at all, only his behavior. I was told once that no-one at the institution had the  mind of over a kindergardener.  I guess we see what we want to see, or what we are told to see.
  
  What if we changed the environment to make it seem less explosive?  What if instead of spending thousands of dollars to make auties "fit in"...we looked to changing their environment?  I dunno...makes my brain hurt!

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  Rose commented on the article | over 2 years ago

  Developmentally Disabled Patients Denied Care for Treatable Illness

  I love the story of an "adopted" family member.  She gave her kidney to her thirty five year old Down's daughter.  She said she only had one left, so if she needed another, it would have to come from one of her sisters...and she wasn't kidding.
  
  Amy showed up at my father's funeral.  At 45 years old, she still lives with her mom, and she is just as kind as can be. To think someone would purposely withold medical care shows the cold blood running through some people's veins.

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  Rose commented on the article | about 3 years ago

  Once Upon a Time, I Tried to Recover My Son From Autism

  Miss Kristina:
  
  You probably won't see my comment among all the others.  I just want to thank you for this post.  You and I have travelled a very similar road. It is unreal to think that at one time it was more important to "cure" our children rather than accept them.  What a learning process parenting is...
  
  Here's a ((hug)) that you  have the strength to do this.  We love you, and Charlie.  Thanks for allowing us to be a part of your lives. (Jim's okay, too, I guess!)
  
  Rose, Ben and Joel.