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Mark Romoser
Honolulu, HI
Recent Activity
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Mark commented on the article |As you may have read here, I have long advocated for the inclusion of autism within the larger disability rights community. To this end, I will shortly be starting as the systems change advocate at a Center for Independent Living in California, which has a dynamic new director (who herself has a hidden disability).
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Mark commented on the article |Come to think of it, I was wondering why there wasn't a Disabilities cause here.
Aloha, or as a once and now future Bay Arean, "Have a nice day!"
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Mark commented on the article |For all those years when I was walking around without a diagnosis, I always used to wonder what had become of my hetero white male privilege. Now I know.
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Mark commented on the article |"Celebrity and having a special-needs child is not an automatic ticket to being a good or informed advocate on the complicated matters of disability and disability rights."
Right you are. See under "McCarthy, Jenny".
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Mark commented on the article |Note that Article 19 of the CRPD guarantees people with disabilities the right to live in their own communities. Why, then, the foot-dragging on the CCA?
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Mark commented on the article |I thought the "Sally-Anne" experiment had been debunked years ago, by researchers who showed that older children with autism (age 10 instead of 7) could perform the task. Thus, whatever ability is being measured is not absent but only delayed.
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Mark commented on the article |My former employer, who introduced me to the disability rights community says "The ADA isn't for us. It's for our grandchildren."
Think about it. The Civil Rights Act was passed in 1964. Yet wee saw the other day just how much it helped Harvard professor henry Louis Gates, Jr.
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Mark commented on the article |Recent news stories about the case of Marine Pvt. Joshua Fry have had a tendency to place the word "autistic" and the phrase "child pornography" prominently in the first paragraph or two.
But if you read down toward the bottom, you may see something like "Fry had a downtrodden childhood... that included physical and possibly sexual abuse." Nowhere is it ever conjectured that the abuse, rather than the autism, might explain his desire for child porn.
Similarly, in the case of Virginia Tech shooter Seung Cho, hyperventilating "reporters" latched on to the word "autism" without taking time to reveal that he had been evaluated for it, and found NOT to have it, at age 8.
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Mark commented on the article |Why, thanks for the shoutout!
I've been working closely with an activist from ADAPT, the radical disability rights group, on this. She says that CLASS doesn't get it done for people with disabilities, because most of us aren't working to begin with and so won't be paying into the program.
And CCA has more than 100 cosponsors in the House. CLASS has fewer than two dozen. So why put CLASS in the reform package and not CCA? We might have to ask the lobbyists for the nursing home industry...
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The Autistic Self-Advocacy Network2 Actions 0 Recruits
