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Sonya O'Brien
I am a SAHM with two boys.
Recent Activity
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Sonya signed the petition | -
Sonya commented on the article |You are Sooo right! I had the Quad screen done at 20 weeks and it came back abnormal and it caused a lot of undue stress. The doctor didn't give me an option of doing it or not, just sent me for it and never really explained the implications of it. I refused amnio because I was going to love my child no matter what. The doctor said he had a high likelyhood of having Downs Syndrome or trisomy 13. He was born premature but was the strongest baby in the nursery, didn't require the NICU, didn't have Downs and appeared Very healthy, we went home in 48hrs and he weighed under 5 pounds. He now has ten different diagnoses and suspected genetic condition so the amnio would have helped in diagnosing the genetic condition but I don't believe it would change his quality of life or help in any way other than having a label. I think it will be a tragedy to lose a lot of brilliant minds because parents are afraid of having a child with Autism. My son has taught me so much about appreciating the little things in life, looking at things in such a wonderful way and not taking anything for granted.
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Sonya commented on the article |Kristina, yes and sometimes it is the opposite because ins. will not cover Autism but will cover PDD-NOS. I have also heard parents who think PDD-NOS is not Autism and refuse to believe their child has Autism so the doctor says PDD.
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Sonya commented on the article |
J, The very sad and possibly scary part it this is the Only ped. psych in our area, it takes months and months to see him and he trains psych students!!! I have heard him say so many contradicting things to myself as well as friends whose children who also see him.
We recently lost our pediatrician and ped. neurologist whom we loved because they moved. Our geneticist who comes to our area once a month is considering stopping, ugh. Our area is in desperate need of some good docs. -
Sonya commented on the article |I can't wait, I love spring! Outdoors here we come. I agree the ESY program leaves a lot to be desired. I am trying to get my son into a university school here that goes from K-12 and has the year round calendar. I think he would do better in that situation with fewer transitions over the years. It is a lottery type admission and is very hard to get in. Congrats to Jim on his book!
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Sonya commented on the article |My son is in both categories of being special needs and being gifted and I know it is going to be a challenge getting the support he needs to succeed. The problem with being gifted is the law states they have to provide an appropriate education and if your child is doing the average class work they think their job is done. The gifted do get neglected. Imagine the possibilities of our country if we nurtured these gifted individuals.
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Sonya commented on the article |
I also don't understand how they decided that Bailey had PPD-Nos and not Autism because they knew the cause. My child has the straight up Autistic Spectrum Disorder diagnosis and he had encephalopathy and demyelination (amoung other things) diagnosed prior to that. He is also very High functioning. I have a friend whose daughter has the PPD-Nos diagnosis and she is much lower functioning than my son. To me it is all Autism and the label really doesn't matter. Potatoe/Potatoe. Our Psych also stated to me that once my sons language skills increase he may upgrade his diagnosis to Asperger's. What??? I thought to get an Asperger's diagnosis you can't have had a severe speech delay??? So diagnosis really depends on the Doctor.
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Sonya commented on the article |
I couldn't have put it any better Jody. I agree totally!
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Sonya signed the petition |
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AutismVotes.org0 Actions 0 Recruits -
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